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I survived
last 18 months have been crazy. So sick. gp/ endo nearly killed me. Full blown myxedema coma most of past 6.5 yrs. By some luck, after 6.5 yrs of of startlingly bad medical care I only just found a good GP surgery, they are slowly piecing me back together on T3. Lotta sleeping & serious despair that
last 18 months have been crazy. So sick. gp/ endo nearly killed me. Full blown myxedema coma most of past 6.5 yrs. By some luck, after 6.5 yrs of of startlingly bad medical care I only just found a good GP surgery, they are slowly piecing me back together on T3. Lotta sleeping & serious despair that
joydot
in
Thyroid UK
1 year ago
PSA Rising While on ADT and Abiraterone
I started Abiraterone in November 2022 and my PSA was 3.83. Over the last few months it dropped to 2.71, 2.50 and then 3.02 and now 3.28. Does this mean I am not responding to the Abiraterone any longer. I have only been on it for 3.5 months. Am I doing something that is interfering with the drug.
I started Abiraterone in November 2022 and my PSA was 3.83. Over the last few months it dropped to 2.71, 2.50 and then 3.02 and now 3.28. Does this mean I am not responding to the Abiraterone any longer. I have only been on it for 3.5 months. Am I doing something that is interfering with the drug.
Islandboy2021
in
Advanced Prostate Cancer
1 year ago
Input Needed.
Hi, Looking for some communal input from this knowledgeable forum. First, some bullet point history to help fine tune the responses: • I was diagnosed with advanced stage, mPC in mid-2020. I have a rare type of PC that does not exhibit elevated PSA. It’s very aggressive and difficult to treat. My PSA
Hi, Looking for some communal input from this knowledgeable forum. First, some bullet point history to help fine tune the responses: • I was diagnosed with advanced stage, mPC in mid-2020. I have a rare type of PC that does not exhibit elevated PSA. It’s very aggressive and difficult to treat. My PSA
Blue6199
in
Advanced Prostate Cancer
1 year ago
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ASCO 23 - Transdermal square-wave testosterone therapy
This might interest followers of BAT. As you no doubt know, Denmeade's BAT cycle is a 28-day modulation of testosterone [T] from ~2,000 ng/dL down to near castrate. The BAT cycle typically begins with a T-cypionate injection into muscle. In the new pilot study, T was delivered daily, transdermally
This might interest followers of BAT. As you no doubt know, Denmeade's BAT cycle is a 28-day modulation of testosterone [T] from ~2,000 ng/dL down to near castrate. The BAT cycle typically begins with a T-cypionate injection into muscle. In the new pilot study, T was delivered daily, transdermally
pjoshea13
in
Fight Prostate Cancer
1 year ago
useful 'Evidence' that TSH between 0.04 - 0.4 has no increased risk to patients on Levothyroxine (UPDATED~new study does show small risk)
This paper forms part of the evidence base for the current NHS thyroid treatment guidelines , it was referenced as evidence to back up their concerns about "low TSH /overtreatment with levo/ risk to bones and heart" ( so they cannot say it is 'not good enough evidence' when you put it under their
This paper forms part of the evidence base for the current NHS thyroid treatment guidelines , it was referenced as evidence to back up their concerns about "low TSH /overtreatment with levo/ risk to bones and heart" ( so they cannot say it is 'not good enough evidence' when you put it under their
tattybogle
in
Thyroid UK
1 year ago
Duration of ADT needed with salvage radiation
6 months? 24 months? New data from the "Formula 509" trial shows that hormone intensification with adjuvant apalutamide+abiraterone+ADT for just 6 months with salvage radiation therapy (SRT) may be all that's needed: https://www.prostatecancer.news/2023/02/duration-of-adt-needed-with-salvage.html
6 months? 24 months? New data from the "Formula 509" trial shows that hormone intensification with adjuvant apalutamide+abiraterone+ADT for just 6 months with salvage radiation therapy (SRT) may be all that's needed: https://www.prostatecancer.news/2023/02/duration-of-adt-needed-with-salvage.html
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE?
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE? Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a
POST PROSTATECTOMY RECURRING PSA DIAGNOSED BY PSMA PET #1: ARE PSMA PETS #2+ THEN LIMITED OR DENIED TO CONFIRM CONTINUED PSA RECURRANCE? Does anyone have experience receiving a total of 2 or more PSMA PETs to confirm PSA recurrance as evidence of the rate of prostate cancer metastisis prior to a
Johnnyred
in
Advanced Prostate Cancer
1 year ago
Choose Capivasertib or 177Lu-PSMA-617 clinical trial or stick with ADT + radiation?
Hi Folks, My PSA is up to 49 from 24 last summer. After bone scan, CT scan indicated 3 sites of mets (2 on pelvis, 1 on L5, overall “low volume”). Otherwise feeling great, working out most days. 58. I was finally able to get in this month to see a Medical Oncologist. Starting on ADT next week. Meeting
Hi Folks, My PSA is up to 49 from 24 last summer. After bone scan, CT scan indicated 3 sites of mets (2 on pelvis, 1 on L5, overall “low volume”). Otherwise feeling great, working out most days. 58. I was finally able to get in this month to see a Medical Oncologist. Starting on ADT next week. Meeting
LongTimeRunning
in
Advanced Prostate Cancer
1 year ago
what is the role of a MO?
When does a MO get added to the team and who adds them (self refer, RO, other?)? Generally speaking I mean. I’ve had RP, recurrence, ADT, salvage radiation. No one has ever referenced involvement by MO at any stage and RO seems to suggest he’ll handle it all if PSA rises. Is MO a “last ditch” team
When does a MO get added to the team and who adds them (self refer, RO, other?)? Generally speaking I mean. I’ve had RP, recurrence, ADT, salvage radiation. No one has ever referenced involvement by MO at any stage and RO seems to suggest he’ll handle it all if PSA rises. Is MO a “last ditch” team
MSPCF2021
in
Fight Prostate Cancer
1 year ago
adding Alendronic acid side effects ?
I am wondering what others have experience when on Zoladex ADT (4.5 months of 24 + RT) of adding Alendronic acid (for osteoporosis) Had first one 5 days ago and am having muscle pain - seems rather quick and wondering if it’s the Zoladex accumulation and is the muscle and fatigue just getting worse
I am wondering what others have experience when on Zoladex ADT (4.5 months of 24 + RT) of adding Alendronic acid (for osteoporosis) Had first one 5 days ago and am having muscle pain - seems rather quick and wondering if it’s the Zoladex accumulation and is the muscle and fatigue just getting worse
SimMartin
in
Advanced Prostate Cancer
1 year ago
functional Doctor
For the last year I have had ongoing health issues. A burst ulcer, constant chest infections, and most recently a TIA and atrial afibulation. My GP says none of it is connected to my Hashimoto’s . I have been self medicating with NDT for a number of years very successfully with no problems. I was paying
For the last year I have had ongoing health issues. A burst ulcer, constant chest infections, and most recently a TIA and atrial afibulation. My GP says none of it is connected to my Hashimoto’s . I have been self medicating with NDT for a number of years very successfully with no problems. I was paying
Jillkh
in
Thyroid UK
1 year ago
Thyroid S Batch Number:- TA22055,
Has anybody had any issues with the above Thyroid S NDT from Thailand please? Thank you.
Has anybody had any issues with the above Thyroid S NDT from Thailand please? Thank you.
Margo
in
Thyroid UK
1 year ago
IVF when on NDT/Armour
Hi all, I'm considering starting another IVF cycle but i'm now on NDT/Armour Thyroid. I've got Hashimoto's. My TSH needs to be 0.38-2.5 for me to start treatment, but my last bloods showed my TSH as under 0.38 because of the T3 i'm on. I'm going to ask my thyroid doc to write a letter to my clinic
Hi all, I'm considering starting another IVF cycle but i'm now on NDT/Armour Thyroid. I've got Hashimoto's. My TSH needs to be 0.38-2.5 for me to start treatment, but my last bloods showed my TSH as under 0.38 because of the T3 i'm on. I'm going to ask my thyroid doc to write a letter to my clinic
Calligraphy2020
in
Thyroid UK
1 year ago
looking for 1st hand experiences of ViewRay SBRT treatments.intermediate risk, no hormone therapy
I’m scheduled for treatment by Dr. Nagar (Weill-Cornell/NYCPresby), and so far I’ve gotten little info from them (but have requested the info ) I’ll have my family in NY for the week, and my wife is very unsure what to expect. Does anyone have a day to day account of how things went? And post treatment
I’m scheduled for treatment by Dr. Nagar (Weill-Cornell/NYCPresby), and so far I’ve gotten little info from them (but have requested the info ) I’ll have my family in NY for the week, and my wife is very unsure what to expect. Does anyone have a day to day account of how things went? And post treatment
backbonz
in
Prostate Cancer Under 60
1 year ago
Is it normal after receiving two firmagon shots in the abdomen for the injection areas to be hard?
Well good news bad news. I qualified for a cutting edge trial at Yale, unfortunately they won’t let me do it until I’m back on a SOC ADT drug for two months. I bit the bullet because I’m allowed to stay on the estrogen gel to control the hot flashes. I had my first firmagon shots Tuesday. Two needles
Well good news bad news. I qualified for a cutting edge trial at Yale, unfortunately they won’t let me do it until I’m back on a SOC ADT drug for two months. I bit the bullet because I’m allowed to stay on the estrogen gel to control the hot flashes. I had my first firmagon shots Tuesday. Two needles
No_stone_unturned
in
Advanced Prostate Cancer
1 year ago
PET/CT Scan Results
DX 8/21 Started ADT Lupron, Abiraterone, Prednisone. PSA <0.64 until 1/31 Blood work PSA .253. MO ordered PET Pyarify (F18 PSMA) Scan 02/14/2023. Results: Head/Neck, Chest, Abdomen/Pelvis – No suspicious physiologic activity elsewhere. Skeletal: 1.Numerous stable non tracer avid sclerotic osseous
DX 8/21 Started ADT Lupron, Abiraterone, Prednisone. PSA <0.64 until 1/31 Blood work PSA .253. MO ordered PET Pyarify (F18 PSMA) Scan 02/14/2023. Results: Head/Neck, Chest, Abdomen/Pelvis – No suspicious physiologic activity elsewhere. Skeletal: 1.Numerous stable non tracer avid sclerotic osseous
alperk
in
Advanced Prostate Cancer
2 years ago
PSA after SBRT to T7
A recent PET/PSMA showed a single PC tumor on T7. My PSA at the time was 1.1 I was initially treated 5 years ago with ADT, Radiation to prostate and chemo and my PSA nadir was in the range of .6 to .8 over the last few years. My recent SBRT treatment was 45 gray over 5 treatments. One month after
A recent PET/PSMA showed a single PC tumor on T7. My PSA at the time was 1.1 I was initially treated 5 years ago with ADT, Radiation to prostate and chemo and my PSA nadir was in the range of .6 to .8 over the last few years. My recent SBRT treatment was 45 gray over 5 treatments. One month after
billd50
in
Advanced Prostate Cancer
2 years ago
A (failed?) attempt to stop thyroid medicines.
Hi, everyone. Sorry for the long post... I've been on thyroid hormone replacement since almost 4 years. I started euthyrox on the advice of my gp when my TSH was 2.89 (0.27-4.20). My antibodies were also slightly elevated (TPO: 112 [0-34]) and they remain on this range until today. Back then I was
Hi, everyone. Sorry for the long post... I've been on thyroid hormone replacement since almost 4 years. I started euthyrox on the advice of my gp when my TSH was 2.89 (0.27-4.20). My antibodies were also slightly elevated (TPO: 112 [0-34]) and they remain on this range until today. Back then I was
selenipap
in
Thyroid UK
2 years ago
Do CRPC cancer cells always or usually act different then CSPC cancer cells, or do they sometimes act similar to CRPC?
If someone is castration sensitive (on ADT pause) and their psa is 40 (for example), and they show very little suspected cancer (5mm spot for example) on a PSMA PET scan or an Axumin scan, then is it likely that castration resistant cancer show very little (5mm), as well, on a PSMA PET or Axumin scan
If someone is castration sensitive (on ADT pause) and their psa is 40 (for example), and they show very little suspected cancer (5mm spot for example) on a PSMA PET scan or an Axumin scan, then is it likely that castration resistant cancer show very little (5mm), as well, on a PSMA PET or Axumin scan
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
Results are in (Update 2/17/23)
So recurrent after radiation and 2 years ADT. PSA pretty close to 3 by now. Bone and CT scan done because my cheap insurance company denied the Pylarify until after the other 2. I don't mind the extra contrasts, barium or whatever hell else they gave me. I keep asking is it nuclear. Only the bone scan
So recurrent after radiation and 2 years ADT. PSA pretty close to 3 by now. Bone and CT scan done because my cheap insurance company denied the Pylarify until after the other 2. I don't mind the extra contrasts, barium or whatever hell else they gave me. I keep asking is it nuclear. Only the bone scan
treedown
in
Advanced Prostate Cancer
2 years ago
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