My son is 12 and suffers with IBS D. His school are talking about legal action as he hasn't got to school for months. Any advice PLEASE ?

His school has said that because his consultant has said that it is 'probable' IBS, that they will have no choice than to take me to court as I have not lived up to my ' duty of care to make sure my child has an education'. Even though I have been asking them to send work home for him for the past 9 months. The school seem to be treating me as though I have a truanting child not a child with an illness. I have been having regular meetings with the school to keep them informed about my child. My Husband and I are paying for private Hypnotherapy for him. He is following

the Fodmap diet. Has anyone got any advice for me as I am going mad with frustration with this. HELP!

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  • I would suggest going back to your doc and explaining you need a written letter stating your sons condition and the effects on his day to day or his paediatrician. Take a copy of the letter to school and ask them to put it on file. Also write a letter yourself and keep a copy explaining the situation and requesting school work for home. This covers your back and shows you are trying to educate your child. Contact your local parent partnership scheme or similar organisation they are there to support parents with any school related matter and be your voice and tell you your rights and what you can and cannot do, also contact citizens advice. If his education is severely affected and you can't get it resolved through this approache maybe home school could be am option. I'm not suggesting anything will work but it's important to cover your back and show that he isn't truanting, he has a disease and you are trying to educate him. It may also be worth going above there heads and contacting your local education authority for your school district, beat them to it and try and stay one step ahead. I would get on this ASAP. Hope this gets resolved

  • Thanks very much for this. I have been in contact with the council previously, so will definitely do so again, and will also try Citizens advice. I am really sick of this now so maybe look into home schooling for the future. Thanks again , its great to get feedback .

  • I would suggest going back to your doc and explaining you need a written letter stating your sons condition and the effects on his day to day or his paediatrician. Take a copy of the letter to school and ask them to put it on file. Also write a letter yourself and keep a copy explaining the situation and requesting school work for home. This covers your back and shows you are trying to educate your child. Contact your local parent partnership scheme or similar organisation they are there to support parents with any school related matter and be your voice and tell you your rights and what you can and cannot do, also contact citizens advice. If his education is severely affected and you can't get it resolved through this approache maybe home school could be am option. I'm not suggesting anything will work but it's important to cover your back and show that he isn't truanting, he has a disease and you are trying to educate him. It may also be worth going above there heads and contacting your local education authority for your school district, beat them to it and try and stay one step ahead. I would get on this ASAP. Hope this gets resolved

  • Your welcome I hope you sort it

  • In view of the seriousness of his symptoms I would certainly go back to the consultant and explain as in my experience in seeing clients there will be something else underlying his diarrhoea - presume they have done all the checks and tests - fructose intolerance, lactose, gluten sensitivities, CD, bile secretion, parasites etc etc. They also need to write a letter to support your son's condition and how it impacts on him as per other replies

  • I' m going to take him back to the consultant as i am really frustrated with this. Thanks for the reply, its nice to know people are there. Thanks again.

  • You can de register him today. Write to the school stating you wish to home educate him and please can they deregister him. You can always send him to school again when his condition is better. But you then won't get any financial help to educate him. However, if he stays registered at the school but is unable to go, the LEA will need to provide a home tutor! Write to the LEA again, keeping copies yourself. Good luck. Home education is always an option. Both my sons have been home educated at different times and are now both in school again.

  • Thanks for taking time to answer, the more i think about things, I've decided to look into this just to stop all the stress and to concentrate on my son, and getting him better. Thanks again.

  • Hi Laraine just a thought regarding your sons IBS symptoms have you tried a probiotic called symprove I was advised by one of the guys on here to try it and so far it seems to be working its in liquid form so gets to where it needs to be faster than pill it's worth a try

  • Thanks for this, anything is worth a try. Thanks again.

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