Experiences with

Xyrem

We're considering whether something like sodium oxybate (Xyrem) could help reset my circadian rhythm. Last night, I had a diphenhydramine tablet, a high dose of magnesium glycinate, apigenin, glycine, and a small amount of melatonin, but I still couldn't sleep.

Tried Xyrem (made PLMs worse) and it terrified me. Neupro Patch (did not work). Each night is misery trying to fall asleep and stay asleep. Wake up multiple times and then want to binge eat any type of sugar I can get my hands on. I so tired on being tired and not sure what direction to go next.

I was then ultimately prescribed Xyrem for sleep AND I stayed on the Clonazepam. I did that for close to 4 years anyhow. Now I have moved - fast forward and the new physician is not willing to do the same for fear of respiratory failure.

There is one drug my doctor is pursuing for me called Xyrem which promotes deep sleep...but it is highly controlled and most likely won't be passed by insurance. This is destroying my life...i can barely function...I guess my question is...Has anyone experienced poor sleep to this degree?

I am also having a asleep study and will be placed on a medication called Xyrem. I fear that the medication will not work and that my level of care is not geared toward what i need. Does anyone have any advice on what level of care i should aim for. Maybe a case study at the point.