Tocilizumab and gut pain.

[Jackie1947]

This has been suggested to me for RA. I've used other injections but overtime I got severe gut problems or aggregated what I already have Diviculosis and Pancreatitis and taken off them. Latest was Benipali that after a couple of years caused severe gut pain. So Tocil has been suggested but although a chance it could aggravate my gut problems. I'm limited as I have latent TB . I was first diagnosed with RA 19 years ago. I've taken Sulphasazine since then. I don't want to find out the hard way if it's OK. Any one experienced gut ache with gut problems?

[Slinkyminx]

hi. I have taken toc twice each time for about a year. I didn’t get gut problems I already take mebeverine and esomeprozole but didn’t experience any issues. I stopped because I had numerous infections uti and chest. I’m on Benepali now which is great for energy but I have started to get tummy cramps Interesting you had your stop because of gut issues. Also I’m putting on heaps of weight. Hope toc works for you

[Jackie1947 in reply to Slinkyminx]

It seems a bit of a gamble whatever we take! I think the way my gut reacted was I already had gut problems . My advice is keep an eye on your symptoms . In my case it was cramps. I didn't put in any weight.

[Moomin8]

Not me 😊

[Brushwork]

I take Toci and have mild gut issues, but have had them on and off for years before Toci.

Gut is getting worse but I can’t put it down to anything more than years of various meds and aging!

It is always a “suck it and see” situation and often a trade-off between RA symptoms and side effects. I guess it’s about finding an acceptable balance.

Hope you find your balance

[Lolabridge]

Hi Jackie. Sorry you’re suffering guts issues. I’ve never had that in the two years I’ve been on Tocilizumab. However I’ve been taking a PPI too during that time.