confused

[Zombi4real]

I have this loud noise in my head from my acoustic neuroma and sometimes, s as Jen people are talking , I can’t hear them, especially if there’s background noise and I get confused and agitated . I can’t say anything, because they are strangers and can’t see that I’m struggling.

[Maddie_TBTC Administrator]

Hi Zombi4real,

Thank you for reaching out to the group. I am sorry to hear about your diagnosis and that you struggling to hear people, it sounds very distressing for you. Please know that we are here to support you. May I ask, have you spoken to your medical team about these loud noises in your head? They may be able to help you find ways to help reduce these symptoms and help you cope. I also just wanted to mention that we have a group specifically for those affected by acoustic neuromas on HealthUnlocked too which you might like to join? It may be helpful to reach out on there and talk to others who have an understanding of what you’re going through healthunlocked.com/acoustic...

We offer a wide range of services for anyone whose life has been affected by a brain tumour, including free counselling, online support groups, money and benefits advice and a lot of information resources on our website: thebraintumourcharity.org/l...

Please do not hesitate to get in contact with us anytime you have any questions or just want someone to talk to. You can email us [e-mail] or call our Support and Information line on 0808 800 0004 (Mon-Fri, 9am-5pm). Warm wishes, The Brain Tumour Charity Support Team

[Zombi4real in reply to Maddie_TBTC]

Thank you so much for all of that info and links. All my surgeon said , was that a hearing aid might help, but sadly it doesn’t help.