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Urso
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Just wondering how long after starting steriods did your ALT begin to drop?
I've been taking prednisone, cellcept and
urso
(I have AIH/PBC Overlap) for two months and my ALT is rising. Is this typical or is the treatment not working?
I've been taking prednisone, cellcept and
urso
(I have AIH/PBC Overlap) for two months and my ALT is rising. Is this typical or is the treatment not working?
KarenRL
in
British Liver Trust
12 years ago
Hashimotos/AIH/PBC...how many more can one have.
I did have some tests done, and there are so many symptoms like no appetite, cramping joints, fatigue, diarroha..she did a test relating to that as well, she also put my
Urso
up to 1000 mg per day. I was originally perscribed this as one 250mg at night because I get itchy some nights.
I did have some tests done, and there are so many symptoms like no appetite, cramping joints, fatigue, diarroha..she did a test relating to that as well, she also put my
Urso
up to 1000 mg per day. I was originally perscribed this as one 250mg at night because I get itchy some nights.
Alley27
in
PBC Foundation
12 years ago
Does anyone know if URSO would br prescribed to someone with advanced stage PBC at diagnosis?
When my diagnosis was confirmed by liver biopsy I was put on
URSO
straight away. I ask my question because from personal experience I do not want to have to put my mother through having a liver biopsy unecessarily.
When my diagnosis was confirmed by liver biopsy I was put on
URSO
straight away. I ask my question because from personal experience I do not want to have to put my mother through having a liver biopsy unecessarily.
mumofthree
in
PBC Foundation
12 years ago
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advanced stages with cirrhosis any1?
6 months ago I was told I had reached advanced stages with this disease and had cirrhosis. my
urso
dose was doubled and i was told i would need repeat scans every 6 months to monitor progression and look out for any sign of liver cancer. yikes!! and that transplant would now be likely.
6 months ago I was told I had reached advanced stages with this disease and had cirrhosis. my
urso
dose was doubled and i was told i would need repeat scans every 6 months to monitor progression and look out for any sign of liver cancer. yikes!! and that transplant would now be likely.
itchyandscratchy
in
PBC Foundation
12 years ago
Ladies have any of you been pregnant following diagnosis of pbc and if so did your consultant keep you on urso during your pregnancy?
I was pregnant 6yrs ago and was off the
urso
for first 5mths, the first 3mths I felt great but into the 4th month I became quite unwell. I was put back on
urso
and things improved.
I was pregnant 6yrs ago and was off the
urso
for first 5mths, the first 3mths I felt great but into the 4th month I became quite unwell. I was put back on
urso
and things improved.
littlemo
in
PBC Foundation
12 years ago
Just having a moan
URSO
, seem to be the only one on this site who hasn't. I found out today that my Gastro has a sister with PBC, so you would think he would understand wouldn,t you? Sorry to ramble on, just very frustrated and tired.
URSO
, seem to be the only one on this site who hasn't. I found out today that my Gastro has a sister with PBC, so you would think he would understand wouldn,t you? Sorry to ramble on, just very frustrated and tired.
PiPi
in
PBC Foundation
12 years ago
Hi all, do any of you use artificial sweeteners, ie in tea, coffee, diet food?
I went to see my consultant yesterday and he was very pleased with my bloods, he told me in 2010 I was a candidate for the transplant list, i can't remember exactly what my bloods were at the time, sorry, he asked what I had been doing, beside taking
Urso
, i told him i had stopped taking any food with
I went to see my consultant yesterday and he was very pleased with my bloods, he told me in 2010 I was a candidate for the transplant list, i can't remember exactly what my bloods were at the time, sorry, he asked what I had been doing, beside taking
Urso
, i told him i had stopped taking any food with
Hidden
in
PBC Foundation
12 years ago
Does any one know if the LighterLife Diet is suitable for someone with PBC?
I am morbidly obese (BMI 41.2) and have (as others have mentioned) also noticed that my weight has increased since taking
URSO
(2x3 a day). My liver functions were normal when I visited my consultant in April.
I am morbidly obese (BMI 41.2) and have (as others have mentioned) also noticed that my weight has increased since taking
URSO
(2x3 a day). My liver functions were normal when I visited my consultant in April.
mumofthree
in
PBC Foundation
12 years ago
IS MY DR CORRECT FOR PBC
My gastro dr told me that I have 4th stage pbc that was 2years ago but I have no symptons biop of liver was done and now I'm on 500mg 3x a day of
urso
because I gained weight was started on 300mg 4x a day,I'm confused because he makes it like no big deal, should I see another dr.
My gastro dr told me that I have 4th stage pbc that was 2years ago but I have no symptons biop of liver was done and now I'm on 500mg 3x a day of
urso
because I gained weight was started on 300mg 4x a day,I'm confused because he makes it like no big deal, should I see another dr.
BECCAFROMWISCONSIN
in
PBC Foundation
12 years ago
Liver Pain - Due to medications or is condition worsening?
I'm wondering if anyone can tell me if this is likely a sign that my condition is worsening or could it be due to the medications I am now taking (prednisone, cellcept and
urso
). Has anyone else experienced this?
I'm wondering if anyone can tell me if this is likely a sign that my condition is worsening or could it be due to the medications I am now taking (prednisone, cellcept and
urso
). Has anyone else experienced this?
KarenRL
in
PBC Foundation
12 years ago
Bleeding swollen gums
I was also feeling a little sick with
urso
. I stopped taking my evening dose of
urso
for about 2 weeks and my gums cleared up. On monday thought i'd better start taking the evening dose of
urso
again. Low and behold, woke up this morning with a huge lump on my gum.
I was also feeling a little sick with
urso
. I stopped taking my evening dose of
urso
for about 2 weeks and my gums cleared up. On monday thought i'd better start taking the evening dose of
urso
again. Low and behold, woke up this morning with a huge lump on my gum.
wongie
in
PBC Foundation
12 years ago
Anyone ever come off of Urso??
I have been on Ursodiol for 4 1/2y and would dearly love to get off of it. Have seen bits and pieces on here about some of you not taking it. Have any of you ever taken it for more than a year or so and then weaned off?
I have been on Ursodiol for 4 1/2y and would dearly love to get off of it. Have seen bits and pieces on here about some of you not taking it. Have any of you ever taken it for more than a year or so and then weaned off?
Tumbleweed41
in
PBC Foundation
12 years ago
Should I take this Urso?
Doc gave me some
Urso
to take at night, but I always read the information leaflet and it says "Do not take if you have any other liver condition than PBC.
Doc gave me some
Urso
to take at night, but I always read the information leaflet and it says "Do not take if you have any other liver condition than PBC.
Alley27
in
PBC Foundation
12 years ago
Itching and Ursodiol
Dr thinks cause my alka phos is still in the 200s taking more
urso
will help. My hands & wrists are breaking out with little blisters and they itch like crazy. Has anyone had this happen...is it a reaction to more
urso
? I had no itching prior to taking this 3rd pill.
Dr thinks cause my alka phos is still in the 200s taking more
urso
will help. My hands & wrists are breaking out with little blisters and they itch like crazy. Has anyone had this happen...is it a reaction to more
urso
? I had no itching prior to taking this 3rd pill.
general1
in
PBC Foundation
12 years ago
Increased sensitivity to sunlight?
I was diagnosed with PBC last year and have been on
urso
since September. I am also currently taking an antibiotic (erythromycin) for a skin condition. I was enjoying the lovely weather last weekend but being sensible and wearing sunscreen.
I was diagnosed with PBC last year and have been on
urso
since September. I am also currently taking an antibiotic (erythromycin) for a skin condition. I was enjoying the lovely weather last weekend but being sensible and wearing sunscreen.
RockPrincess
in
PBC Foundation
12 years ago
BIOPSY QUESTION
I'm being treated for PBC (
urso
3x's a day)...could I have an overlap. I just want to make sure I should not be being treated for autoimmune hep also. My Hep panels were negative and I was neg for ANA. My ALT & AST numbers are back within normal range but my alka phos is still in the 200's.
I'm being treated for PBC (
urso
3x's a day)...could I have an overlap. I just want to make sure I should not be being treated for autoimmune hep also. My Hep panels were negative and I was neg for ANA. My ALT & AST numbers are back within normal range but my alka phos is still in the 200's.
general1
in
PBC Foundation
12 years ago
Does anyone else out there have difficulty in getting specialists to talk openly about blood results?
Now I have been taken off the steroids and put onto
urso
but still don't understand a THING! It's as if they huddle over the computer and only give out little bits. Of course this could simply be my paranoia.
Now I have been taken off the steroids and put onto
urso
but still don't understand a THING! It's as if they huddle over the computer and only give out little bits. Of course this could simply be my paranoia.
SamT
in
PBC Foundation
12 years ago
Anyone suffer from headaches as a side effect to the Urso????
Judy48
in
PBC Foundation
12 years ago
Anyone take generic URSO? There is a huge price difference from brand name.
pomice
in
PBC Foundation
12 years ago
Hi I'm new to this site BUT NOT the disease. I have been dealing with PBC for 10 years now.Anyone live in Sydney Australia out there?
I also take
Urso
. Prednisone is for a lung disease i cant shake called B.O.O.P, anyone out there have this as a secondary disease?
I also take
Urso
. Prednisone is for a lung disease i cant shake called B.O.O.P, anyone out there have this as a secondary disease?
SNOOZY
in
PBC Foundation
12 years ago
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