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ADT duration for high risk with Cribriform
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Miko710
in
Prostate Cancer Network
4 months ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
8 days ago
Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
8 days ago
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Next NoSilverBullet Zoom webinar on 13th of November: Interview of Dr Wayne Markman, CEO of Symbyx, on "Light therapy for Parkinson's".
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 8.00pm London time on Monday the 13th of November. I will have the pleasure of interviewing Dr Wayne Markman, CEO of Symbyx, on "Light therapy for Parkinson's" Please use the Eventbrite link below to register
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 8.00pm London time on Monday the 13th of November. I will have the pleasure of interviewing Dr Wayne Markman, CEO of Symbyx, on "Light therapy for Parkinson's" Please use the Eventbrite link below to register
Michel0220
in
Cure Parkinson's
9 months ago
A technical question on Radiation
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
Sushupthi
in
Advanced Prostate Cancer
12 days ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
4 months ago
Unusual case
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
npac
in
Advanced Prostate Cancer
15 days ago
Pluvicto damaging salivary glands?
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Kayakbob
in
Advanced Prostate Cancer
4 months ago
Update on Treatment
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
Sushupthi
in
Advanced Prostate Cancer
16 days ago
Rectitis caring
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Karmaji
in
Advanced Prostate Cancer
4 months ago
Efficacy and safety of new‑generation BTKis (primarily acalabrutinib and zanubrutinib) in CLL/SLL: a systematic review and meta‑analysis
The meta-analysis of 20 studies on CLL/SLL patients treated with new-generation BTKis was based on papers selected from [i]"A comprehensive search on PubMed, Embase, Cochrane Library, and ClinicalTrials.gov. up to January 31, 2023".[/i] The full study title is
Efficacy and safety of new‑generation
The meta-analysis of 20 studies on CLL/SLL patients treated with new-generation BTKis was based on papers selected from [i]"A comprehensive search on PubMed, Embase, Cochrane Library, and ClinicalTrials.gov. up to January 31, 2023".[/i] The full study title is
Efficacy and safety of new‑generation
AussieNeil
Partner
in
CLL Support
9 months ago
ADT questions
I received 3 month Eligard shot April 11, pre 28 IMRT, completed May 31. Second 3 month scheduled On July 16. I have some daytime urgency after radiation and pee 3-5 times per night. On 2 tamsulosin. I have had no other symptoms, no hot flashes and no fatigue since radiation. This morning I woke with
I received 3 month Eligard shot April 11, pre 28 IMRT, completed May 31. Second 3 month scheduled On July 16. I have some daytime urgency after radiation and pee 3-5 times per night. On 2 tamsulosin. I have had no other symptoms, no hot flashes and no fatigue since radiation. This morning I woke with
SherpaT
in
Prostate Cancer Network
20 days ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
maley2711
in
Prostate Cancer Network
4 months ago
Asking for my dad!!
Hi all - I am new here. My dad was diagnosed with stage 4 prostate cancer with mets in his bones and lymph nodes in February 2024. He was diagnosed with adenocarcinoma with Gleason 8. He was started on hormone therapy and had bilateral orchiectomy as well. He is in great health apart - mentally and
Hi all - I am new here. My dad was diagnosed with stage 4 prostate cancer with mets in his bones and lymph nodes in February 2024. He was diagnosed with adenocarcinoma with Gleason 8. He was started on hormone therapy and had bilateral orchiectomy as well. He is in great health apart - mentally and
Justgettingitright
in
Advanced Prostate Cancer
4 months ago
HRT Raises Rheumatoid Arthritis Risk …
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine …. I know a lot of US use HRT and thought this article might be of interest. I don’t have the actual magazine its online subscription… sorry. This link might actually get you to this article! https://www.wddty.com
Batty1
in
Thyroid UK
4 months ago
Thyroid UK list of practitioner recommendations please
I've just requested the above list and tbh, I don't know where to start. There's a consultant on there who I've already visited during this 'journey' who basically told me to go away and work on establishing a full dose HRT regime, referred me to a CFS clinic which never transpired and waved away low
I've just requested the above list and tbh, I don't know where to start. There's a consultant on there who I've already visited during this 'journey' who basically told me to go away and work on establishing a full dose HRT regime, referred me to a CFS clinic which never transpired and waved away low
Jamima
in
Thyroid UK
4 months ago
Thyroid question please...
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Hi everyone, I am writing to ask if you can have a sore thyroid without significant enlargement and with 'normal' bloods? I have had 'normal' bloods, it doesn't seem visually enlarged, though I feel like I am being strangled and have audible sounds when I swallow in my ears. When I move my head something
Suffering_sunny
in
Thyroid UK
4 months ago
thyroid results
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadn’t had my thyroid levels tested for nearly 5 years with my GP, it’s as if they’d
Horsemadlindy21
in
Thyroid UK
4 months ago
non hormonal suggestions
hi! I was diagnosed with endo in 2019, avoided any hormonal treatment until last year due to past experiences of the pill. March last yr I went for a private fertility check and they said my endo looked worse and was now also adenomyosis. Suggestion was a mirena coil to stop periods. I went for
hi! I was diagnosed with endo in 2019, avoided any hormonal treatment until last year due to past experiences of the pill. March last yr I went for a private fertility check and they said my endo looked worse and was now also adenomyosis. Suggestion was a mirena coil to stop periods. I went for
Sophiealice_
in
Endometriosis UK
4 months ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
maley2711
in
Advanced Prostate Cancer
4 months ago
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