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ReQuip XL
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Did not expect this..
Saw my neuro today... I'v been taking c/l and requip. Doc said with the amount of c/l I'm currently on 250mg 6 times a day and only getting 60-90 min of relief and my age (57) I would be the perfect candidate for DBS surgery which might grant me 10-15 years of a better quality of life. I asked if he
Saw my neuro today... I'v been taking c/l and requip. Doc said with the amount of c/l I'm currently on 250mg 6 times a day and only getting 60-90 min of relief and my age (57) I would be the perfect candidate for DBS surgery which might grant me 10-15 years of a better quality of life. I asked if he
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Please help. Severe nerve pain. In dialysis and rls so bad I have started cutting some of my treatment.
I need help. I thought I have my rls under control for awhile. I am now having severe depression. I was taking requip for some time which I found myself. I am taking a low does of Xanax which I have been on for at least 35 years. I was also put on Prozac but now off. I have end stage renal des. I have
I need help. I thought I have my rls under control for awhile. I am now having severe depression. I was taking requip for some time which I found myself. I am taking a low does of Xanax which I have been on for at least 35 years. I was also put on Prozac but now off. I have end stage renal des. I have
ESRDRLS
in
Restless Legs Syndrome
5 years ago
WHAT AM I DOING?
I have had 11 iron infusions so far , 1 more to go. It has helped so much. I see a Dr. who studied with Dr. Buchfurer on Oct. 14 . In the mean time I am trying to reduce the amount of requip I take. I was on 9mg. and I'm now at 6mg. I've been taking it twice a day 3mg at a time. I'm not sure what I
I have had 11 iron infusions so far , 1 more to go. It has helped so much. I see a Dr. who studied with Dr. Buchfurer on Oct. 14 . In the mean time I am trying to reduce the amount of requip I take. I was on 9mg. and I'm now at 6mg. I've been taking it twice a day 3mg at a time. I'm not sure what I
sweetiepye
in
Restless Legs Syndrome
5 years ago
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Newly diagnosed with atrial fibrillation and atrial flutter
Hi iam new to this community and newly diagnosed with both atrial fibrillation and flutter iam on Rivaroxaban and Adizem xl, recently had an angiogram and trying to come to terms with a lifetime condition that appears to be changing my complete lifestyle overnight any suggestions on how to cope would
Hi iam new to this community and newly diagnosed with both atrial fibrillation and flutter iam on Rivaroxaban and Adizem xl, recently had an angiogram and trying to come to terms with a lifetime condition that appears to be changing my complete lifestyle overnight any suggestions on how to cope would
dunebay
in
British Heart Foundation
5 years ago
Time for a change
I am a 42 year old woman and I have been dealing with rls for almost 20 years now. I was on requip for about 5 years then noticed it was getting worse so my dr took me off for a couple years and they only bothered me at night so he put me back on it and started to happen again in couple years Switched
I am a 42 year old woman and I have been dealing with rls for almost 20 years now. I was on requip for about 5 years then noticed it was getting worse so my dr took me off for a couple years and they only bothered me at night so he put me back on it and started to happen again in couple years Switched
Want2sleep
in
Restless Legs Syndrome
5 years ago
RESTLESS LEG NIGHTMARE
There are few things that unnerve me as much as RLS. My PCP has prescribed 5mg. Requip, but what do I do for the full body attack that happens early afternoon? She suggested Lyricra {sP} but that gave my daughter terrible RLS symptoms and I am not big on anything that has its own set of problems. Could
There are few things that unnerve me as much as RLS. My PCP has prescribed 5mg. Requip, but what do I do for the full body attack that happens early afternoon? She suggested Lyricra {sP} but that gave my daughter terrible RLS symptoms and I am not big on anything that has its own set of problems. Could
MemaK
in
Restless Legs Syndrome
5 years ago
New Here
so, i’ve just recently been diagnosed with RLS. i didn’t know anything about it or the medication used to treat it. i let my DR put me on Mirapex and i had an awful reaction to it with side effects. so we went to Requip. i’ve been on .25 to .50 for about 2 months. it was working great at first but then
so, i’ve just recently been diagnosed with RLS. i didn’t know anything about it or the medication used to treat it. i let my DR put me on Mirapex and i had an awful reaction to it with side effects. so we went to Requip. i’ve been on .25 to .50 for about 2 months. it was working great at first but then
exhxw
in
Restless Legs Syndrome
5 years ago
Can moderating meds forestall diskinesia side effects?
My doctor prescribed I take three doses of Carbiidopa/Levedopa daily, but from my reading it sounds like C/L over time can cause diskinesias. I felt like perhaps by moderating the amount of C/L daily now I could help to cut back on future diskinesia side effects. Does anyone have knowledge on this? I
My doctor prescribed I take three doses of Carbiidopa/Levedopa daily, but from my reading it sounds like C/L over time can cause diskinesias. I felt like perhaps by moderating the amount of C/L daily now I could help to cut back on future diskinesia side effects. Does anyone have knowledge on this? I
Peony73
in
Cure Parkinson's
5 years ago
summary of a visit to my neurologist
Since I havent seen my neurologist in about TWO YEARS, I had a bunch of questions for him. here they are and here are his answers: Any value in genetic testing? No. Should we test my gut bacteria? No. Would Stem cell replacement be beneficial? Still experimental. No. Have you ever heard of the Marty
Since I havent seen my neurologist in about TWO YEARS, I had a bunch of questions for him. here they are and here are his answers: Any value in genetic testing? No. Should we test my gut bacteria? No. Would Stem cell replacement be beneficial? Still experimental. No. Have you ever heard of the Marty
bassofspades
in
Cure Parkinson's
5 years ago
Punching legs..so frustrating! 😔
I take Requip. It helps my my dose is too low. So I take extra since my doc reduced my dose. I resort to punching my legs. It helps but then I have bruises. So aggravating. 😔
I take Requip. It helps my my dose is too low. So I take extra since my doc reduced my dose. I resort to punching my legs. It helps but then I have bruises. So aggravating. 😔
Lingg
in
Restless Legs Syndrome
5 years ago
What is it ?
Hi guys, Back with yet an update. Seemingly, the no of posts have been getting up and up from my end. Hope you all don't mind it. Now on day 35-36, actually can't keep count of it now, there have been some changes to my condition. I no longer get RLS in the afternoon, not even a slight feeling, which
Hi guys, Back with yet an update. Seemingly, the no of posts have been getting up and up from my end. Hope you all don't mind it. Now on day 35-36, actually can't keep count of it now, there have been some changes to my condition. I no longer get RLS in the afternoon, not even a slight feeling, which
Heatherlss
in
Restless Legs Syndrome
5 years ago
Requip and restless leg
I’ve been on requip for 15 years- I take 2mg in morning and 2 mg at night. I don’t like it I think it is causing augmentation and I wake up nauseated. I would love to get off but have heard horror stories about withdrawal! Getting off may make my restless leg and Parkinson’s worse! I don’t know what
I’ve been on requip for 15 years- I take 2mg in morning and 2 mg at night. I don’t like it I think it is causing augmentation and I wake up nauseated. I would love to get off but have heard horror stories about withdrawal! Getting off may make my restless leg and Parkinson’s worse! I don’t know what
bmak54
in
Restless Legs Syndrome
5 years ago
Left toenail has stopped growing
dx jan 2019. 52 y.o., mild symptoms although internal tightness doesn't feel to mild. left side tightness, some left heel drag, neuropathy in my left pointer finger, some involuntary movement in my left toe. i take sinemet ER (vary my dose trying to figure out what works best but generally 1tab in
dx jan 2019. 52 y.o., mild symptoms although internal tightness doesn't feel to mild. left side tightness, some left heel drag, neuropathy in my left pointer finger, some involuntary movement in my left toe. i take sinemet ER (vary my dose trying to figure out what works best but generally 1tab in
Jockboy17
in
Cure Parkinson's
5 years ago
Grapefruit Juice Day 55 - Currently at 8oz (237ml) Per Day
Hello all, Latest Update after 55 days of GJ Testing: (Sinemet) Currently - 175mg four times a day (every four hours), down from 250mg. Getting 3hrs "ON" time 1hr "OFF" time. I tried to get the dose down to 150mg four times daily but at that amount, I'm only getting about 2.0 hours "ON" time and roughly
Hello all, Latest Update after 55 days of GJ Testing: (Sinemet) Currently - 175mg four times a day (every four hours), down from 250mg. Getting 3hrs "ON" time 1hr "OFF" time. I tried to get the dose down to 150mg four times daily but at that amount, I'm only getting about 2.0 hours "ON" time and roughly
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Update on Grapefruit Juice Experiment - Day 44
Good morning all, Currently drinking one 8 once glass of GJ first thing in the morning half hour before I start my first of four daily c/l dosings which starts at 7am each morning. I've been testing with GJ for 43 days now, just completing a full week of being able to take 200mg c/l four times a day
Good morning all, Currently drinking one 8 once glass of GJ first thing in the morning half hour before I start my first of four daily c/l dosings which starts at 7am each morning. I've been testing with GJ for 43 days now, just completing a full week of being able to take 200mg c/l four times a day
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Thinking about other options
Hi everyone , I just recently joined this group. I’ve had restless leg syndrome at least 20+ years I’ve had it longer than that but I didn’t even know there was a name associated with what the symptoms were I’ve been to a neurologist probably 10 years ago but didn’t follow it because he was not
Hi everyone , I just recently joined this group. I’ve had restless leg syndrome at least 20+ years I’ve had it longer than that but I didn’t even know there was a name associated with what the symptoms were I’ve been to a neurologist probably 10 years ago but didn’t follow it because he was not
Crazygrl
in
Restless Legs Syndrome
5 years ago
Disappointing
So, i saw the neuro today. Went through my whole speech about the legs, etc. Told him the requip basically sucked, made my legs worse, caused insomnia and repetitive thoughts. So....he puts me on.. mirapex. W.T.F?? I flat out asked about methadone and he said, and i quote, "I don't prescribe methadone
So, i saw the neuro today. Went through my whole speech about the legs, etc. Told him the requip basically sucked, made my legs worse, caused insomnia and repetitive thoughts. So....he puts me on.. mirapex. W.T.F?? I flat out asked about methadone and he said, and i quote, "I don't prescribe methadone
Dogdoo
in
Restless Legs Syndrome
5 years ago
Dr Buchfuhrer is Awesome!
After suffering for years with RLS that went into augmentation I found out about Dr Buchfuhrer and set up a visit. I’ve seen multiple neurologists, and GPS who did their best to help me. No one could help. In fact it only got worse because they increased requip and then The Neupro patch to levels that
After suffering for years with RLS that went into augmentation I found out about Dr Buchfuhrer and set up a visit. I’ve seen multiple neurologists, and GPS who did their best to help me. No one could help. In fact it only got worse because they increased requip and then The Neupro patch to levels that
Jrskyhook32
in
Restless Legs Syndrome
5 years ago
Artificial sweetened Cola drinks rapid relief?
Hi, i was dx with PD in 2014, and started out with selegilin and Requip (dopamin agonist), later adding L-DOPA (Madopar/Sinemet) and entakapon. Altogether enabling me to work full time, and I am convinced this would not be possible without such a «cocktail». Still, episodes of fatigue with loss
Hi, i was dx with PD in 2014, and started out with selegilin and Requip (dopamin agonist), later adding L-DOPA (Madopar/Sinemet) and entakapon. Altogether enabling me to work full time, and I am convinced this would not be possible without such a «cocktail». Still, episodes of fatigue with loss
Perno
in
Cure Parkinson's
5 years ago
improving sleep quality
I was introduced to a Cognitive Behavioral Therapist who treats insomnia a couple of months ago. The protocol is referred to as "CBTI". It's a little deceiving in that the main components or tools are not related to the thought reframing common in CBT. There is that component but the main components
I was introduced to a Cognitive Behavioral Therapist who treats insomnia a couple of months ago. The protocol is referred to as "CBTI". It's a little deceiving in that the main components or tools are not related to the thought reframing common in CBT. There is that component but the main components
Jockboy17
in
Cure Parkinson's
5 years ago
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