Hospitals are a scary place to be for Parkinson’s patients

Thanks to member pvw2 who linked me to the article:

theguardian.com/society/201...

So true and I know that it’s true. In August, I was in the hospital for a day and I was not able to get my Rytary on time and in the required dosage. Luckily, I only had a day off my regular dosage.

[park_bear]

It is commonplace for Parkinson's patients to not get their meds on time, or even at all, in hospitals. There is one simple solution to this problem, but most medical control freaks will not allow patients to be in charge of their meds in hospitals.

[Hidden in reply to park_bear]

There is also a possibly better solution, which would be to ask the MDS to intervene. I considered placing an emergency call to the doctor , but decided against it.

I wasn’t sure if he would even be allowed to intervene or if I would be interfering in some hospital and doctor protocol. My MDS works for UCSF and I was hospitalized at Stanford.

[pvw2 in reply to Hidden]

The hospitals and medical care giving needs quality control. They have too much emphasis on KPI without measuring quality of service.

[Ramondo]

I was allowed to keep and administer my sinemet tablets on my last two stays in hospital, obviously I was lucky.