Search
Search
About
Log in
Join
Experiences with
Tocilizumab
Posts
Communities
692 public posts
Filter results
Actemra FDA approved
For those of us in the US, it is great to note that the FDA has expanded the use of Actemra (
tocilizumab
) to treat giant cell arteritis in adults. This is the first FDA-approved therapy for GCA, granted under a breakthrough therapy designation and priority review.
For those of us in the US, it is great to note that the FDA has expanded the use of Actemra (
tocilizumab
) to treat giant cell arteritis in adults. This is the first FDA-approved therapy for GCA, granted under a breakthrough therapy designation and priority review.
Nruble
in
PMRGCAuk
7 years ago
Extremely painful tendons
Hello All, Questions for those folks on
Tocilizumab
. This is the only drug I take now, 600mg IV every 4 weeks. I have been finding that my achilles feel like they are going to snap. I have brought this to my Rheumy and have just been advised to keep cycling to loosen them up.
Hello All, Questions for those folks on
Tocilizumab
. This is the only drug I take now, 600mg IV every 4 weeks. I have been finding that my achilles feel like they are going to snap. I have brought this to my Rheumy and have just been advised to keep cycling to loosen them up.
dwsurquhart
in
NRAS
7 years ago
Tocilizumab/Actemra - and biosimilars
I thought with all the discussion about using Actemra in GCA people might find this article interesting: https://scrip.pharmamedtechbi.com/-/media/Supporting-Documents/Scrip-Issue-PDFs/2017/scrip_3852.pdf?la=en Actemra's patent is due to expire in the next few years and at least 3 companies are testing
I thought with all the discussion about using Actemra in GCA people might find this article interesting: https://scrip.pharmamedtechbi.com/-/media/Supporting-Documents/Scrip-Issue-PDFs/2017/scrip_3852.pdf?la=en Actemra's patent is due to expire in the next few years and at least 3 companies are testing
PMRpro
Ambassador
in
PMRGCAuk
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Tocilizumab
Tocilizumab
is an approved medication for rheumatoid arthritis and is in trials for use in ovarian cancer cases. Reparaxin is being evaluated as a possible treatment for breast cancer.
Tocilizumab
is an approved medication for rheumatoid arthritis and is in trials for use in ovarian cancer cases. Reparaxin is being evaluated as a possible treatment for breast cancer.
Naimish
in
My Ovacome
7 years ago
Tocilizumab 1 year on
Started infusions of
Tocilizumab
last May. Had been on Rituximab briefly and before that enbrel for a couple of mths. Diagnosed in March 2014 with inflammatory RA or RD to give it it more apt name. For first 3-4mths on
Tocilizumab
my life was transformed and I was near normal.
Started infusions of
Tocilizumab
last May. Had been on Rituximab briefly and before that enbrel for a couple of mths. Diagnosed in March 2014 with inflammatory RA or RD to give it it more apt name. For first 3-4mths on
Tocilizumab
my life was transformed and I was near normal.
Chezis21
in
NRAS
7 years ago
Rituximab without MTX?
I have not been on a biologic since the
Tocilizumab
was stopped as it no longer worked. I have been informed today that the Rituximab cannot be approved if you don't take Methotrexate with it. Unfortunately I cannot tolerate MTX even at low doses so I'm stuck at the moment.
I have not been on a biologic since the
Tocilizumab
was stopped as it no longer worked. I have been informed today that the Rituximab cannot be approved if you don't take Methotrexate with it. Unfortunately I cannot tolerate MTX even at low doses so I'm stuck at the moment.
premierscfc
in
NRAS
7 years ago
Tocilizumab
Hi guys anyone notice weight gain while on this treatment? I'm due to start this soon. Thank you Pete.
Hi guys anyone notice weight gain while on this treatment? I'm due to start this soon. Thank you Pete.
Pedz
in
Arthritis Action
7 years ago
Actermra/Tocilizumab Approval and financial aid in US.
Hello All, As many of you know the GiACTA (
Tocilizumab
) clinical trials were finalized in 2016 and the drug was approved in May of 2017 for Giant Cell Arteritis only. After much research, I have decided to start treatment with Actermra this month.
Hello All, As many of you know the GiACTA (
Tocilizumab
) clinical trials were finalized in 2016 and the drug was approved in May of 2017 for Giant Cell Arteritis only. After much research, I have decided to start treatment with Actermra this month.
Tj2017
in
PMRGCAuk
7 years ago
Tocilizumab
Has anyone experienced infusions of this drug ( Actemra ) ? I don't believe I've seen it mentioned here. Have a wonderful Easter weekend everyone! Chris
Has anyone experienced infusions of this drug ( Actemra ) ? I don't believe I've seen it mentioned here. Have a wonderful Easter weekend everyone! Chris
8080
in
NRAS
7 years ago
Tocilizumab
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Tonylynn
in
PMRGCAuk
7 years ago
All about Kay in France
Moved to France (Picardie) in 2003 and have several major flares and drug changes since (Leflunomide, Methoxtrate, Enbrel, Abtacept,
Tocilizumab
) - some due to secondary effects/allergic reactions, and some to the fact that the drug didn't do a lot.
Moved to France (Picardie) in 2003 and have several major flares and drug changes since (Leflunomide, Methoxtrate, Enbrel, Abtacept,
Tocilizumab
) - some due to secondary effects/allergic reactions, and some to the fact that the drug didn't do a lot.
KayEP
in
NRAS
7 years ago
Starting yet another Biologic
Hi everybody, not posted for sometime now but just wondered if anyone is on
Tocilizumab
. My rheumy has suggested I go onto this biologic now (number 4), as Rituximab has not worked as it should. Would really appreciate any comments, good or bad. Many thanks 😊
Hi everybody, not posted for sometime now but just wondered if anyone is on
Tocilizumab
. My rheumy has suggested I go onto this biologic now (number 4), as Rituximab has not worked as it should. Would really appreciate any comments, good or bad. Many thanks 😊
Luthien
in
NRAS
7 years ago
Actemra issues
Anyone else having issues with the Actemra (
Tocilizumab
) wearing off before the next infusion? I am finding that my infusions hold for around 3 weeks. Then the pain, stiffness and fatigue set in hard!
Anyone else having issues with the Actemra (
Tocilizumab
) wearing off before the next infusion? I am finding that my infusions hold for around 3 weeks. Then the pain, stiffness and fatigue set in hard!
dwsurquhart
in
NRAS
7 years ago
Whether to switch to Tocilizumab
Hi just hoping for some feedback on
Tocilizumab
( wish they came up with easier names 😀) RA active again after few years on Humira and they have asked me to consider this . Apart from Humira everything else causes me sickness so feedback on Side effects experienced most welcome. Thank you
Hi just hoping for some feedback on
Tocilizumab
( wish they came up with easier names 😀) RA active again after few years on Humira and they have asked me to consider this . Apart from Humira everything else causes me sickness so feedback on Side effects experienced most welcome. Thank you
Pennyjones1
in
NRAS
7 years ago
actemra
Food and Drug Administration (FDA) has accepted the company’s supplemental biologics license application (sBLA) for Actemra/RoActemra (
tocilizumab
) for the treatment of GCA, a chronic, potentially life-threatening autoimmune condition.
Food and Drug Administration (FDA) has accepted the company’s supplemental biologics license application (sBLA) for Actemra/RoActemra (
tocilizumab
) for the treatment of GCA, a chronic, potentially life-threatening autoimmune condition.
mamacline
in
PMRGCAuk
7 years ago
A little about me
Currently being treated with
Tocilizumab
to bring CRP numbers down. Supposed to be <3, mine was 157. Weird stuff these biologics.
Currently being treated with
Tocilizumab
to bring CRP numbers down. Supposed to be <3, mine was 157. Weird stuff these biologics.
dwsurquhart
in
NRAS
7 years ago
Leeds research
I have been told that there was an article in the Mail on 21 st. on PMR GCA mentioning that
Tocilizumab
may be available in the near future, I have yet to look it up. We must be optimistic !
I have been told that there was an article in the Mail on 21 st. on PMR GCA mentioning that
Tocilizumab
may be available in the near future, I have yet to look it up. We must be optimistic !
Mourneriver
in
PMRGCAuk
7 years ago
Giving Up
I am on monthly infusions of
Tocilizumab
at half the usual dose due to neutropenic. I take morphine for pain along with the usual concoction to treat RA & I'm really down at the minute & wondering what's the point🤐.....
I am on monthly infusions of
Tocilizumab
at half the usual dose due to neutropenic. I take morphine for pain along with the usual concoction to treat RA & I'm really down at the minute & wondering what's the point🤐.....
donnalouisec
in
NRAS
7 years ago
Breakthrough Treatment for Rheumatics
Am new to the site, but just noticed an article in the Mail on Sunday which advises that a common arthritis drug is effective in treating GCA and PMR without the side effects of steroids - the drug is
tocilizumab
.
Am new to the site, but just noticed an article in the Mail on Sunday which advises that a common arthritis drug is effective in treating GCA and PMR without the side effects of steroids - the drug is
tocilizumab
.
Joan217
in
PMRGCAuk
7 years ago
Tocilizumab , injections or infusions?
Happy Wednesday fellow RA warriors. I am self injecting but the results are not fantastic after 6months. No side effects and I am feeling a bit better but my hands and feet are really swollen and painful by evening. Does anyone know if infusions are more effective for a Sero negative RA sufferer? Thanks
Happy Wednesday fellow RA warriors. I am self injecting but the results are not fantastic after 6months. No side effects and I am feeling a bit better but my hands and feet are really swollen and painful by evening. Does anyone know if infusions are more effective for a Sero negative RA sufferer? Thanks
LesBev
in
NRAS
7 years ago
1
...
27
28
29
...
35
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
NRAS
335 results
PMRGCAuk
287 results
Vasculitis UK
20 results
View top 10 communities
Sort by
Most Relevant
Newest