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11 public communities
dRTA (distal Renal Tubular Acidosis)
445 members
dRTA (distal Renal Tubular Acidosis) is a rare type of kidney disease that can have a have major impact on a person’s health throughout their life. National Kidney Foundation has created this community to provide a source of support and general information and to help raise awareness and understanding about dRTA for patients and their families. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
FieryBones - RA Community
674 members
Rheumatoid Arthritis, or RA, is a type of auto-immune disease where the body's immune system starts attacking its own tissues and joints. It can happen at any age and is one of the most common form of arthritis. Some of the common symptoms are painful and swollen joints, fatigue and weakness. For people living with RA, it is a daily struggle to balance their personal and professional lives with the unpredictability of this painful disease. FieryBones has been created to connect all the RA warriors and caregivers throughout the world on a single platform. Nothing makes us feel better than reading inspirational blogs of how our RA peers are coping with this illness and sharing our story with the community that truly understands!
National Migraine Centre
9,131 members
Book a headache consultation now through the National Migraine Centre, the leading UK-wide migraine clinic. Appointments with specialist doctors & consultant neurologists: the migraine treatment charity. Visit our website to book now! www.NationalMigraineCentre.org.uk.
SHARE Uterine Cancer Support
307 members
SHARE Uterine Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your experiences with uterine / endometrial cancer, also known as womb cancer in the UK. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. For more information about SHARE, please visit us at: sharecancersupport.org. Whether you're a long-term survivor looking to inspire others or are newly diagnosed, you are very welcome here. Many of our community members have questions about experience with specific uterine cancer treatments like Paclitaxel, Carboplatin, Cisplatin, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. There is a lot of good information here from other patients, survivors, and caregivers on topics like stages and grades, histologic subtypes, radiation, genetics, and more. If you don't find what you're looking for, feel free to message an admin who will get back to you. This community is monitored Mon-Fri, 10:00 am - 6:00 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
SHARE Metastatic Breast Cancer
6,600 members
SHARE Metastatic Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific metastatic breast cancer treatments like Ibrance, Herceptin, Verzenio, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. Other topics in this community include mastectomy and double mastectomy surgeries, stages of metastatic breast cancer, metastatic breast cancer awareness, and more. As a community we have rules. Inappropriate, abusive or irrelevant posts, advertisements, and sexual photographs will removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
SHARE Breast Cancer Support
2,375 members
SHARE Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific breast cancer treatments like Tamoxifen, Xeloda, Letrozole, Fulvestrant, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. There is a lot of good information here from other patients, survivors, and caregivers on topics like DCIS, mastectomy/double mastectomy surgery, inflammatory breast cancer, taxol, breast lumps, breast cancer stages, and more. If you don't find what you're looking for, feel free to message an admin who will get back to you. As a community we have rules. Inappropriate, abusive, or irrelevant posts, advertisements, and sexual photographs will be removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and must avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
SHARE Ovarian Cancer Support
2,762 members
SHARE Ovarian Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Whether you're a long-term survivor looking to inspire others or are here to ask about CA-125 levels rising, you are very welcome here. Many of our community members have questions about experience with specific ovarian cancer treatments like rubraca, Lynparza, Zejula, etc, as well as broader questions including ovarian cancer signs symptoms, ovarian cysts, early signs of ovarian cancer, and more. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. You can also search for various histopathologies of ovarian cancer, like clear cell carcinoma or mucinous ovarian cancer. As a community we have rules. Inappropriate, abusive, or irrelevant posts, advertisements, and sexual photographs will removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
Diabetes Research & Wellness Foundation
6,460 members
The Diabetes Research and Wellness Foundation (DRWF) is a registered charity, established in 1998 to raise public awareness to the condition and its associated complications, treatment, avoidance and relief and to provide support to people living with diabetes. Whilst funding vital diabetes research to establish the causes; develop improved management and treatment options; and ultimately find a cure, we aim to ensure that people have access to the right information and support to develop a proactive self-care approach to successful self-management, to ensure that they are ’staying well until a cure is found....’
Eczema Association of Australasia Inc
428 members
We support and educate Eczema sufferers and carers, along with the wider community, in all aspects of Eczema and its impact in Australia and New Zealand.
Beyond Psoriasis
2,719 members
We’re a community of people affected by psoriasis and psoriatic arthritis but looking beyond our diagnosis. Join the movement! Work, play, family and the daily grind are as important to us as our symptoms, treatment and research. Beyond Psoriasis is supported by funding from LEO Innovation Lab.
Dystonia Society
600 members
We are an online community providing support, advocacy and information for anyone affected by the neurological movement condition known as dystonia. Join us to share your experiences, ask for advice and support each other! The Dystonia Society Helpline is available Tue - Fri, 10-4, on 020 7793 3650 or support@dystonia.org.uk