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7 public communities
Ehlers-Danlos Support UK
2,954 members
Ehlers-Danlos Support UK (EDS) assists those with Ehlers-Danlos. It is a genetic connective tissue condition that is a multi-systemic syndrome.
LUPUS UK
31,744 members
This HealthUnlocked Community is a peer support forum facilitated by LUPUS UK - The national registered charity for people affected by lupus and assisting those approaching diagnosis. This community is available for anybody affected by lupus to get information, support and advice from other people who are similarly affected. We welcome people with any form of lupus (SLE, discoid lupus, drug-induced lupus, cutaneous lupus etc.) as well as those with associated conditions such as mixed connective tissue disease (MCTD) and undifferentiated connective tissue disease (UCTD). The community discusses a wide range of topics including; diagnosis, symptoms, medical appointments, medications and support available. LUPUS UK provides a wide range of publications about lupus which are free to read and download on our website HERE: https://www.lupusuk.org.uk/publications/ Please consider paying £10 a year to become a member of LUPUS UK. You will receive our magazine three times a year and our charity to support others, fund medical research and Specialist Lupus Nurses. JOIN HERE: https://www.lupusuk.org.uk/shop/#!/Memberships/c/14192101/offset=0&sort=normal
Changing Faces
3,150 members
This community is for the 1.3 million people in the UK with a visible difference, from a mark, scar or condition that makes them look different. We provide advice, support and psycho-social services to children, young people and adults. We challenge discrimination and we campaign for Face Equality: a world that truly values and respects people who look different We want a future where everyone with a visible difference on their face or body has the confidence, support and opportunity to lead the lives they want. If you would like to talk to someone, Changing Faces offers the Support and Information Line in the UK, for people affected by any visible difference caused by a mark, scar or condition, whether on the face or body, and families and friends. To get in touch with us, please follow this link: https://www.changingfaces.org.uk/services-support/support-information-line/
Drink Free
1,596 members
Welcome to the Drink Free community! This is a space for everyone to discuss their drink free journeys and get support from others who understand. Whether you're reducing your alcohol intake or cutting it out completely, this is the community for you.
Pelvic Pain Support Network
19,424 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
IBS Network
47,601 members
The IBS Network is the national charity that helps people with Irritable Bowel Syndrome (IBS) and has provided support to those with the condition and to healthcare professionals for over 25 years. Funding for the charity is received from a number of sources, including: annual memberships, an online shop for purchasing the ‘Can’t Wait’ card, Radar keys and other useful aids, in addition to income from legacies.
Sudden Cardiac Arrest & Heart Attack
2,215 members
We are a peer support community for sudden cardiac arrest and heart attack survivors. Join to talk about cardiac rehab, lifestyle changes, heart healthy lifestyle, and heart-related news - everyone is welcome!