Search
Search
About
Log in
Join
Experiences with
Urticarial vasculitis
Posts
Communities
762 public posts
Filter results
Need advice on the disease
Hello it's my 3rd month I'm on immunosuppression drugs ,,I have got red colour marks in stomach n legs ,,is it due to drugs or due to the disease which m having ,,n will these marks LL remain forever m having diffuse avelour heammorage it's a kind of vasculitis the doctor said I have got plasma exchange
Hello it's my 3rd month I'm on immunosuppression drugs ,,I have got red colour marks in stomach n legs ,,is it due to drugs or due to the disease which m having ,,n will these marks LL remain forever m having diffuse avelour heammorage it's a kind of vasculitis the doctor said I have got plasma exchange
Dineshbothra123
in
Vasculitis UK
6 years ago
I'm New Here
I was diagnosed with GPA Vasculitis in May 2017 after suffering from various symptoms for 2 years previously. Had 6 treatments of cyclophosphamide and am now on 125mg daily of Azathioprine and am doing ok. I seem to be suffering from joint pain and what also feels like pain in my muscles in the tops
I was diagnosed with GPA Vasculitis in May 2017 after suffering from various symptoms for 2 years previously. Had 6 treatments of cyclophosphamide and am now on 125mg daily of Azathioprine and am doing ok. I seem to be suffering from joint pain and what also feels like pain in my muscles in the tops
NikkiFlack
in
Vasculitis UK
6 years ago
New here and have COPD, Asthma and Urticarial Vasculitis.
Recently diagnosed with
urticarial
vasculitis
at skin clinic who have now prescribed me with DAPSONE, even though I told her of my lung and heart conditions, yet she thinks it fine to take Dapsone. Really?
Recently diagnosed with
urticarial
vasculitis
at skin clinic who have now prescribed me with DAPSONE, even though I told her of my lung and heart conditions, yet she thinks it fine to take Dapsone. Really?
Boudica1
in
Lung Conditions Community Forum
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Can Antidepressants Cause Vasculitis?
I am new here and trying to find out if my
Vasculitis
is drug induced. I was recently diagnosed with
Urticarial
Vasculitis
. I have been using Citalopram to treat my depression for the past 15 years and wondering if this could be the cause of my Vasculitis?
I am new here and trying to find out if my
Vasculitis
is drug induced. I was recently diagnosed with
Urticarial
Vasculitis
. I have been using Citalopram to treat my depression for the past 15 years and wondering if this could be the cause of my Vasculitis?
WinJ3
in
Vasculitis UK
6 years ago
Relapsing polychondritis
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
trebar
in
Vasculitis UK
6 years ago
Rashes and Vasculitis
But now I've got a whole heck of a lot to learn about
urticarial
vasculitis
, possibly small cell immune dependent vasculitis? How many of us could be doctors by now....?! Thanks for reading. : ) Panda x
But now I've got a whole heck of a lot to learn about
urticarial
vasculitis
, possibly small cell immune dependent vasculitis? How many of us could be doctors by now....?! Thanks for reading. : ) Panda x
panda2
in
LUPUS UK
6 years ago
vasculitis dilate or contract
I have vasculitis in my lungs i have bled into them needing transfusions one site is telling me my blood vessels dilate and i bleed into my lungs the others tell me my blood vessels get inflamed swell up and stop the flow thats why i cant breath just wondering which is it they swell up contract or dilate
I have vasculitis in my lungs i have bled into them needing transfusions one site is telling me my blood vessels dilate and i bleed into my lungs the others tell me my blood vessels get inflamed swell up and stop the flow thats why i cant breath just wondering which is it they swell up contract or dilate
jackiecambeltown
in
Vasculitis UK
6 years ago
Vasculitis UK AGM and Annual Meeting 29th April 2018
A week today it is the Vasculitis UK AGM and meeting. We have Dr Pani from Addenbrookes Hospital discussing ongoing clinical trials, Prof Peter Rutherford from Vifor Pharma discussing New Treatment Developments for ANCA Vasculitis plus a special guest Jayne Hardman talking about her own personal journey
A week today it is the Vasculitis UK AGM and meeting. We have Dr Pani from Addenbrookes Hospital discussing ongoing clinical trials, Prof Peter Rutherford from Vifor Pharma discussing New Treatment Developments for ANCA Vasculitis plus a special guest Jayne Hardman talking about her own personal journey
John_Mills
Vasculitis UK
in
Vasculitis UK
6 years ago
Addenbrooke’s Vasculitis Clinic
Hi everyone, I was just wondering if anyone has been to the Vasculitis Clinic at Addenbrooke’s Hospital? I’ve been referred by my GP after the advice I got from here (thank you!) after a really bad appointment with a rheumatologist at my local hospital. I’m trying to get as organised as I can as
Hi everyone, I was just wondering if anyone has been to the Vasculitis Clinic at Addenbrooke’s Hospital? I’ve been referred by my GP after the advice I got from here (thank you!) after a really bad appointment with a rheumatologist at my local hospital. I’m trying to get as organised as I can as
Makimon
in
LUPUS UK
6 years ago
My prednisolone issues
Hello...I am new to this group. My leukocytoclastic vasculitis was diagnosed in october 2017.I started predenisolone 55 mg per day and reduced gradually. Now I am having it at the rate of 7.5 mg per day. I was 55kg before starting it and now I'm 72 kg. In addition to this, I got a shocking transformation
Hello...I am new to this group. My leukocytoclastic vasculitis was diagnosed in october 2017.I started predenisolone 55 mg per day and reduced gradually. Now I am having it at the rate of 7.5 mg per day. I was 55kg before starting it and now I'm 72 kg. In addition to this, I got a shocking transformation
shanahamza
in
Vasculitis UK
6 years ago
Anurysim and primary cns vasculitis
Hi I’ve been diagnosed with primary cns vasculitis 8 weeks ago, initially I had tia which resolved within 1 hr then mri showed tumour on left frontal lobe, I also had 3 focal seizures leading up to tumour removal operation 1 week after initial tia. Tumour removed successfully, mri post operation showed
Hi I’ve been diagnosed with primary cns vasculitis 8 weeks ago, initially I had tia which resolved within 1 hr then mri showed tumour on left frontal lobe, I also had 3 focal seizures leading up to tumour removal operation 1 week after initial tia. Tumour removed successfully, mri post operation showed
Vickili
in
Vasculitis UK
6 years ago
HSP is ruining my life!!
Hi I am 27 years old and I got diagnosed with HSP vasculitis in 2015. I had a lot of flare ups after this mainly swelling of the joints in my feet and ankles which resulted in lots of courses of steroids. I am currently in the process of finding an immunosuppressant that I can tolerate as my rheumatologist
Hi I am 27 years old and I got diagnosed with HSP vasculitis in 2015. I had a lot of flare ups after this mainly swelling of the joints in my feet and ankles which resulted in lots of courses of steroids. I am currently in the process of finding an immunosuppressant that I can tolerate as my rheumatologist
JessWorsnip
in
Vasculitis UK
6 years ago
Vasculitis lupus
Does anybody have vasculitis affecting the brain causing neurological stmptoms ie pins and needles and leg cramps
Does anybody have vasculitis affecting the brain causing neurological stmptoms ie pins and needles and leg cramps
kingsnorth
in
LUPUS UK
6 years ago
New and in limbo
Hi, I just been diagnosed with
urticarial
vasculitis
after a biopsy and am now waiting for more blood test results. Feeling as if I'm in limbo at the moment as I'm new to all this.
Hi, I just been diagnosed with
urticarial
vasculitis
after a biopsy and am now waiting for more blood test results. Feeling as if I'm in limbo at the moment as I'm new to all this.
Boudica1
in
Vasculitis UK
6 years ago
How many years have you got vasculitis?
Hello everyone, to get an idea of the outcome of these diseases I would like to know how many years you have been diagnosed with Vasculitis, what kind of vasculitis you have and your considerations about the greatest difficulties and changes in the quality of life. I saw a similar survey in another
Hello everyone, to get an idea of the outcome of these diseases I would like to know how many years you have been diagnosed with Vasculitis, what kind of vasculitis you have and your considerations about the greatest difficulties and changes in the quality of life. I saw a similar survey in another
Wizzi
in
Vasculitis UK
6 years ago
Vasculitis
Hi I just got vasculitis in may 2017 initially I thought it was pneumonia but later on i got admitted doctors told I have avelour heomarroge in which u get bleeding headaches joint paints etc I have a got 7 session plasma exchange for ten days n m now on immunosuppressant drugs ,,is this disease dangerous
Hi I just got vasculitis in may 2017 initially I thought it was pneumonia but later on i got admitted doctors told I have avelour heomarroge in which u get bleeding headaches joint paints etc I have a got 7 session plasma exchange for ten days n m now on immunosuppressant drugs ,,is this disease dangerous
Dineshbothra123
in
Vasculitis UK
6 years ago
Anyone had a cochlear implant?
I have vasculitis (Royal Free Hospital refuses to commit to which one, but says ‘maybe Wegner’s’). I am losing my hearing and powerful hearing aids are no longer helping much. I can hear sound but not make much sense of speech in many environments. The Ear Hospital has offered a cochlear implant and
I have vasculitis (Royal Free Hospital refuses to commit to which one, but says ‘maybe Wegner’s’). I am losing my hearing and powerful hearing aids are no longer helping much. I can hear sound but not make much sense of speech in many environments. The Ear Hospital has offered a cochlear implant and
dinahg
in
Vasculitis UK
6 years ago
Rituximab
Hi all i was diagnosed with ANCA Vasculitis which left me with Stage 3/4 CKD and following other treatments and medication i have been given rituximab 3 times now over 18 months and due another batch in June this year.I am 67 and recentley had to have a Tumor removed from my bladder this week which was
Hi all i was diagnosed with ANCA Vasculitis which left me with Stage 3/4 CKD and following other treatments and medication i have been given rituximab 3 times now over 18 months and due another batch in June this year.I am 67 and recentley had to have a Tumor removed from my bladder this week which was
Keithtim10
in
Vasculitis UK
6 years ago
Oppressive consultant
I was diagnosed with cerebral vasculitis 2007 after two years getting progressively more poorly. Although my consultant at the time said there was a 5 percent chance it may be ms but lumber puncture did not diagnose ms . This week had appointment at stoke hospital with new neurologist as the professor
I was diagnosed with cerebral vasculitis 2007 after two years getting progressively more poorly. Although my consultant at the time said there was a 5 percent chance it may be ms but lumber puncture did not diagnose ms . This week had appointment at stoke hospital with new neurologist as the professor
blackgolf
in
Vasculitis UK
6 years ago
Interesting abstract!
Came across this abstract into CT/PET and diagnosis of large vessel Vasculitis, it also looks at how useful it is to predict relapse. Unfortunately can’t seem to access the entire article as would have liked to know what it said regarding Prednisolone and whether it masked CT/ PET findings http://onlinelibrary.wiley.com
Came across this abstract into CT/PET and diagnosis of large vessel Vasculitis, it also looks at how useful it is to predict relapse. Unfortunately can’t seem to access the entire article as would have liked to know what it said regarding Prednisolone and whether it masked CT/ PET findings http://onlinelibrary.wiley.com
Hidden
in
Vasculitis UK
6 years ago
1
...
11
12
13
...
39
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Vasculitis UK
638 results
LUPUS UK
87 results
Behçet's UK
21 results
View top 10 communities
Sort by
Most Relevant
Newest