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Small lymphocytic lymphoma (SLL)
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Cord blood for leukemia/ lymphoma?
Not sure yet what my b lymphoma diagnosis is. But a timely question has arisen in my family. Both of my daughters are pregnant and due late November. One asked if I wanted her to harvest and store her cord blood for possible use for my illness. Apparently she needs to decide by early October. Does anyone
Not sure yet what my b lymphoma diagnosis is. But a timely question has arisen in my family. Both of my daughters are pregnant and due late November. One asked if I wanted her to harvest and store her cord blood for possible use for my illness. Apparently she needs to decide by early October. Does anyone
Sunfishjoy
in
CLL Support
5 years ago
Thank you all!!!
Hello, a short summary.. After FCR in 2015 and BR in 2017, our doctor suggested my husband to start Ibrutinib since his lymph nodes in abdomen are almost 7-8cm, wbc above 25, platelets under 100 and he has lost 5-6kg in the last month. I want to thank you all because I've read so many posts about Ibrutinib
Hello, a short summary.. After FCR in 2015 and BR in 2017, our doctor suggested my husband to start Ibrutinib since his lymph nodes in abdomen are almost 7-8cm, wbc above 25, platelets under 100 and he has lost 5-6kg in the last month. I want to thank you all because I've read so many posts about Ibrutinib
aylinozel
in
CLL Support
5 years ago
Newly diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma - CLL/SLL or just found us? This post is for you!
This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic
Lymphocytic
Leukaemia/
Small
Lymphocytic
Lymphoma
CLL/SLL. (CLL and SLL are the same disease, with the SLL variant confined mainly to the lymph nodes.)
This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic
Lymphocytic
Leukaemia/
Small
Lymphocytic
Lymphoma
CLL/SLL. (CLL and SLL are the same disease, with the SLL variant confined mainly to the lymph nodes.)
AussieNeil
Partner
in
CLL Support
5 years ago
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What is CAR-T therapy? An expert explains in simple terms
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Jm954
Administrator
in
CLL Support
5 years ago
FDA Frontline Approval of Venetoclax and Obinituzumab in the USA
For more on this important development, please see: https://cllsociety.org/2019/05/fda-approved-venetoclax-in-combination-with-obinutuzumab-for-the-treatment-of-people-with-previously-untreated-chronic-
lymphocytic
-leukemia-cll-or-
small
-
lymphocytic
-
lymphoma
-sll/ This is a big deal. Brian
For more on this important development, please see: https://cllsociety.org/2019/05/fda-approved-venetoclax-in-combination-with-obinutuzumab-for-the-treatment-of-people-with-previously-untreated-chronic-
lymphocytic
-leukemia-cll-or-
small
-
lymphocytic
-
lymphoma
-sll/ This is a big deal. Brian
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
cll/sll or MZL? & Rituxan
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
Sunfishjoy
in
CLL Support
5 years ago
Worried about low platelets - do I have Chronic Lymphocytic Leukemia? (CLL/SLL) When will I need treatment?
Idiopathic thrombocytopenic purpura (ITP) or immune thrombocytopenia, an immune disorder that is more common when you have Chronic
Lymphocytic
Leukemia/
Small
Lymphocytic
Lymphoma
(CLL/SLL) is also a possibility.
Idiopathic thrombocytopenic purpura (ITP) or immune thrombocytopenia, an immune disorder that is more common when you have Chronic
Lymphocytic
Leukemia/
Small
Lymphocytic
Lymphoma
(CLL/SLL) is also a possibility.
AussieNeil
Partner
in
CLL Support
5 years ago
Living Beyond Lymphoma: Mindfulness Teleconference Wednesday, July 31, 2019 1:30 PM -- 2:30 PM ET
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
lankisterguy
Volunteer
in
CLL Support
5 years ago
Webinar: The Path to Personalized Medicine in Lymphoma and CLL Thursday, June 27, 2019 4:00 PM - 5:00 PM EDT by Lymphoma Canada
Webinar: The Path to Personalized Medicine in Lymphoma and CLL https://mailchi.mp/lymphoma/cll-webinar-national-guidelines-for-front-line-treatment-of-cll-in-canada-2556069?e=7b399e8498 REGISTER TODAY https://register.gotowebinar.com/register/592054424846575116 DATE: Thursday, June 27, 2019 TIME:
Webinar: The Path to Personalized Medicine in Lymphoma and CLL https://mailchi.mp/lymphoma/cll-webinar-national-guidelines-for-front-line-treatment-of-cll-in-canada-2556069?e=7b399e8498 REGISTER TODAY https://register.gotowebinar.com/register/592054424846575116 DATE: Thursday, June 27, 2019 TIME:
lankisterguy
Volunteer
in
CLL Support
5 years ago
Mantle Cell Lymphoma
I have been cancer free for 12 years now. Taking Thalomide every day.
I have been cancer free for 12 years now. Taking Thalomide every day.
Mariguez
in
Non Hodgkin's Lymphoma Friends
5 years ago
Any Hope of Resolving DH Symptoms?
5 years since diagnosed with dermatitis herpetiformis, and have been on Dapsone and various topical ointments without my improvement in the blistering and itching at major joints and my butt. Have been careful about avoiding gluten in all food items. Has anyone had a similar situation where you have
5 years since diagnosed with dermatitis herpetiformis, and have been on Dapsone and various topical ointments without my improvement in the blistering and itching at major joints and my butt. Have been careful about avoiding gluten in all food items. Has anyone had a similar situation where you have
dwaage1
in
Gluten Free Guerrillas
5 years ago
Bendamustine and Rituximab and Low Lymphocyte Count
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
profrich
in
CLL Support
5 years ago
Skin lesion on face. Should he irradiate it
I have friend with skin lesion on his face who has a follicular B-cell lymphoma. On skin histology it is dense infiltrate of small lymphocytes. a mixed population of half T cells and half B cells. On FISH bcl6 is negative and IGH/bcl2 is negative . They want to irradiate the lesion. The lesion is the
I have friend with skin lesion on his face who has a follicular B-cell lymphoma. On skin histology it is dense infiltrate of small lymphocytes. a mixed population of half T cells and half B cells. On FISH bcl6 is negative and IGH/bcl2 is negative . They want to irradiate the lesion. The lesion is the
LovecuresCLL
in
CLL Support
5 years ago
We eat what we are – let’s detoxify the word ‘chemical’
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
AussieNeil
Partner
in
CLL Support
5 years ago
UK CLL Clinical Trial Portfolio updated May 2019
The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us https://www.cllsupport.org.uk/article/uk-cll-clinical-trials-portfolio-may-2019
The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us https://www.cllsupport.org.uk/article/uk-cll-clinical-trials-portfolio-may-2019
Myrddin
in
CLL Support
5 years ago
Dominant-negative PD1-armored CART cells induce remission in refractory diffuse large B-cell lymphoma (DLBCL) patients
Background: The chimeric antigen receptor (CAR) T cell treatment has been demonstrated as an effective therapy to relapse/refractory B cell malignancy. However, tumor microenvironment influences and affects CAR T treatment. For example, programmed death ligand 1/2 (PDL1/2) may inhibit the CAR T cells
Background: The chimeric antigen receptor (CAR) T cell treatment has been demonstrated as an effective therapy to relapse/refractory B cell malignancy. However, tumor microenvironment influences and affects CAR T treatment. For example, programmed death ligand 1/2 (PDL1/2) may inhibit the CAR T cells
wmay13241
in
CLL Support
5 years ago
Creatinine goes up after bendamustine and rituximab infusion
I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11 before drug infusion on Friday. I wonder if the drugs raised my levels. Has anyone else experienced something like this?
I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11 before drug infusion on Friday. I wonder if the drugs raised my levels. Has anyone else experienced something like this?
profrich
in
CLL Support
5 years ago
Starting Chemo tomorrow
I have held off for 9 years now and tomorrow is the DDAY for me. NHL CD-20. Had a scan yesterday after the last one 18 months ago. The nodes in the neck have enlarged and my throat is extremely contradicted. I am going the BR and chemo route. Along with issues with my voice I have constant nasal congestion
I have held off for 9 years now and tomorrow is the DDAY for me. NHL CD-20. Had a scan yesterday after the last one 18 months ago. The nodes in the neck have enlarged and my throat is extremely contradicted. I am going the BR and chemo route. Along with issues with my voice I have constant nasal congestion
DDay2012
in
CLL Support
5 years ago
Treatment in 10 days
Howdy I am looking forward to soaking the up information available here from all. They found my CLL on routine check up 8 years ago-have been doing wait and watch until now Hemo 11.1 WBC 310 will begin Ibrutinib in about 10 days as well as Allopurinol daily to flush out kidneys. I am an electrical
Howdy I am looking forward to soaking the up information available here from all. They found my CLL on routine check up 8 years ago-have been doing wait and watch until now Hemo 11.1 WBC 310 will begin Ibrutinib in about 10 days as well as Allopurinol daily to flush out kidneys. I am an electrical
wilhoitaz
in
CLL Support
5 years ago
Now Hodgkin Lymphoma
Been on a ibrutinib now for almost 4 1/2 years because of the CLL. Has done wonders to keep my blood scores in check. Almost normal. About 10 days ago I was diagnosed however with Hodgekin Lymphoma. Stage 3, with lymph node/tumours now on both sides of diaphragm. What is surprise! Stage 3. Doctor says
Been on a ibrutinib now for almost 4 1/2 years because of the CLL. Has done wonders to keep my blood scores in check. Almost normal. About 10 days ago I was diagnosed however with Hodgekin Lymphoma. Stage 3, with lymph node/tumours now on both sides of diaphragm. What is surprise! Stage 3. Doctor says
leopardo
in
CLL Support
5 years ago
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