Experiences with

Tecfidera

Started taking Tecfidera in 2013. No relapses since! My neuro at Univ of Michigan says I'm a "super responder" because Tec also seemed to have cured my scalp psoriasis that I struggled w for years. Totally gone. ( Tec was used to treat psoriasis in Europe.)

I'm afraid that he's going to take me off tecfidera-I've been stable for years. Anyone else experiencing this?

I have been taking Tecfidera for 8 Months now, and I am still having the flushing in my face. Does this eventually go away?

I have been on Tecfidera since 2012. My white count is too low so the doctor is having me hold the Tecfidera for a month and then have my white cell count retested. Anyone else have that problem? Thanks!

I am currently taking Tecfidera. I struggle with balance issues, spasticity, weakness, arm tremor. I appreciate this opportunity.

I've been on Betaseton, Aubagio and now on Tecfidera since April 2016. Speaking with my MS Specialist 9/30/16 about Ledmtrada.

Has anyone on here had bad reactions to Tecfidera that weren't documented by the manufacturer? It stressed my body out more and made my cognitive and fatigue worse.

Used Copaxone for a bit more than 4 years, then switched to Tecfidera. I prefer the capsules. I've never blogged or used chats, so this is a real unique experience. I read through a few posts before deciding to write this.

Recently taken off Tecfidera because it was not working. I did my first infusion of Rituximan yesterday. Things went well.

Tried Tecfidera, stomache couldn't handle it. Tried Copaxone but the reaction to the shots got worse and worse. Been on avonex for about 4 months. Sometimes light flu like symptoms, a lot of depression, I cry at anything.

I was on Tecfidera, but it's not working. I am going to start Rituxan this week. I have limited mobility, balance issues, weakness. Does anyone use this medication and have you seen any improvements?

I started my first medication treatment for Relapsing MS with Tecfidera 2 years ago at age 54. Besides the gastric side effects and flush,recently caused to me serious side effects with very low white blood cells count and capillary reactions. I am in pause of treatment for couple months.

I tried Betaseron, then Copaxone, then Aubagio and finally Tecfidera, which is what I take now, along with duloxetine and modafinil.

So I switched to Tecfidera thinking that would be better. It wasn't. I was on Tecfidera for almost 2 years and the side effects of intestinal distress, upset stomach, extreme itching, and always feeling fluish I decided to stop Tecfidera.

My liver enzymes were also elevated--could be the Tecfidera--and that scares me a little because I had the liver cancer when I was 19. Now I need another blood test. But the gastric upset was caused by a new migraine med. In short, the whole experience has been a real cluster.

So, we change to Tecfidera (#2). At the end of a year, MRI shows multiple new active lesions. So, we change to Plegridy (#3). At the end of a year (2 months ago), MRI shows multiple new active lesions, one of them in the brain stem (none in the spine). My MRI's are looking like pretty fireworks.

I started on Copaxone, then Tecfidera, and am now on Tysabri. I have only 3 lesions in my brain. Lesions in my spinal column are my major problem.

My current disease modifying therapy is Tecfidera, and it seems to be a good fit. I use Acthar Gel for relapses. My biggest concern is the expense of these medications.

I am currently on Tecfidera, I was on tysabri for 8 months and got really sick with a sinus infection and bronchitis. Had the bronchitis for 2-1/2 months before getting rid of it. Now I'm back on Tecfidera and sick with the sinus infection again. It does not seem to be clearing up.

Getting ready to start Tecfidera. I also now have Type 1 Diabetes, Hashimotos, Fibromyalgia, Arthritis and Celiac. MS stinks. It was the beginning of a very challenging adulthood and took a lot of "normalcy" from me. However, I know that it's just something that I have and does not own me.