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paroxysmal AF and flying
hi. Can anyone here give me some advice and hopefully some reassurance please. I’ve had AF since being diagnosed August 2022. First episode on the night coming home from a very strenuous and incident filled 2 week motor home ‘holiday’ in Scotland. Our first and probably our last. Not very restful!
hi. Can anyone here give me some advice and hopefully some reassurance please. I’ve had AF since being diagnosed August 2022. First episode on the night coming home from a very strenuous and incident filled 2 week motor home ‘holiday’ in Scotland. Our first and probably our last. Not very restful!
Talking45
in
AF Association
5 months ago
microbleeds
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
chelb29
in
Hughes Syndrome APS Forum
5 months ago
Mike H
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
Georgeorwell1959
in
Atrial Fibrillation Support
2 months ago
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Open heart surgery
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
Hammerboy
in
Atrial Fibrillation Support
2 months ago
Needing some suggestions to sitting for hours in hospital
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
Pefki
in
Anticoagulation Support
5 months ago
Mitral Valve Af and fed up
hi all, I’ve been diagnosed nearly two years ago with AF. Cardio version worked for 5 days so was put on Amiodarone 200mg along with the usual others, Apixiban, Nebivolol. The Amiodarone messed my thyroid about so was put on a higher dose of Levothyroxine. Fast forward 5 months I get an appointment
hi all, I’ve been diagnosed nearly two years ago with AF. Cardio version worked for 5 days so was put on Amiodarone 200mg along with the usual others, Apixiban, Nebivolol. The Amiodarone messed my thyroid about so was put on a higher dose of Levothyroxine. Fast forward 5 months I get an appointment
Gilly1372
in
Atrial Fibrillation Support
5 months ago
Help with Vitamin K foods
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
13131958
in
Hughes Syndrome APS Forum
3 months ago
fatigue
hello I am new on here. I have been treated for polymyalgia rheumatica PMR for 15 yrs . I no longer suffer the high level of discomfort, but have the most dreadful fatigue the past 3 yrs . I have had investigations for poor adrenal function ESR CRP, but all normal . What has been slightly abnormal is
hello I am new on here. I have been treated for polymyalgia rheumatica PMR for 15 yrs . I no longer suffer the high level of discomfort, but have the most dreadful fatigue the past 3 yrs . I have had investigations for poor adrenal function ESR CRP, but all normal . What has been slightly abnormal is
Avadip12
in
Thyroid UK
18 days ago
PMR Diagnosis
I have GCA but now wondering if I have PMR. How do you get a diagnosis of PMR blood tests?
I have GCA but now wondering if I have PMR. How do you get a diagnosis of PMR blood tests?
LRevell
in
PMRGCAuk
21 days ago
Hello - I'm new to all this.
Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of 2 x 500mg paracetamol plus 2 Adcal-D Calcium/vit D tablets. The pain is manageable now - I can get some sleep and the pain/stiffness in my shoulders
Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of 2 x 500mg paracetamol plus 2 Adcal-D Calcium/vit D tablets. The pain is manageable now - I can get some sleep and the pain/stiffness in my shoulders
Positive__
in
PMRGCAuk
23 days ago
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
27 days ago
My journey with Polymyalgia Rheumatica
I was diagnosed with Polymyalgia Rheumatica in August of 2022 so I’m now approaching my 2 year mark which will be August of 2024. I am blessed to have a good family doctor who diagnosed me quickly and referred me to an equally good rheumatologist. Now the only question is how to conquer the beast. Like
I was diagnosed with Polymyalgia Rheumatica in August of 2022 so I’m now approaching my 2 year mark which will be August of 2024. I am blessed to have a good family doctor who diagnosed me quickly and referred me to an equally good rheumatologist. Now the only question is how to conquer the beast. Like
fondofforest
in
PMRGCAuk
1 month ago
Polymyalgia and Fibromyalgia
I have been taking prednisolone for a long time for polymyalgia and GCA. The rheumatologist has decided to take me off prednisolone ( slowly reducing) and putting me on to methotrexate, as she said that prednisolone can affect my bones.Since I stopped taking prednisolone I have been getting all the symptoms
I have been taking prednisolone for a long time for polymyalgia and GCA. The rheumatologist has decided to take me off prednisolone ( slowly reducing) and putting me on to methotrexate, as she said that prednisolone can affect my bones.Since I stopped taking prednisolone I have been getting all the symptoms
Chrismag
in
PMRGCAuk
1 month ago
Tricuspid regurgitation and mitral valve regurgitation and afib
Just had the results of my exho and inhave moderate mitral valve regurgitation and moderate tricuspid valve regurgitation to.
I had the echo because I am experiencing breathlessness.
However the letter said there was nothing on my scan that would cause breathlessness. I was under
Just had the results of my exho and inhave moderate mitral valve regurgitation and moderate tricuspid valve regurgitation to.
I had the echo because I am experiencing breathlessness.
However the letter said there was nothing on my scan that would cause breathlessness. I was under
Sunnyann
in
AF Association
6 months ago
Mitral valve (moderate)regurgitation and AF.
Has anyone with AF been diagnosed with MVR? What is the treatment, can you still have an ablation or perhaps......this may not be needed if the valve is repaired? To me it does seem pointless having an ablation if the Regurgitation is the cause of AF and this is not addressed first. On the plus side
Has anyone with AF been diagnosed with MVR? What is the treatment, can you still have an ablation or perhaps......this may not be needed if the valve is repaired? To me it does seem pointless having an ablation if the Regurgitation is the cause of AF and this is not addressed first. On the plus side
sunlovah
in
Atrial Fibrillation Support
6 months ago
The Early History of Polymyalgia Rheumatica and GCA
Rather a long read but may be of interest. There may well be other similar articles but I was surprised to learn here that these diseases appear to have been discovered/recognised as recently as mid-20th https://www.mayoclinicproceedings.org/article/S0025-6196(11)61208-1/fulltext
Rather a long read but may be of interest. There may well be other similar articles but I was surprised to learn here that these diseases appear to have been discovered/recognised as recently as mid-20th https://www.mayoclinicproceedings.org/article/S0025-6196(11)61208-1/fulltext
123-go
in
PMRGCAuk
2 months ago
Has anyone been changed to Luforbec as a preventer inhaler
I have just been swapped from Clenil Modulite to Luforbec, I 'm a bit worried as I have moderate Aortic stenosis, Instructions say to take extra care with this medicine .
I have just been swapped from Clenil Modulite to Luforbec, I 'm a bit worried as I have moderate Aortic stenosis, Instructions say to take extra care with this medicine .
1browneyes1
in
Lung Conditions Community Forum
6 months ago
has my sisters Polymyalgia returned?
hi, I have GCA, following Polymyalgia, I am worried about my sister who has successfully tapered of prednisone, then after a few months has it returned? she is in complete pain all over can hardly walk, blood test were taken and the inflammatory level was not raised, so the doctor said it wasn’t Polymyalgia
hi, I have GCA, following Polymyalgia, I am worried about my sister who has successfully tapered of prednisone, then after a few months has it returned? she is in complete pain all over can hardly walk, blood test were taken and the inflammatory level was not raised, so the doctor said it wasn’t Polymyalgia
Grey7
in
PMRGCAuk
2 months ago
Waxing or hair removal when on Warfarin
Hi. I just had a mechanical valve replacement on the 16th of August 2023. I would like to get waxed. Is it possible to? I have never bled before warfarin. Are there other hair removal methods that are safer or can I stick to waxing?
Hi. I just had a mechanical valve replacement on the 16th of August 2023. I would like to get waxed. Is it possible to? I have never bled before warfarin. Are there other hair removal methods that are safer or can I stick to waxing?
Shahirahalkaff
in
Anticoagulation Support
6 months ago
More about the presentation by the Irish doctor posted about this week relating to GCA in PMR
pegpowellposted about a doctor running a rapid access clinic in Tallaght, Ireland - and this is the abstract of her presentation, Very interesting for those of us with PMR - and who might have GCA ... Peg's post is here https://healthunlocked.com/pmrgcauk/posts/150487310/news-article-on-irish-pmr-gca-doctor
pegpowellposted about a doctor running a rapid access clinic in Tallaght, Ireland - and this is the abstract of her presentation, Very interesting for those of us with PMR - and who might have GCA ... Peg's post is here https://healthunlocked.com/pmrgcauk/posts/150487310/news-article-on-irish-pmr-gca-doctor
PMRpro
Ambassador
in
PMRGCAuk
3 months ago
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