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Urticarial vasculitis
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Update and Further Vasculitis (WG) advice would be welcome
Hi, Since my earlier post, I have now been diagnosed with Wegeners Granulomatosis (GPA). I am on 25mg of prednisolone a day and, due to having scleritis, I am taking four drops of Acular a day and a further two drops of dorzolamide to relieve growing eye pressure. At the moment, I have few, if any,
Hi, Since my earlier post, I have now been diagnosed with Wegeners Granulomatosis (GPA). I am on 25mg of prednisolone a day and, due to having scleritis, I am taking four drops of Acular a day and a further two drops of dorzolamide to relieve growing eye pressure. At the moment, I have few, if any,
chsskg
in
Vasculitis UK
10 years ago
positive c-anca with pr3
I have positive c-anca and pr3 test but i have no symptoms of any vasculitis disorder except dry eyes. What could be the reason of this positive test except vasculitis disorder such as Wegener's granulomatosis?
I have positive c-anca and pr3 test but i have no symptoms of any vasculitis disorder except dry eyes. What could be the reason of this positive test except vasculitis disorder such as Wegener's granulomatosis?
sas123
in
Vasculitis UK
10 years ago
New to this. can anybody help?
Hey guys. so my dads been diagnosed with Vasculitis. it sucks. i hate it. but whats worse is the not knowing. and the amount of people who say ''what's that?'' so my question is, is there anybody on here who is finding it difficult to cope. someone maybe who i can talk to and understand better and
Hey guys. so my dads been diagnosed with Vasculitis. it sucks. i hate it. but whats worse is the not knowing. and the amount of people who say ''what's that?'' so my question is, is there anybody on here who is finding it difficult to cope. someone maybe who i can talk to and understand better and
LADavies
in
Vasculitis UK
10 years ago
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Hello all
I was diagnosed with ANCA Vasculitis and sensory motor neuropathy in February this year. I have had chemo therapy but had a reaction to cyclophosphomide so went onto mycophenolate. The vasculitis has damaged my kidneys and the nervous system in my right foot and neck. Fortunately no other organs were
I was diagnosed with ANCA Vasculitis and sensory motor neuropathy in February this year. I have had chemo therapy but had a reaction to cyclophosphomide so went onto mycophenolate. The vasculitis has damaged my kidneys and the nervous system in my right foot and neck. Fortunately no other organs were
Hidden
in
Vasculitis UK
10 years ago
Saturday 25th October Samantha will help raise awareness of vasculitis and for Vasculitis UK when she hosts a coffee morning.
If you live in the Lincolnshire area you may want to go along and support Samantha. Family and Friends welcome. In July this year Samantha was diagnosed with Lupus and Vasculitis. Samantha and her family relied on information supplied by Vasculitis UK and other charities to help them understand the
If you live in the Lincolnshire area you may want to go along and support Samantha. Family and Friends welcome. In July this year Samantha was diagnosed with Lupus and Vasculitis. Samantha and her family relied on information supplied by Vasculitis UK and other charities to help them understand the
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Polyarteritis Nodosa
Hi. I was diagnosed with vasculitis a month ago (after many years) and I've just received a letter from the skin biopsy saying it is polyarteritis nodosa. The condition only affects my skin and peripheral nerves (at the moment). I'm Anca negative and bloods generally look normal. Can anyone advise how
Hi. I was diagnosed with vasculitis a month ago (after many years) and I've just received a letter from the skin biopsy saying it is polyarteritis nodosa. The condition only affects my skin and peripheral nerves (at the moment). I'm Anca negative and bloods generally look normal. Can anyone advise how
Bindy68
in
Vasculitis UK
10 years ago
ANCA negative lupus
I have had an abnormal lupus anticoag Had repeat last week. All other results neg ( ANA, ANCA, DsDNA etc etc) Anyone any info on ANCA negative lupus.
I have had an abnormal lupus anticoag Had repeat last week. All other results neg ( ANA, ANCA, DsDNA etc etc) Anyone any info on ANCA negative lupus.
Howsaboutit
in
LUPUS UK
10 years ago
Soul Night with a difference for Vasculitis UK
David was diagnosed with Wegeners Granulomatosis (GPA) just over 5 years ago and wants to raise awareness of Vasculitis and fundraise for Vascsulitis UK, so he has organised a Soul Night for the 26th September 2014 starting at 8pm finishing at 1am, Stoke on Trent, if anyone would like to go along and
David was diagnosed with Wegeners Granulomatosis (GPA) just over 5 years ago and wants to raise awareness of Vasculitis and fundraise for Vascsulitis UK, so he has organised a Soul Night for the 26th September 2014 starting at 8pm finishing at 1am, Stoke on Trent, if anyone would like to go along and
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Rituximab....
Finished my 2nd dose of rituximab infusion yesterday. Just got to wait a couple of months before treatment takes affect. Still got these ulcers feet, trying another dressing named prodem........ Time to get up!
Finished my 2nd dose of rituximab infusion yesterday. Just got to wait a couple of months before treatment takes affect. Still got these ulcers feet, trying another dressing named prodem........ Time to get up!
dzagotskillz
in
LUPUS UK
10 years ago
Head Pain
I forgot to say I have
urticarial
vasculitis
, I am tapering my pred now down to 15mg from 40mg. My rheumatologist also thinks I may have fibromyalgia. I take naproxen am and pm already. I have also been getting jaw pain and numbness when I eat and ear ache every night.
I forgot to say I have
urticarial
vasculitis
, I am tapering my pred now down to 15mg from 40mg. My rheumatologist also thinks I may have fibromyalgia. I take naproxen am and pm already. I have also been getting jaw pain and numbness when I eat and ear ache every night.
vickylou01
in
Vasculitis UK
10 years ago
vasculitis
Hi, i was wondering if anyone else suffers from vasculitis? I had problems with my left hand back in jan where fingertips would go hot, swell n go deep red nearly purple. I went to doc's in may n they did blood tests for vitamin d which i had to take supplements for. Since then my right hand has started
Hi, i was wondering if anyone else suffers from vasculitis? I had problems with my left hand back in jan where fingertips would go hot, swell n go deep red nearly purple. I went to doc's in may n they did blood tests for vitamin d which i had to take supplements for. Since then my right hand has started
ush1401
in
LUPUS UK
10 years ago
Worried
Hi. I was discharged last night following my first cyclophosphamide treatment on Wednesday. So this has been my first day back at home today. The doctor who discharged me from the hospital has just called to say that my bloods on discharge were borderline abnormal in terms of white count and to ask
Hi. I was discharged last night following my first cyclophosphamide treatment on Wednesday. So this has been my first day back at home today. The doctor who discharged me from the hospital has just called to say that my bloods on discharge were borderline abnormal in terms of white count and to ask
Bindy68
in
Vasculitis UK
10 years ago
Paul skydives for Jessica and Vasculitis UK
Paul Hunter will bravely take to the skies on 3rd September and skydives not only for Vasculitis UK but for Jessica Jessica is 13 years old and was diagnosed with Central Nervous System Vasculitis 3 years ago. She is thought to be the youngest person in the UK with CNS and has been very ill. During
Paul Hunter will bravely take to the skies on 3rd September and skydives not only for Vasculitis UK but for Jessica Jessica is 13 years old and was diagnosed with Central Nervous System Vasculitis 3 years ago. She is thought to be the youngest person in the UK with CNS and has been very ill. During
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Starting a discussion on Vasculitis & Kidney Disease
I have had 'uncategorised' ANCA vasculitis, for about seventeen years now. A lot of fellow members do 'know' me I am aware. I was just wondering if, my experiences, both of vasculitis treatment, and kidney transplant, can be of use to anyone. Perhaps an exchange of views/experiences might be helpful
I have had 'uncategorised' ANCA vasculitis, for about seventeen years now. A lot of fellow members do 'know' me I am aware. I was just wondering if, my experiences, both of vasculitis treatment, and kidney transplant, can be of use to anyone. Perhaps an exchange of views/experiences might be helpful
AndrewT
in
Vasculitis UK
10 years ago
Rituximab Advice
I have GPA and started Rituximab just under 12 weeks ago. My inflammatory markers are normal and ANCA result now negative, pred down to 15mg daily. Despite all this I still have sinus symptoms, aches and pains and feel generally unwell all of the time. I am keen to know if others have experienced
I have GPA and started Rituximab just under 12 weeks ago. My inflammatory markers are normal and ANCA result now negative, pred down to 15mg daily. Despite all this I still have sinus symptoms, aches and pains and feel generally unwell all of the time. I am keen to know if others have experienced
Maudy1
in
Vasculitis UK
10 years ago
Harrogate Chronic Pain and Chronic Fatigue Support Group
This may be of some support if you have Vasculitis and live in North Yorkshire http://www.healthwatchnorthyorkshire.co.uk/events/harrogate-chronic-pain-and-chronic-fatigue-support-group
This may be of some support if you have Vasculitis and live in North Yorkshire http://www.healthwatchnorthyorkshire.co.uk/events/harrogate-chronic-pain-and-chronic-fatigue-support-group
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Symptoms of peripheral vasculitis
I have pins and needles in my lower legs and feet, and the skin looks very blue. I also get what seems like electric shock feelings in my legs and feet, and they sometimes feel numb. I also have GCA which was diagnosed 15 years ago at the age of 54 and been on Pred. ever since, with frequent
I have pins and needles in my lower legs and feet, and the skin looks very blue. I also get what seems like electric shock feelings in my legs and feet, and they sometimes feel numb. I also have GCA which was diagnosed 15 years ago at the age of 54 and been on Pred. ever since, with frequent
bowler
in
Vasculitis UK
10 years ago
Muscle pain
I have
urticarial
vasculitis
and am getting increasing what feels like muscle pain. I am in pain walking as I am getting bilateral calf pain, does anyone else get this? I am taking 40mg Prednisolone and Naproxen amongst others.
I have
urticarial
vasculitis
and am getting increasing what feels like muscle pain. I am in pain walking as I am getting bilateral calf pain, does anyone else get this? I am taking 40mg Prednisolone and Naproxen amongst others.
vickylou01
in
Vasculitis UK
10 years ago
Low red blood cell counts
In all the blood tests I have had because of Vasculitis I have noticed that my Haemaglobin and red blood cell counts are lower than the normal range expected. The question is have others who have Vasculitis also experience such low counts in their blood tests? Also posted on Facebook-Vasculitis-UK.
In all the blood tests I have had because of Vasculitis I have noticed that my Haemaglobin and red blood cell counts are lower than the normal range expected. The question is have others who have Vasculitis also experience such low counts in their blood tests? Also posted on Facebook-Vasculitis-UK.
Albasain
in
Vasculitis UK
10 years ago
How long for Rituximab to work for Wegeners?
I had my 1st Rituximab infusion 4 weeks ago and 2nd one 2 weeks ago. I have yet to feel any benefit and in fact my symptoms have worsened as my steroids are quite low and have phased out Azathiaprine. I just those that have taken Rixuximab how long it took to work?
I had my 1st Rituximab infusion 4 weeks ago and 2nd one 2 weeks ago. I have yet to feel any benefit and in fact my symptoms have worsened as my steroids are quite low and have phased out Azathiaprine. I just those that have taken Rixuximab how long it took to work?
Maudy1
in
Vasculitis UK
10 years ago
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