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Almost forgot I have PC
I have been off the grid for a while. Back in late November, I started having bladder problems including bleeding, urgency, frequency and incontinence. In December I was diagnosed with stage 3/b bladder cancer. In late January I had open Cystectomy and was in the hospital for 10 days. My MO put my PC
I have been off the grid for a while. Back in late November, I started having bladder problems including bleeding, urgency, frequency and incontinence. In December I was diagnosed with stage 3/b bladder cancer. In late January I had open Cystectomy and was in the hospital for 10 days. My MO put my PC
old64horn
in
Advanced Prostate Cancer
1 year ago
Ndt Armour
hi I asked a few minutes ago for people to private message me ndt friendly endos. i My post had been refused: deleted. I don’t know who to private message with the request can someone help please?
hi I asked a few minutes ago for people to private message me ndt friendly endos. i My post had been refused: deleted. I don’t know who to private message with the request can someone help please?
HONORA
in
Thyroid UK
1 year ago
Enzalutamide/Xtandi monotherapy as ADT with fewer side effects than Lupron
Enzalutamide monotherapy can improve the quality of live for advanced prostate cancer patients. Thank you, Prof. Tombal, for promoting this arm in the Embark trial! Enzalutamide does not lower testosterone and estrogen, it even increases the level of these. This avoids the following side effects of
Enzalutamide monotherapy can improve the quality of live for advanced prostate cancer patients. Thank you, Prof. Tombal, for promoting this arm in the Embark trial! Enzalutamide does not lower testosterone and estrogen, it even increases the level of these. This avoids the following side effects of
GP24
in
Advanced Prostate Cancer
1 year ago
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NDT ARMOUR
Hi can anyone PM me an ndt friendly Endo please north of England Tia
Hi can anyone PM me an ndt friendly Endo please north of England Tia
HONORA
in
Thyroid UK
1 year ago
NDT CAPSULES NOT TABLETS!! And Titration
Hi. I am on 150mcgs of eltroxin tablets and am transitioning on to 90mgs of NDT. My NDT was made in a compound laboratory and it has come as CAPSULES!!!! Any ideas on how I am going to titrate off the eltroxin tablets to the 90mgs powered CAPSULES. Thank you as always Forever hopeful 🌈 and 🦄
Hi. I am on 150mcgs of eltroxin tablets and am transitioning on to 90mgs of NDT. My NDT was made in a compound laboratory and it has come as CAPSULES!!!! Any ideas on how I am going to titrate off the eltroxin tablets to the 90mgs powered CAPSULES. Thank you as always Forever hopeful 🌈 and 🦄
NIKEGIRL
in
Thyroid UK
1 year ago
Xtandi (enzalutamide) alone is superior to ADT alone at preventing metastases in "high-risk" recurrent men
"High-Risk"recurrence was defined as men who have had primary therapy (prostatectomy or radiation) but have had rising PSA but no detectable (on bone scan/CT) metastases yet and T≥150 ng/dl, and: • PSA doubling time ≤ 9 months, or • PSA≥ 1 ng/ml post-prostatectomy, or • PSA≥ nadir+2 ng/ml post-primary
"High-Risk"recurrence was defined as men who have had primary therapy (prostatectomy or radiation) but have had rising PSA but no detectable (on bone scan/CT) metastases yet and T≥150 ng/dl, and: • PSA doubling time ≤ 9 months, or • PSA≥ 1 ng/ml post-prostatectomy, or • PSA≥ nadir+2 ng/ml post-primary
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
raised blood pressure and NDT- what to do?
I started on NDT in Sept 2022 and felt great within a fortnight after nine months of levo doing nothing for me and about 8 years of undiagnosed hypothyroidism steadily getting worse. My blood pressure has always been a normal 120/80 or thereabouts. In January, I got asked in the street by a health promotion
I started on NDT in Sept 2022 and felt great within a fortnight after nine months of levo doing nothing for me and about 8 years of undiagnosed hypothyroidism steadily getting worse. My blood pressure has always been a normal 120/80 or thereabouts. In January, I got asked in the street by a health promotion
lauraleeds666
in
Thyroid UK
1 year ago
Rerun - Medscape and DTE (NDT)
Two years ago I posted an article from Medscape regarding the action of NDT (DTE) and its pharmacokinetics. People since asked me to forward it on here, but until now I'd lost the site. I've now retreived it forTUK archives: If you put into Google the following, the site comes up medscape/desiccated
Two years ago I posted an article from Medscape regarding the action of NDT (DTE) and its pharmacokinetics. People since asked me to forward it on here, but until now I'd lost the site. I've now retreived it forTUK archives: If you put into Google the following, the site comes up medscape/desiccated
diogenes
in
Thyroid UK
1 year ago
Low T
My husband has been on "vacation" from ADT, zytiga and prednisone for a year. His PSA is tested every 3 months. Today's number is still <0.1 ng/ml. However, his T was slowly building...17, 24, 42 and now dropping to 34. Should I be worried?
My husband has been on "vacation" from ADT, zytiga and prednisone for a year. His PSA is tested every 3 months. Today's number is still <0.1 ng/ml. However, his T was slowly building...17, 24, 42 and now dropping to 34. Should I be worried?
mustang-66
in
Advanced Prostate Cancer
1 year ago
Rethinking Radiation to spine
Has anybody here had radiation to spine mets as treatment only? Not for pain relief necessarily. I am waiting for approval from insurance to radiate 4 smalls spots only seen on Pylarify PET. I had the risks explained to me and my concern is that maybe I should let the ADT and 2nd gen do its work and
Has anybody here had radiation to spine mets as treatment only? Not for pain relief necessarily. I am waiting for approval from insurance to radiate 4 smalls spots only seen on Pylarify PET. I had the risks explained to me and my concern is that maybe I should let the ADT and 2nd gen do its work and
treedown
in
Advanced Prostate Cancer
1 year ago
Is NDT better absorbed than thyroxine/liothyronine combo?
Are there any articles on the subject of absorption differences between NDT and thyroxine/liothyronine? I am reviewing my NDT blood test results against my levo/combined T3 and T4 results. The difference is astonishing. On NDT I can get into the correct T3 and T4 ranges with ease; any adjustment in
Are there any articles on the subject of absorption differences between NDT and thyroxine/liothyronine? I am reviewing my NDT blood test results against my levo/combined T3 and T4 results. The difference is astonishing. On NDT I can get into the correct T3 and T4 ranges with ease; any adjustment in
Reefseeker
in
Thyroid UK
1 year ago
Help! Where I can I by Armour?
Hi, I’m new here… have been purchasing armour online from America for 3 years (last time I paid £300 for 100 x 3 grain tabs) and source seems to have dried up (not sure if I’m allowed to post website?!), but I wondered if someone could message me where to buy as an individual with no prescription. I
Hi, I’m new here… have been purchasing armour online from America for 3 years (last time I paid £300 for 100 x 3 grain tabs) and source seems to have dried up (not sure if I’m allowed to post website?!), but I wondered if someone could message me where to buy as an individual with no prescription. I
Z12345
in
Thyroid UK
1 year ago
Additional Drug Choice
I started my ADT treatment with Eligard and Xtandi but had to change due to the cardiovascular side effects. I have been on Orgovyx alone for 10 months. My PSA is undetectable and my testosterone is 13. The drug is doing what it should. Side effects are hot flashes, fatigue, weight gain, and muscle loss
I started my ADT treatment with Eligard and Xtandi but had to change due to the cardiovascular side effects. I have been on Orgovyx alone for 10 months. My PSA is undetectable and my testosterone is 13. The drug is doing what it should. Side effects are hot flashes, fatigue, weight gain, and muscle loss
jcarey79
in
Advanced Prostate Cancer
1 year ago
Why be gluten free?
hello knowledgable people I’ve been gluten free for awhile, thinking gluten interferes with the absorption of thyroid hormones into the cells. But a friend told me gluten attacks the thyroid FYI I have secondary hypothyroidism (pituitary gland is malfunctioning and not producing enough TSH for the
hello knowledgable people I’ve been gluten free for awhile, thinking gluten interferes with the absorption of thyroid hormones into the cells. But a friend told me gluten attacks the thyroid FYI I have secondary hypothyroidism (pituitary gland is malfunctioning and not producing enough TSH for the
PixieElv
in
Thyroid UK
1 year ago
Advice on NDT sourcing or private endo to give me prescription - please PM
After 2 years on combined T4/T3 treatment which has left me feeling much worse than when I was on NDT, with very suppressed TSH and very low levels of FT3 and FT4, I'm giving up the ghost and will try to go back onto NDT. I am seeing the NHS endocrinologist next week with my 8 years of results showing
After 2 years on combined T4/T3 treatment which has left me feeling much worse than when I was on NDT, with very suppressed TSH and very low levels of FT3 and FT4, I'm giving up the ghost and will try to go back onto NDT. I am seeing the NHS endocrinologist next week with my 8 years of results showing
Reefseeker
in
Thyroid UK
1 year ago
Should I switch to NDT from levo?
Hi beautiful people, I've posted a number of posts here related to my heart pals and HBP with a healthy heart (I've been to see cardiologist). I'm even so grateful for all your support and this amazing forum. My nutrients (ferritin, iron panel, B12, folate, D) (also CRP, blood sugar) are at "ideal
Hi beautiful people, I've posted a number of posts here related to my heart pals and HBP with a healthy heart (I've been to see cardiologist). I'm even so grateful for all your support and this amazing forum. My nutrients (ferritin, iron panel, B12, folate, D) (also CRP, blood sugar) are at "ideal
Juliet_22
in
Thyroid UK
1 year ago
Clear PSMA scan.?
I started your journey in2018 with a G 3+4 and PSA of 28 ..I went on ADT and had Cyberknife SBRT treatment on my prostate and a suspect rib spot after a PSMA scan , All was good until my psa started to rise when I came off ADT ..My PSA went from 0.06 to 1.2 over a year . I’ve had another PSMA scan in
I started your journey in2018 with a G 3+4 and PSA of 28 ..I went on ADT and had Cyberknife SBRT treatment on my prostate and a suspect rib spot after a PSMA scan , All was good until my psa started to rise when I came off ADT ..My PSA went from 0.06 to 1.2 over a year . I’ve had another PSMA scan in
Walliam
in
Advanced Prostate Cancer
1 year ago
Next Step?
I have been treated for more than 10 years (except for 3 vacations during the first 5 years) and for the most part have been on Lupron and Zytiga. Starting 2 years ago my PSA starting rising from below .05 (MSKCC doesn't measure anything lower than that) up to about .32 over the course of a year. At
I have been treated for more than 10 years (except for 3 vacations during the first 5 years) and for the most part have been on Lupron and Zytiga. Starting 2 years ago my PSA starting rising from below .05 (MSKCC doesn't measure anything lower than that) up to about .32 over the course of a year. At
jfoesq
in
Advanced Prostate Cancer
1 year ago
Ndt source...
Can any people who still buy any ndt, either over the counter or Internet send me a private msg as to where they buy fromMany thanks
Can any people who still buy any ndt, either over the counter or Internet send me a private msg as to where they buy fromMany thanks
clippetyclop
in
Thyroid UK
1 year ago
Testosterone return?
I had my last Lupron injection 6/14/22 after 18 months of ADT and Radiation. PSA at the end of December was <.03 and testosterone was<3. My question is can I expect to return any time soon? My age is 75 and I am physically fit I am doing 5 or 6 miles walking everyday. Do they ever boost ones testosterone
I had my last Lupron injection 6/14/22 after 18 months of ADT and Radiation. PSA at the end of December was <.03 and testosterone was<3. My question is can I expect to return any time soon? My age is 75 and I am physically fit I am doing 5 or 6 miles walking everyday. Do they ever boost ones testosterone
pkat
in
Advanced Prostate Cancer
1 year ago
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