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Urso
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What can this be?
For the past 4 years I have had high LFT counts which is controlled by 500mgs of
Urso
x 2 daily. I am 64 years old and tests for AMA and a biopsy, both 3 years ago, were negative. Now have aching pain in the liver area, painful joints, fatigue & itching - what can this be?
For the past 4 years I have had high LFT counts which is controlled by 500mgs of
Urso
x 2 daily. I am 64 years old and tests for AMA and a biopsy, both 3 years ago, were negative. Now have aching pain in the liver area, painful joints, fatigue & itching - what can this be?
KathyFish
in
PBC Foundation
6 years ago
itchy help. PBC diagnose questions- where do we go now
I was prescribed
urso
but quickly found it made me feel sick when I took it and also made my itching worse. I was started on questran to help with the itching and while I was hopeful it worked in the beginning, it didnt me much relief.
I was prescribed
urso
but quickly found it made me feel sick when I took it and also made my itching worse. I was started on questran to help with the itching and while I was hopeful it worked in the beginning, it didnt me much relief.
ead0724
in
PBC Foundation
6 years ago
Fibroscan results
Hi was diagnosed with pbc through blood test October 2017 and now on
Urso
. I had a fibroscan in January and the eresults were 13.9kpa F3 fibrosis. Can any explain this to me please?
Hi was diagnosed with pbc through blood test October 2017 and now on
Urso
. I had a fibroscan in January and the eresults were 13.9kpa F3 fibrosis. Can any explain this to me please?
ETW1
in
PBC Foundation
6 years ago
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Urso wake up call
I've been diagnosed & on
urso
for four years. All doing well bloods coming back with ok levels occasionally itching but not too bad Drs are very pleased with me.
I've been diagnosed & on
urso
for four years. All doing well bloods coming back with ok levels occasionally itching but not too bad Drs are very pleased with me.
teddybear7
in
PBC Foundation
6 years ago
Fatty liver diet
Hi, I was diagnosed with PBC 6 years ago and taking
urso
. Was also told I had a fatty liver. My levels are getting worse despite increasing my
urso
and wondered if following a fatty liver diet would help. Didn’t know one existed till I read someone was on it on this site.
Hi, I was diagnosed with PBC 6 years ago and taking
urso
. Was also told I had a fatty liver. My levels are getting worse despite increasing my
urso
and wondered if following a fatty liver diet would help. Didn’t know one existed till I read someone was on it on this site.
Catherine3883
in
PBC Foundation
6 years ago
Liver not good after stopping Urso
I said before I’ll keep you posted about the result of stopping
Urso
, generally after six weeks without it I felt much better but tested proved otherwise. My liver did like it so looking fo a new doctor to see what else I can take?
I said before I’ll keep you posted about the result of stopping
Urso
, generally after six weeks without it I felt much better but tested proved otherwise. My liver did like it so looking fo a new doctor to see what else I can take?
Evaibrahim60
in
PBC Foundation
6 years ago
newly diagnosed
I was diagnosed with pbc two weeks ago by way of biopsy I have started
URSO
I have been reading that lots of people don't respond to
URSO
and I might be one of them Im am so worried. Im 67
I was diagnosed with pbc two weeks ago by way of biopsy I have started
URSO
I have been reading that lots of people don't respond to
URSO
and I might be one of them Im am so worried. Im 67
kingsnorth
in
PBC Foundation
6 years ago
im scared and dont know what to do
have come back ok blood,scans,ect..i always felt dr made a mistake when he told me my pbc was caused by drinking..so i just went to a liver clinic for a second opinion ..they took there own blood work which came back as normal i dont even have the antibodies in my blood for it they want me to stop the
urso
have come back ok blood,scans,ect..i always felt dr made a mistake when he told me my pbc was caused by drinking..so i just went to a liver clinic for a second opinion ..they took there own blood work which came back as normal i dont even have the antibodies in my blood for it they want me to stop the
urso
Hidden
in
PBC Foundation
6 years ago
Bezafibrate
I already take 1000mg of
Urso
per day. Look forward to your replies - good or bad 😀
I already take 1000mg of
Urso
per day. Look forward to your replies - good or bad 😀
IOW-gal
in
PBC Foundation
6 years ago
Bike extract
Has anyone ever tried a bile extract along with the
Urso
? I was told by someone that they were able to bring their labs to normal and eventually get off
Urso
by using a bile extract. I’m very reluctant to try. Any input would be greatly appreciated.
Has anyone ever tried a bile extract along with the
Urso
? I was told by someone that they were able to bring their labs to normal and eventually get off
Urso
by using a bile extract. I’m very reluctant to try. Any input would be greatly appreciated.
LorraineLouise
in
PBC Foundation
6 years ago
Newby
Hi im Christine 67 and was dianosed with pbc 2 weeks ago by way of biopsy l also have lupus and sjogrens l started
urso
2 weeks ago and got to see my consultant again in June. I must say this diagnosis has totally floored me and im worried for my future.
Hi im Christine 67 and was dianosed with pbc 2 weeks ago by way of biopsy l also have lupus and sjogrens l started
urso
2 weeks ago and got to see my consultant again in June. I must say this diagnosis has totally floored me and im worried for my future.
kingsnorth
in
PBC Foundation
6 years ago
Urso for life?
Hi i've just had a diagnosis of pcb today after high protein levels, im going to take
urso
to bring them back down, once you start taking
urso
is it for life?
Hi i've just had a diagnosis of pcb today after high protein levels, im going to take
urso
to bring them back down, once you start taking
urso
is it for life?
5422
in
PBC Foundation
6 years ago
Meds
2 weeks in with correct dose of
urso
for pbc and steroids for newly diagnosed aih and I feel like a new woman 😄. Muscle pain reduced within 24 hrs from a pain score of 10 to a 2 , for the first time in over 6 months I feel I'm actually doing my job properly at work ( I support autistic adults) .
2 weeks in with correct dose of
urso
for pbc and steroids for newly diagnosed aih and I feel like a new woman 😄. Muscle pain reduced within 24 hrs from a pain score of 10 to a 2 , for the first time in over 6 months I feel I'm actually doing my job properly at work ( I support autistic adults) .
Louisethew
in
PBC Foundation
6 years ago
Azathiropine.
if on immunosuppressant for the AIH should that not in turn stop the immune system attacking the bile ducs and subsequently no longer need to take
urso
?
if on immunosuppressant for the AIH should that not in turn stop the immune system attacking the bile ducs and subsequently no longer need to take
urso
?
Hidden
in
PBC Foundation
6 years ago
Urso and weight gain
I was immediately started on
Urso
. Since being on it, I have gained weight. Has anyone else experienced this? What can you do to help get if off? Thank you
I was immediately started on
Urso
. Since being on it, I have gained weight. Has anyone else experienced this? What can you do to help get if off? Thank you
pjfort
in
PBC Foundation
6 years ago
Alternative approach to PBC
Could it be used as alternative to
Urso
and not cause all the dryness? Love to hear from people that have any experience of trying it.
Could it be used as alternative to
Urso
and not cause all the dryness? Love to hear from people that have any experience of trying it.
M_rose
in
PBC Foundation
6 years ago
Hit a wall
Hello I’ve got pbc in my 3rd year on
urso
I’ve been under a lot of stress last 3 months work full time looking after sick mother whose now gone into nursing home .
Hello I’ve got pbc in my 3rd year on
urso
I’ve been under a lot of stress last 3 months work full time looking after sick mother whose now gone into nursing home .
tessiecat
in
PBC Foundation
6 years ago
Allergies to URSO. Help What can I do?
What other meds similar to
URSO
can I take or natural treatment. I am unsure I can find something that I am not allergic to? Currently, I am on watch as Gastro agrees that I should not take med unless my blood lab changes. All liver readings normal except Ama m2 at 90.
What other meds similar to
URSO
can I take or natural treatment. I am unsure I can find something that I am not allergic to? Currently, I am on watch as Gastro agrees that I should not take med unless my blood lab changes. All liver readings normal except Ama m2 at 90.
Sdone
in
PBC Foundation
6 years ago
My Liver Biopsy
Hi All, I have been diagnosed with PBC and started taking
Urso
300mg 3 times a day. My question is how do I know for sure if it is PBC?
Hi All, I have been diagnosed with PBC and started taking
Urso
300mg 3 times a day. My question is how do I know for sure if it is PBC?
Ellyne
in
PBC Foundation
6 years ago
Biopsy results
Dr has upped
urso
to correct dose for my weight and prescribed steroids and vit d , blood tests needed , dexa scan and fibro scan also needed dr said he will be seeing me often till he's happy with bloods .
Dr has upped
urso
to correct dose for my weight and prescribed steroids and vit d , blood tests needed , dexa scan and fibro scan also needed dr said he will be seeing me often till he's happy with bloods .
Louisethew
in
PBC Foundation
6 years ago
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