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Venclexta
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STARTING 4th CYCLE OF NX-2127 TRIAL
Prior treatment update; 2010 FCR, 2015 Ibrutinib, 2018
Venclexta
, 2020 Loxo-305, 2021 NX-2127. I started off well on these CLL drugs, but every time the wheels always come off. Update; I was allowed to recieve a shot of neulasta and one of neuprogen to get me going again.
Prior treatment update; 2010 FCR, 2015 Ibrutinib, 2018
Venclexta
, 2020 Loxo-305, 2021 NX-2127. I started off well on these CLL drugs, but every time the wheels always come off. Update; I was allowed to recieve a shot of neulasta and one of neuprogen to get me going again.
steve5441
in
CLL Support
2 years ago
Navigating the Hidden Costs of Clinical Trials on Patient Power
After enrollment, he was given a three-drug combination treatment of obinutuzumab (Gazyva), venetoclax (
Venclexta
), and acalabrutinib (Calquence).
After enrollment, he was given a three-drug combination treatment of obinutuzumab (Gazyva), venetoclax (
Venclexta
), and acalabrutinib (Calquence).
lankisterguy
Volunteer
in
CLL Support
2 years ago
CoPay Assistance from LLS (Leukemia & Lymphoma Society) USA
And since 2016, Genentech provided my Venetoclax at no cost when my previous Part D insurance would not cover
Venclexta
"Off Label" - So if you are facing a copay, ask for help actively and don't be shy. - Len
And since 2016, Genentech provided my Venetoclax at no cost when my previous Part D insurance would not cover
Venclexta
"Off Label" - So if you are facing a copay, ask for help actively and don't be shy. - Len
lankisterguy
Volunteer
in
CLL Support
3 years ago
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Severe Neutropenia 2 months after reaching UMRD?
Is it still the latent effects of the
Venclexta
? Also he had the Evusheld MAB on Saturday, could this be a factor? I have done lots of research but find nothing that indicates Evusheld has that side effect. Had GSF today and again tomorrow - what are your thoughts or personal history?
Is it still the latent effects of the
Venclexta
? Also he had the Evusheld MAB on Saturday, could this be a factor? I have done lots of research but find nothing that indicates Evusheld has that side effect. Had GSF today and again tomorrow - what are your thoughts or personal history?
Palmetto
in
CLL Support
3 years ago
V&O Update - After 6 months
This was after only 4 rounds of Obinutuzumab and less than 6 months of
Venclexta
- many of those months not at full dose.
This was after only 4 rounds of Obinutuzumab and less than 6 months of
Venclexta
- many of those months not at full dose.
Palmetto
in
CLL Support
3 years ago
Weight loss with Venclexta
I am taking 600mg of
Venclexta
daily and am loosing weight. Is anyone taking this and how do I gain the weight back.
I am taking 600mg of
Venclexta
daily and am loosing weight. Is anyone taking this and how do I gain the weight back.
brooklyn7672
in
CLL Support
3 years ago
IVIG seems to have shared some antibodies from previous COVID patient
I am also in the US LLS study, and as mono
Venclexta
patient, have been producing some level of antibodies, unlike those on Gazyva+
Venclexta
. Anyway, did my latest LLS antibody study and my vaccine produced antibodie are now >2,500 units per mL.
I am also in the US LLS study, and as mono
Venclexta
patient, have been producing some level of antibodies, unlike those on Gazyva+
Venclexta
. Anyway, did my latest LLS antibody study and my vaccine produced antibodie are now >2,500 units per mL.
E-Lynn
in
CLL Support
3 years ago
Venclexta interacts with many meds, including OTC ones and those for AIHA
also says necessitates a 50%
Venclexta
reduction.
also says necessitates a 50%
Venclexta
reduction.
SofiaDeo
in
CLL Support
3 years ago
Received My Evusheld Injections This Week
As I previously posted, I completed my 12 month Obinutuzumab/
Venclexta
CLL treatment regimen March 1st. Because I tested "No detectable antibodies..." after four Moderna Covid vaccinations, I qualified for the new Evusheld monoclonal antibodies injections.
As I previously posted, I completed my 12 month Obinutuzumab/
Venclexta
CLL treatment regimen March 1st. Because I tested "No detectable antibodies..." after four Moderna Covid vaccinations, I qualified for the new Evusheld monoclonal antibodies injections.
DanBro1
in
CLL Support
2 years ago
After Regeneron Drop In Neutrophils? Did I make a mistake?
Husband had 5 months of Gazyva/
Venclexta
. Had gotten up to 400 mg. of
Venclexta
when neutrophils started dropping too low. Twice had to hold and get GSF. First time resumed
Venclexta
at 200 mg.
Husband had 5 months of Gazyva/
Venclexta
. Had gotten up to 400 mg. of
Venclexta
when neutrophils started dropping too low. Twice had to hold and get GSF. First time resumed
Venclexta
at 200 mg.
PalmettoMiami
in
CLL Support
3 years ago
I Have Just Completed My 12 Month CLL Treatment Plan
I was placed on Obinutuzumab/
Venclexta
therapy for 12 months. My treatment regimen has now ended!! Blood lab work shows most of my blood components are now at the low end of normal range, although my white cell count is a bit too low.
I was placed on Obinutuzumab/
Venclexta
therapy for 12 months. My treatment regimen has now ended!! Blood lab work shows most of my blood components are now at the low end of normal range, although my white cell count is a bit too low.
DanBro1
in
CLL Support
2 years ago
Taking a break from treatment?
He was off of
Venclexta
for 2 weeks and had to have rounds of G-CSF injections and after 2 weeks they wanted him to go back on
Venclexta
at 200 mg. and not continue with the last 2 Gazyva infusions.
He was off of
Venclexta
for 2 weeks and had to have rounds of G-CSF injections and after 2 weeks they wanted him to go back on
Venclexta
at 200 mg. and not continue with the last 2 Gazyva infusions.
Palmetto
in
CLL Support
3 years ago
Question about Venclexta
Hello, my Mum is starting tomorrow isA
venclexta
and wanted to ask did anyone take it home ? Or it’s necessary to be hospitalized? And is everyone getting bad side effects? Im ver worried. Thanks in advance 🙏
Hello, my Mum is starting tomorrow isA
venclexta
and wanted to ask did anyone take it home ? Or it’s necessary to be hospitalized? And is everyone getting bad side effects? Im ver worried. Thanks in advance 🙏
Ndsa
in
CLL Support
3 years ago
Update O and V No More
Venclexta
was held and GSF shots given. Now decision is no more Obinutuzumab. he had 4 and if counts stable Friday will be on mono therapy with
Venclexta
200 mg.
Venclexta
was held and GSF shots given. Now decision is no more Obinutuzumab. he had 4 and if counts stable Friday will be on mono therapy with
Venclexta
200 mg.
Palmetto
in
CLL Support
3 years ago
Hubby positive for COVID. Will get Regeneron today.
My husband has CLL, is just off
Venclexta
which he took for 3 years. Currently in remission. He has had 2 Pfizer vaccines AND the booster. So far he is in pretty good shape (oxygen levels are strong, not short of breath etc.).
My husband has CLL, is just off
Venclexta
which he took for 3 years. Currently in remission. He has had 2 Pfizer vaccines AND the booster. So far he is in pretty good shape (oxygen levels are strong, not short of breath etc.).
Dice70
in
CLL Support
3 years ago
Rash after Venclexta
Any others on
Venclexta
develop a rash after starting on full dose regime?
Any others on
Venclexta
develop a rash after starting on full dose regime?
40fo
in
CLL Support
3 years ago
Update on Venclexta/Gazyva month 5
I had already decided to ask that he have no more Gazyva infusions and continue on only
Venclexta
and our oncologist is in agreement. We are now holding the
Venclexta
for a while, will have Neupogen the next 3 days, and then reevaluate on Monday.
I had already decided to ask that he have no more Gazyva infusions and continue on only
Venclexta
and our oncologist is in agreement. We are now holding the
Venclexta
for a while, will have Neupogen the next 3 days, and then reevaluate on Monday.
Palmetto
in
CLL Support
3 years ago
I have CLL and am taking venclexta. Am I eligible for a Covid-19 booster shot?
bob&terry62
bob&terry62
BobTerry62
in
CLL Support
3 years ago
Second vaccination following Venclexta
I am fully vaccinated and will conclude my two-year program on
Venclexta
in a few weeks. I have not had the antibody test, but suspect I have a limited number acquired, given my CLL history.
I am fully vaccinated and will conclude my two-year program on
Venclexta
in a few weeks. I have not had the antibody test, but suspect I have a limited number acquired, given my CLL history.
Survivor1951
in
CLL Support
3 years ago
Venclexta: could it be why my platelets just crashed?
I've been on
Venclexta
4.5 years and while my platelets are low (98-120) suddenly they are 34. I'm waiting for a lab re-do, but wondering if anyone else has ended up with a rapid drop (last labs 3+ months ago had platelets at 110. Anyone experienced this?
I've been on
Venclexta
4.5 years and while my platelets are low (98-120) suddenly they are 34. I'm waiting for a lab re-do, but wondering if anyone else has ended up with a rapid drop (last labs 3+ months ago had platelets at 110. Anyone experienced this?
E-Lynn
in
CLL Support
3 years ago
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