Search
Search
About
Log in
Join
Experiences with
Rytary
Posts
Communities
322 public posts
Filter results
Would you call this a step towards "recovery" from PD?
I had to still take my
Rytary
or the symptoms would come roaring back, but I hadn't increased my
Rytary
dose for over 2 years, I was walking 3 miles/day, and felt much better. About a year or so ago, I began taking HDT (high dose thiamine aka B1) and that might've helped even more.
I had to still take my
Rytary
or the symptoms would come roaring back, but I hadn't increased my
Rytary
dose for over 2 years, I was walking 3 miles/day, and felt much better. About a year or so ago, I began taking HDT (high dose thiamine aka B1) and that might've helped even more.
JerMan22
in
Cure Parkinson's
4 years ago
Rytary
Has anyone experienced insomnia, depression and intense anxiety with
Rytary
? Does it go away? I've been taking a "starter" dose for several days at bedtime.
Has anyone experienced insomnia, depression and intense anxiety with
Rytary
? Does it go away? I've been taking a "starter" dose for several days at bedtime.
Beckey
in
Cure Parkinson's
4 years ago
Rytary Reformulation
Is
Rytary
being reformulated to last 8 hours per dose? Anybody know anything about this? https://www.mdedge.com/clinicalneurologynews/article/141449/movement-disorders/promising-phase-ii-results-
rytary
Is
Rytary
being reformulated to last 8 hours per dose? Anybody know anything about this? https://www.mdedge.com/clinicalneurologynews/article/141449/movement-disorders/promising-phase-ii-results-
rytary
Blackfeather
in
Cure Parkinson's
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Rytary and Speech
I am looking for some feedback on the effects of
Rytary
on speech. I am doing well with
Rytary
otherwise, but I can hardly speak coherently when I am on it. Any similar experiences?
I am looking for some feedback on the effects of
Rytary
on speech. I am doing well with
Rytary
otherwise, but I can hardly speak coherently when I am on it. Any similar experiences?
Hidden
in
Cure Parkinson's
5 years ago
Rytary and Full Time Work
I am polling to see how people are doing with
Rytary
whilst still on a full time job. I am having great difficulty. Please share.
I am polling to see how people are doing with
Rytary
whilst still on a full time job. I am having great difficulty. Please share.
Hidden
in
Cure Parkinson's
5 years ago
Who takes Rytary for their Parkinson's
My husbands Parkinsons tremors seem to be getting harder and more frequent, his Neuro has recently suggested putting on
Rytary
, anyone on this drug, could you please comment on it's positives and/or negatives. Thanks so much
My husbands Parkinsons tremors seem to be getting harder and more frequent, his Neuro has recently suggested putting on
Rytary
, anyone on this drug, could you please comment on it's positives and/or negatives. Thanks so much
dhill
in
Cure Parkinson's
5 years ago
Hospitals are a scary place to be for Parkinson’s patients
In August, I was in the hospital for a day and I was not able to get my
Rytary
on time and in the required dosage. Luckily, I only had a day off my regular dosage.
In August, I was in the hospital for a day and I was not able to get my
Rytary
on time and in the required dosage. Luckily, I only had a day off my regular dosage.
Hidden
in
Cure Parkinson's
5 years ago
Rytari transitioning
And 2) if i taoe toomuch
Rytary
i get extreme dyskinesia. Anyone else ever experienced this?
And 2) if i taoe toomuch
Rytary
i get extreme dyskinesia. Anyone else ever experienced this?
SCT25
in
Cure Parkinson's
5 years ago
Agonist vs Dopamine
The second Neurologist confirmed the PD diagnosis, told me I was badly under-medicated and prescribed
Rytary
3 pills 4 x per day. Ok...difference of opinion? Maybe? Confusing? YOU BET!! Confused on two ( 2 ) fronts. 1. Type of med - Sinemet - Dopamine or
Rytary
- Agonist , 2. Dosage?
The second Neurologist confirmed the PD diagnosis, told me I was badly under-medicated and prescribed
Rytary
3 pills 4 x per day. Ok...difference of opinion? Maybe? Confusing? YOU BET!! Confused on two ( 2 ) fronts. 1. Type of med - Sinemet - Dopamine or
Rytary
- Agonist , 2. Dosage?
TR8Man
in
Cure Parkinson's
5 years ago
Approximating the pharmacokinetics of Rytary using four doses of IR C/L
For more details see: https://www.neurotalk.org/parkinson-s-disease/247192-approximating-pharmacokinetics-
rytary
-using-ir.html?highlight=
rytary
John
For more details see: https://www.neurotalk.org/parkinson-s-disease/247192-approximating-pharmacokinetics-
rytary
-using-ir.html?highlight=
rytary
John
johntPM
in
Cure Parkinson's
5 years ago
Five years with wrong diagnosis
Taking rasagaline and
Rytary
now.
Taking rasagaline and
Rytary
now.
Vintageglam
in
Cure Parkinson's
5 years ago
Tremor after taking medication
Happened while I was on Sinimet which I since change to
Rytary
.. but now I'm getting feeling like the tremor is blocking my air supply. Very scary... Also immediately after taking the medication I have excess saliva in my mouth Anyone else experience these symptoms
Happened while I was on Sinimet which I since change to
Rytary
.. but now I'm getting feeling like the tremor is blocking my air supply. Very scary... Also immediately after taking the medication I have excess saliva in my mouth Anyone else experience these symptoms
Intrepid200
in
Cure Parkinson's
5 years ago
Sinemet cr
I’m worried now as are regular Sinemet,gives me even less on time Has anyone heard this I would like to try
rytary
which is meant to me a superior slow release but i cant get it in uk only if I lived in USA Does anyone know how I could get it shipped in P
I’m worried now as are regular Sinemet,gives me even less on time Has anyone heard this I would like to try
rytary
which is meant to me a superior slow release but i cant get it in uk only if I lived in USA Does anyone know how I could get it shipped in P
Connie18
in
Cure Parkinson's
5 years ago
Nasty cold. Even nastier: Parkinson's symptoms through the roof.
Supplemented
Rytary
with some regular Sinemet 1-2 times a day. Am aware that any kind of stress can exacerbate symptoms, but I find myself disappointed that I am not more "resilient" during what, 10 years ago, would be a non-event.
Supplemented
Rytary
with some regular Sinemet 1-2 times a day. Am aware that any kind of stress can exacerbate symptoms, but I find myself disappointed that I am not more "resilient" during what, 10 years ago, would be a non-event.
katherinecompton22
in
Cure Parkinson's
5 years ago
Falling
I aways exercise every morning before I get on the
Rytary
roller coaster. I ‘m wearing double knee pads 24/7
I aways exercise every morning before I get on the
Rytary
roller coaster. I ‘m wearing double knee pads 24/7
Fishaholic
in
Cure Parkinson's
5 years ago
What about Namenda/ Memantine?
My mom just went down three points on her cognitive test, so they want to add Namenda to her
Rytary
and Excelon patch. Are there many side effects?
My mom just went down three points on her cognitive test, so they want to add Namenda to her
Rytary
and Excelon patch. Are there many side effects?
SKCW
in
Cure Parkinson's
5 years ago
Rytary and Bydureon updates
I started
Rytary
about 6 months ago and struggled to find a way to control my symptoms. It is a slow acting form of Carbidopa and Levodopa that is a controlled release capsule. I said “slow acting” because it takes a while to work it’s way through the system in the morning.
I started
Rytary
about 6 months ago and struggled to find a way to control my symptoms. It is a slow acting form of Carbidopa and Levodopa that is a controlled release capsule. I said “slow acting” because it takes a while to work it’s way through the system in the morning.
Hidden
in
Cure Parkinson's
5 years ago
Abject fatigue
I’m currently on
Rytary
, klonazapam-dose hasn’t changed in 4 years- and levothyroxine. About a year ago started B1 and find it helps @2-3 gms . Also have a DBS 4 years duration... GIPD no tremors. DX in 2001, worked my own PT Clinic til 09. Any advice is appreciated.
I’m currently on
Rytary
, klonazapam-dose hasn’t changed in 4 years- and levothyroxine. About a year ago started B1 and find it helps @2-3 gms . Also have a DBS 4 years duration... GIPD no tremors. DX in 2001, worked my own PT Clinic til 09. Any advice is appreciated.
etterus
in
Cure Parkinson's
5 years ago
Did You Get Manufacturer's Assistance For Your Rytary? If So Please Respond.
I am about to switch to
rytary
and I cannot afford medication.But I intend to apply for assistance from the company.I understand from the company's website that they give 90 days free supply of medication,but after that,it does not state what it will cost to procure the drug.So if you have been in this
I am about to switch to
rytary
and I cannot afford medication.But I intend to apply for assistance from the company.I understand from the company's website that they give 90 days free supply of medication,but after that,it does not state what it will cost to procure the drug.So if you have been in this
OREOLU
in
Cure Parkinson's
5 years ago
WHY IS CARBIDOPA USED IN COMBINATION WITH LEVODOPA IN DRUGS SUCH AS SINEMET?
To add further to the general topic of L-Dopa / Sinemet/ Sinemet CR /
Rytary
, etc. here is another link to that subject which expands on that specific topic and answers some important questions that I have seen about the use of Sinemet on this forum : https://www.apdaparkinson.org/article/common-questions-about-carbidopa-levodopa
To add further to the general topic of L-Dopa / Sinemet/ Sinemet CR /
Rytary
, etc. here is another link to that subject which expands on that specific topic and answers some important questions that I have seen about the use of Sinemet on this forum : https://www.apdaparkinson.org/article/common-questions-about-carbidopa-levodopa
chartist
in
Cure Parkinson's
5 years ago
1
...
8
9
10
...
17
Next page
10
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
301 results
Scleroderma & Raynaud's UK (SRUK)
5 results
NRAS
4 results
View top 10 communities
Sort by
Most Relevant
Newest