Undiagnosed : Hi. I'm in real need for some... - IBS Network

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Undiagnosed

FlowerCrownFighter profile image

Hi. I'm in real need for some advice and help.

I wondered what people's opinion was on what's been happening recently. I had a colonoscopy last July, after months of begging the doctors to do some tests. By that point the flare up had subsided, and my colonoscopy was normal.

I am having an even worse flare up of those symptoms. I have been loosing a lot of blood when going to poo, terrible pain after eating - the pain is so bad it reduces me to tears, I'm hardly eating due to pain and loss of appetite, extreme nausea, diarrhea. I've also been very dizzy and lightheaded and shaky.

After seeing the emergency GP last week, she said it sounds like a flare up of Crohn's disease or Ulcerative Colitis. (She said this after rectal examination, and examination of my stomach.)

I was wondering what people's opinions were. On what it sounds like. And also, what can I do to help the pain? The pain is beyond manageable. I honestly don't know what to do or how to cope.

From a very scared 20 year old.

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FlowerCrownFighter
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5 Replies

Oh poor you, has your GP prescribed you anything, if not she should refer you back to hospital , where they can treat you. Both Chrohns and Colitis can be managed, with Meds , but it must be properly Diagnosed. I really hope you can get this sorted real soon, you must be very worried and scared. Go back to GP and get refereed again even if your symptoms are not present at the time, they will still know more than your GP. Take care.

So sorry to read about your problems. Best advice: get an appt with your GP asap and ask for a referral to a gastroenterologist, you definitely need further tests.

Rosie

PoDundee profile image
PoDundee

Worth checking this out.

draxe.com/sibo-symptoms/

Hobbits profile image
Hobbits

Hello, your doctor tells you that you likely have Crohnes or U.Colitis, then just leaves you?

tsk tsk.

Go back and ask for a referral for a Gastroenterologist, so you can be properly assessed. I'm no expert but gonna go out on a limb here and say if your colonoscopy was normal it is unlikely you have colitis because colitis causes scarring and ulcers in the intestines, and a colonoscopy should have found evidence of this, even past scarring. Tell your doctor you want to look further into this so you know what you have, Therefore you can get treated properly, Chrohnes and U. Colitis are much more serious than IBS and there is some treatments.

fairyeyes profile image
fairyeyes

Do you have trouble with periods as it could be Endometrosis. just an idea but worth looking into.

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