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Venetoclax
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Dimly Lit Awakenings
Starting
Venetoclax
on Valentine’s Day. Feeling great, better than I have in years, as I’ve posted elsewhere. Awake in bad last night (thanks, IV steroids!), I dimly reflected back a bit on my CLL journey. 1st four years or so, I was oblivious I was on a CLL journey at all (lol).
Starting
Venetoclax
on Valentine’s Day. Feeling great, better than I have in years, as I’ve posted elsewhere. Awake in bad last night (thanks, IV steroids!), I dimly reflected back a bit on my CLL journey. 1st four years or so, I was oblivious I was on a CLL journey at all (lol).
DRM18
in
CLL Support
4 years ago
Started Treatment (O + V)
Don't start
Venetoclax
until the 22nd day of treatment. (Today is day 9.) Miraculous already: all of my visible nodes are now nearly if not totally invisible. In only a week! Welcome back, pencil neck!
Don't start
Venetoclax
until the 22nd day of treatment. (Today is day 9.) Miraculous already: all of my visible nodes are now nearly if not totally invisible. In only a week! Welcome back, pencil neck!
DRM18
in
CLL Support
4 years ago
Real-World Sequence Patterns of Novel Agents in CLL
Venetoclax
was used in at least 1 line of therapy in 101 patients (28.5%), and they were most likely to receive this drug in the 3rd-line setting.
Venetoclax
was used in at least 1 line of therapy in 101 patients (28.5%), and they were most likely to receive this drug in the 3rd-line setting.
Jm954
Administrator
in
CLL Support
4 years ago
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CLL Updates From the 2019 ASH Annual Meeting
Combination ibrutinib plus
venetoclax
: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Combination ibrutinib plus
venetoclax
: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Jm954
Administrator
in
CLL Support
4 years ago
Time for treatment decision
There is a 50/50 split where 320 patients get obinutuzumag (gazyva) and Ibrutinib (imbruvica) and the other 320 patients get these two drugs along with
venetoclax
. I’m so confused on what to do. If I choose to not partake in the study I will get obinutuzurnab and Ibrutinib.
There is a 50/50 split where 320 patients get obinutuzumag (gazyva) and Ibrutinib (imbruvica) and the other 320 patients get these two drugs along with
venetoclax
. I’m so confused on what to do. If I choose to not partake in the study I will get obinutuzurnab and Ibrutinib.
harley2018
in
CLL Support
4 years ago
Just got MRD negative 🎉
Excited to say I’m MRD negative 🎉🎉 🎉 I have been in clinical trial for relapsed CLL for 14 months and am on Ibrutinib and
Venetoclax
.
Excited to say I’m MRD negative 🎉🎉 🎉 I have been in clinical trial for relapsed CLL for 14 months and am on Ibrutinib and
Venetoclax
.
Catnap7
in
CLL Support
4 years ago
I was diagnosed 8 years ago today
I will be following closely the
Venetoclax
results people have because that will be where I will end up, but I think we will attempt to watch and wait for a few months and take a dose of IVIG on a monthly basis, as one of my problems is ITP.
I will be following closely the
Venetoclax
results people have because that will be where I will end up, but I think we will attempt to watch and wait for a few months and take a dose of IVIG on a monthly basis, as one of my problems is ITP.
KevinCLLITP
in
CLL Support
4 years ago
Bloodshot eyes with Ibrutinib and venetoclax.
My husband has been on Ibrutinib and
venetoclax
for several months and he is now starting to have problems with bloodshot eyes. Has anyone else had a problem like this?
My husband has been on Ibrutinib and
venetoclax
for several months and he is now starting to have problems with bloodshot eyes. Has anyone else had a problem like this?
Pinhead1
in
CLL Support
4 years ago
Richter Transformation Testimonials. Survivors
Dr V was going to consult with Dr Awan and added
venetoclax
to my R-EPOCH. I have successfully had 3 more rounds with
venetoclax
for 10 days each time added. The 3rd round I had neutropenia fever and returned to hospital with no infections, but received antibiotics for 2 days.
Dr V was going to consult with Dr Awan and added
venetoclax
to my R-EPOCH. I have successfully had 3 more rounds with
venetoclax
for 10 days each time added. The 3rd round I had neutropenia fever and returned to hospital with no infections, but received antibiotics for 2 days.
Priss69
in
CLL Support
4 years ago
Survey for CLL patients having taken Venetoclax or Acalabrutinib
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey:
Venetoclax
(Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey:
Venetoclax
(Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
cllpag_canada
in
CLL Support
4 years ago
Middle of Venetoclax and Gazyva combo MDA
Now on
Venetoclax
only. Just working hard these days. Labs still excellent. Just anemia. Keep having faith and hope! Loving almost normal lives! LoveCures John and Steffie
Now on
Venetoclax
only. Just working hard these days. Labs still excellent. Just anemia. Keep having faith and hope! Loving almost normal lives! LoveCures John and Steffie
LovecuresCLL
in
CLL Support
4 years ago
classes of drugs for cll
BCI-2-
venetoclax
4. ROR1- circumuzamab 5. monoclonal anti- Gazyva
BCI-2-
venetoclax
4. ROR1- circumuzamab 5. monoclonal anti- Gazyva
Hidden
in
CLL Support
4 years ago
Curious lumps
Through this website I learned that the imbruvica
venetoclax
was not FDA approved he will go to bat for me and argue my case to get approval. Even if they do not approve the drug combination, the
venetoclax
was no where near as expensive as the imbruvica.
Through this website I learned that the imbruvica
venetoclax
was not FDA approved he will go to bat for me and argue my case to get approval. Even if they do not approve the drug combination, the
venetoclax
was no where near as expensive as the imbruvica.
Italianpainter
in
CLL Support
4 years ago
New Clinical Trail EA9161 with great results!
“A Randomized Phase III Study of the addition of
Venetoclax
to Ibrutinib and Obinutuzumab versus Ibrutinib and Obinutuzumab in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL)”. I had a new CT scan and bone marrow biopsy the week before I started treatment.
“A Randomized Phase III Study of the addition of
Venetoclax
to Ibrutinib and Obinutuzumab versus Ibrutinib and Obinutuzumab in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL)”. I had a new CT scan and bone marrow biopsy the week before I started treatment.
Riven8
in
CLL Support
4 years ago
Debulking Eliminates Need for Hospitalization Prior to Initiating Venetoclax Therapy in untreated CLL pts
In the recent CLL14 study, 64% and 22% of
venetoclax
-treated patients were medium and high risk for TLS, respectively.
In the recent CLL14 study, 64% and 22% of
venetoclax
-treated patients were medium and high risk for TLS, respectively.
Jm954
Administrator
in
CLL Support
4 years ago
SKIP VENETOCLAX, GO TO ACALABRUTINIB
My oncologist/hematologist indicated the treatment would be
Venetoclax
. I see the specialist on a consultation basis. Anyone face this situation?
My oncologist/hematologist indicated the treatment would be
Venetoclax
. I see the specialist on a consultation basis. Anyone face this situation?
cll2013
in
CLL Support
4 years ago
ASH 2019: U-MRD by subgroup (ibrutinib+venetoclax) CAPTIVATE trial
This is how we achieve personalized, precision medicine. 73% of patients achieved U-MRD4 in BM after 12 cycles of ibrutinib +
venetoclax
. This is shown as the dashed vertical line. Interestingly, the lowest U-MRD4 is the IGHV mutated subgroup. Hmm.
This is how we achieve personalized, precision medicine. 73% of patients achieved U-MRD4 in BM after 12 cycles of ibrutinib +
venetoclax
. This is shown as the dashed vertical line. Interestingly, the lowest U-MRD4 is the IGHV mutated subgroup. Hmm.
avzuclav
in
CLL Support
4 years ago
CD3xCD19 Dart Treatment Is Efficient in Venetoclax Resistant CLL and Reverses T Cell Dysfunction
and will be effective against
venetoclax
resistant CLL.
and will be effective against
venetoclax
resistant CLL.
Jm954
Administrator
in
CLL Support
4 years ago
Critically low white cell count
He's been anemic for months (very low platelets, HGB and red cells) while transitioning to
Venetoclax
/Gazyva combo since after Christmas. After 4 units of blood this weekend his HGB finally raised to 9 from 5 but white cell count is .5 when yesterday it was .9.
He's been anemic for months (very low platelets, HGB and red cells) while transitioning to
Venetoclax
/Gazyva combo since after Christmas. After 4 units of blood this weekend his HGB finally raised to 9 from 5 but white cell count is .5 when yesterday it was .9.
Anavadya
in
CLL Support
4 years ago
venclexta and Imbruvica both owned by same company
Just for thought- i copied a paragraph from an article i read The study was supported by AbbVie, the manufacturer of
venetoclax
. AbbVie also owns Pharmacyclics, the manufacturer of ibrutinib . Several authors report relationships with industry, including AbbVie, as detailed in the article.
Just for thought- i copied a paragraph from an article i read The study was supported by AbbVie, the manufacturer of
venetoclax
. AbbVie also owns Pharmacyclics, the manufacturer of ibrutinib . Several authors report relationships with industry, including AbbVie, as detailed in the article.
Hidden
in
CLL Support
4 years ago
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