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Scleroderma & Raynaud's UK (SRUK)

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Can someone with Scleroderma have only a few symptoms of CREST?

dacharya profile image
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If anyone is diagnosed with Scleroderma then please let me know if you have all the symptoms of CREST syndrome? Can someone get Scleroderma without getting all the symptoms of CREST syndrome?

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dacharya
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SBQ1971 profile image
SBQ1971

Morning Dacharya, yes , my first diagnosis was CREST but I have been extremely fortunate and never had problems with calcium extrusions though I do have Raynaud's, Gut problems, Telengectasia and what is now described as Limited Systemic Sclerosis with overlap as I have problems with dry eyes and mouth etc., plus all that goes with fibromyalgia. I really feel for people with calcium and ulcer problems. Scleroderma as I understand it can be very diverse and while many of us have similar problems we can experience them in different ways.

This may be of general interest: I recently needed travel insurance and did the rounds of several companies without success and potentially at great expense. Scleroderma did not appear on any of the medical application forms. Eventually while talking to the person at All Clear Travel Insurance I suddenly thought of trying CREST , it came straight up, they were very helpful and they were also the cheapest, so I got my holiday.

dacharya profile image
dacharya in reply toSBQ1971

Hi there! Sorry to hear that you have gone through a lot of struggle with Scleroderma. I also having a lot of difficulty managing my life. So, how was your Scleroderma diagnosed and was it detected in the blood test? In which hospital you got diagnosed?

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