Search
Search
About
Log in
Join
Experiences with
Sinemet
Posts
Communities
1,378 public posts
Filter results
DO YOU USE HIGH DOSE THIAMINE AS A NON-TREMOR DOMINANT PWP?
I will like to know what symptoms,HDT helps you with,and what dose .Most people whose posting I read on this thread,are tremor dominant,and they claimed,HDT helps with reducing fatigue and tremor.I can only attribute,the relief of my symptoms to
sinemet
and exercise.Thanks in advance.
I will like to know what symptoms,HDT helps you with,and what dose .Most people whose posting I read on this thread,are tremor dominant,and they claimed,HDT helps with reducing fatigue and tremor.I can only attribute,the relief of my symptoms to
sinemet
and exercise.Thanks in advance.
OREOLU
in
Cure Parkinson's
4 years ago
Anyone prepare their PD meds in water the night before?
He is currently on 1
sinemet
and 2.5 barlowe's 40% extract. We are wondering about crushing his
sinemet
and emptying the barlowe capsules and mixing them all up into lemon water the night before so that in the morning all he has to do is shake the concoction up a bit and drink it.
He is currently on 1
sinemet
and 2.5 barlowe's 40% extract. We are wondering about crushing his
sinemet
and emptying the barlowe capsules and mixing them all up into lemon water the night before so that in the morning all he has to do is shake the concoction up a bit and drink it.
pdkid
in
Cure Parkinson's
4 years ago
I am starting Sinemet tomorrow...
What foods should I stay away from while taking
Sinemet
?? Thanks
What foods should I stay away from while taking
Sinemet
?? Thanks
Plindrnbs
in
Cure Parkinson's
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
100% Pure Mucuna Pruriens
My husband started taking the mucuna 3 months ago, he’s currently taking one Barlowe’s, 5 tsp 3.3 mucuna powder and one
sinemet
every 3 hrs. Please let me hear from those who are using the 100% pure MP, how much, what are you taking it with, are you still taking PD Rx drugs?
My husband started taking the mucuna 3 months ago, he’s currently taking one Barlowe’s, 5 tsp 3.3 mucuna powder and one
sinemet
every 3 hrs. Please let me hear from those who are using the 100% pure MP, how much, what are you taking it with, are you still taking PD Rx drugs?
pdwife41yrs
in
Cure Parkinson's
4 years ago
How I cope with RLS for 20 years
I was diagnosed 20 years ago and given
Sinemet
25/100. I take 1 to 3 at bedtime and it serves me well. I have had several doctors try to take me off this drug and have had me try numerous gourmet drugs and all had side effects that made it not worth it.
I was diagnosed 20 years ago and given
Sinemet
25/100. I take 1 to 3 at bedtime and it serves me well. I have had several doctors try to take me off this drug and have had me try numerous gourmet drugs and all had side effects that made it not worth it.
stathal
in
Restless Legs Syndrome
4 years ago
Can't seem to stop constant underarm odor
Her PD related meds are:
Sinemet
25-100 x 7 per day, -
Sinemet
ER 25-100 1 at bedtime - Entacapone x 2 per day - B-1 200 mg per day. Her other meds are: Keppra 250mg 2 per day - Lorazepam 4mg per day - Lexapro 10mg x 2 per day - Oxybutynin 1 per day - Lisinopril 1 per day - Amlodipine 1 per day.
Her PD related meds are:
Sinemet
25-100 x 7 per day, -
Sinemet
ER 25-100 1 at bedtime - Entacapone x 2 per day - B-1 200 mg per day. Her other meds are: Keppra 250mg 2 per day - Lorazepam 4mg per day - Lexapro 10mg x 2 per day - Oxybutynin 1 per day - Lisinopril 1 per day - Amlodipine 1 per day.
389poncho
in
Cure Parkinson's
4 years ago
Sinemet induced dementia
She said he had developed dementia from taking
Sinemet
for a long period of time, 20 years in his case. I had never heard of this before, and none of my doctors have mentioned it. Has anyone else heard about this?
She said he had developed dementia from taking
Sinemet
for a long period of time, 20 years in his case. I had never heard of this before, and none of my doctors have mentioned it. Has anyone else heard about this?
health_detective
in
Cure Parkinson's
4 years ago
URINARY URGE.DO YOU EXPERIENCE THIS AS A PWP?
I am 3 1/4 years post diagnosis and on
sinemet
. I was on Azilect for about six months post diagnosis,before starting on
sinemet
and I also experience this symptom,during that time.I have complained to my MDS and he didn't do anything about it.He said as long as I am not incontinent.
I am 3 1/4 years post diagnosis and on
sinemet
. I was on Azilect for about six months post diagnosis,before starting on
sinemet
and I also experience this symptom,during that time.I have complained to my MDS and he didn't do anything about it.He said as long as I am not incontinent.
OREOLU
in
Cure Parkinson's
4 years ago
List of PD Supplements and medications
At the moment for vitamins/supplements I have Vitamin B1 Mannitol Vitamin D(+ K) Curcumin CoQ10 N-acetylcysteine Lithium Orotate Celery Seed Extract PQQ For standard medications I have Terazosin Repurposed Prostate Medicine
Sinemet
CR
Sinemet
IR Requip Dopmanie Agonist Mirapex Dopmanie
At the moment for vitamins/supplements I have Vitamin B1 Mannitol Vitamin D(+ K) Curcumin CoQ10 N-acetylcysteine Lithium Orotate Celery Seed Extract PQQ For standard medications I have Terazosin Repurposed Prostate Medicine
Sinemet
CR
Sinemet
IR Requip Dopmanie Agonist Mirapex Dopmanie
alexask
in
Cure Parkinson's
4 years ago
Doing much better!
A year ago I went to our MD and asked for a prescription of
Sinemet
. He can only give a prescription of up to 300mg per day, and I didn’t notice any improvement.
A year ago I went to our MD and asked for a prescription of
Sinemet
. He can only give a prescription of up to 300mg per day, and I didn’t notice any improvement.
Dpeachey
in
Cure Parkinson's
4 years ago
Reducing Sinemet
I recently posted a question about reducing
Sinemet
doses do you see if there was anybody else out there who had done this successfully. Maybe I am an anomaly but I’ve been able to reduce from 6 pills a day to less than 2 over the past 10 years and some days I can manage on 1 pill.
I recently posted a question about reducing
Sinemet
doses do you see if there was anybody else out there who had done this successfully. Maybe I am an anomaly but I’ve been able to reduce from 6 pills a day to less than 2 over the past 10 years and some days I can manage on 1 pill.
Kt088
in
Cure Parkinson's
4 years ago
Reducing Sinemet doses
Has anyone been able to successfully reduce their
Sinemet
doses?
Has anyone been able to successfully reduce their
Sinemet
doses?
Kt088
in
Cure Parkinson's
4 years ago
Is anyone elses hand functionally directly related to taking Sinemet (Kinson) and/or is anyone taking 12 or more tablets per day?
Experiences an almost instant “on”, “off” effect with their hand functionality when taking
Sinemet
/Kinson (ie 100 levodopa/25 carbidopa which I will call for the resot of this post as "
Sinemet
" ) and/or 2. has been taking, over a long period of time, equal to o (or 6) or more x 2 tablets of
Sinemet
Experiences an almost instant “on”, “off” effect with their hand functionality when taking
Sinemet
/Kinson (ie 100 levodopa/25 carbidopa which I will call for the resot of this post as "
Sinemet
" ) and/or 2. has been taking, over a long period of time, equal to o (or 6) or more x 2 tablets of
Sinemet
Hanmonih
in
Cure Parkinson's
4 years ago
Mucuna sinemet equivalent?
Based on my understanding, 1 tablet 200/50
sinemet
= 200mg synthetic levodopa = 6 teaspoons of mucuna = 1000mg mucuna levodopa = 16.5 capsules of 15% mucuna extract Please see attached screenshot from Dr. Rafael Gonzalez's paper.
Based on my understanding, 1 tablet 200/50
sinemet
= 200mg synthetic levodopa = 6 teaspoons of mucuna = 1000mg mucuna levodopa = 16.5 capsules of 15% mucuna extract Please see attached screenshot from Dr. Rafael Gonzalez's paper.
pdkid
in
Cure Parkinson's
4 years ago
Carbidopa in Sinemet very harmful.
I recently ran across a research study on the serious damage done by the carbidopa in
Sinemet
(generic = carbidopa levodopa).
I recently ran across a research study on the serious damage done by the carbidopa in
Sinemet
(generic = carbidopa levodopa).
grandpianoman
in
Restless Legs Syndrome
4 years ago
Significant cost increase for ER Sinemet?
Copay Cost of extended release
Sinemet
increased significantly in 2020. (10x) for me Regular release did not change anyone else notice this?
Copay Cost of extended release
Sinemet
increased significantly in 2020. (10x) for me Regular release did not change anyone else notice this?
Coot18
in
Cure Parkinson's
4 years ago
B1 Thiamin
Today, my husband started when he woke up at 5 a.m, 1-1/2 tab
sinemet
, 4 dopa mucuna pills and 2 (500 mg) B1 on an empty stomach. It’s amazing, he went back to sleep and woke up 5 hrs later and still “on.” It’s really a “wow” to me as he’s been taking his PD meds every 3 hrs.
Today, my husband started when he woke up at 5 a.m, 1-1/2 tab
sinemet
, 4 dopa mucuna pills and 2 (500 mg) B1 on an empty stomach. It’s amazing, he went back to sleep and woke up 5 hrs later and still “on.” It’s really a “wow” to me as he’s been taking his PD meds every 3 hrs.
pdwife41yrs
in
Cure Parkinson's
4 years ago
Off periods?
After a dose of
Sinemet
the PD signs diminish but eventually return. That's the OFF period, as I understand it. How long does the
Sinemet
last? Why can't I take more
Sinemet
once the OFF period starts? Once I start
Sinemet
, how long before a positive effect?
After a dose of
Sinemet
the PD signs diminish but eventually return. That's the OFF period, as I understand it. How long does the
Sinemet
last? Why can't I take more
Sinemet
once the OFF period starts? Once I start
Sinemet
, how long before a positive effect?
kaypeeoh
in
Cure Parkinson's
4 years ago
Timing of Medication
I can't seem to get my dosing of
sinemet
correct and suffer terrible off periods at least 3 times a day or more. I take 3 C/L ER 3 times a day and 1 C/L IR 25/100 4 times a day and I don't know what time to take the meds to keep my dopamine levels constant .
I can't seem to get my dosing of
sinemet
correct and suffer terrible off periods at least 3 times a day or more. I take 3 C/L ER 3 times a day and 1 C/L IR 25/100 4 times a day and I don't know what time to take the meds to keep my dopamine levels constant .
schatsie
in
Cure Parkinson's
4 years ago
Hello again, I need help from all the knowledgeable experts here please.
I have withdrawn from 0.75 mg Pramipexole at bedtime once daily and 100/25
Sinemet
once at bedtime starting August 2019. You all know how miserable that was .. I then went onto Gabapentin , increasing to 1200 mg in divided doses at bedtime, with Targin 25 mg at the same time.
I have withdrawn from 0.75 mg Pramipexole at bedtime once daily and 100/25
Sinemet
once at bedtime starting August 2019. You all know how miserable that was .. I then went onto Gabapentin , increasing to 1200 mg in divided doses at bedtime, with Targin 25 mg at the same time.
wairoa36
in
Restless Legs Syndrome
4 years ago
1
...
20
21
22
...
69
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
1217 results
Restless Legs Syndrome
69 results
PSP Association
59 results
View top 10 communities
Sort by
Most Relevant
Newest