Search
Search
About
Log in
Join
Experiences with
Prostate disease
Read more...
Posts
Communities
55,513 public posts
Filter results
ALP AND RADIUM 223
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
NLondon43
in
Advanced Prostate Cancer
3 months ago
Neuroendocrine Prostate Cancer mLiver c
Found out my ademo morphed to NEPC (neuroendocrine prostate cancer). Hard to get research information on why this happened or treatment options. Any info would be great . My MO hasnt treated before and seems astonished since psa was <.1 for over a year. Says very rarely diagnoised . Thanks in advance
Found out my ademo morphed to NEPC (neuroendocrine prostate cancer). Hard to get research information on why this happened or treatment options. Any info would be great . My MO hasnt treated before and seems astonished since psa was <.1 for over a year. Says very rarely diagnoised . Thanks in advance
safari123
in
Advanced Prostate Cancer
3 months ago
Newly diagnosed researching lifestyle changes
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Nwdx
in
Advanced Prostate Cancer
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Life Expectancy
My father was diagnosed with advanced prostate cancer four years ago. Initially, he underwent radiation for a few spots on his ribs and immediately began ADT/Xtandi treatment for two years. His PSA dropped to 0.001, prompting his medical oncologist to recommend a medication vacation. For two years, he
My father was diagnosed with advanced prostate cancer four years ago. Initially, he underwent radiation for a few spots on his ribs and immediately began ADT/Xtandi treatment for two years. His PSA dropped to 0.001, prompting his medical oncologist to recommend a medication vacation. For two years, he
godhelpus
in
Advanced Prostate Cancer
3 months ago
PSA not dropping with cabazitaxel
See my profile for history. Have had 8 good years after Docitaxal, Lupron and 4 years of Zytiga. But mets's started up again in May, 2023. PSA went up to 36. Took 5 rounds of Docitaxal but not working. PSA 46 in December. MO prognosis is 1-1.5 yrs. Switched to cabazitaxel but after 3 rounds PSA is now
See my profile for history. Have had 8 good years after Docitaxal, Lupron and 4 years of Zytiga. But mets's started up again in May, 2023. PSA went up to 36. Took 5 rounds of Docitaxal but not working. PSA 46 in December. MO prognosis is 1-1.5 yrs. Switched to cabazitaxel but after 3 rounds PSA is now
westjl2
in
Advanced Prostate Cancer
3 months ago
Diagnosed almost 3 years ago
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
Retireddoc
in
Advanced Prostate Cancer
3 months ago
How long does SBRT to two lymph nodes continue to lower PSA?
Just wondering…does SBRT continue to drop PSA for any length of time? Or is it five sessions and it is what it is then? Curious if I can see further PSA reduction after 5 sessions to one node, then 5 to a second node. No prostate. See the treating RO in a couple of days, but thought I would ask
Just wondering…does SBRT continue to drop PSA for any length of time? Or is it five sessions and it is what it is then? Curious if I can see further PSA reduction after 5 sessions to one node, then 5 to a second node. No prostate. See the treating RO in a couple of days, but thought I would ask
Cancer2x
in
Advanced Prostate Cancer
3 months ago
New Mets, PSA 0.4
Hi everyone, I’m so worry for my dad, he has been dealing with this disease since 2019, he was put on vacation 2 years ago and for the last 2 years off medication his PSA was around 0.01, life was good and we were happy for him until his last two psa tests which jumped to 0.4 ! He had a scan and one
Hi everyone, I’m so worry for my dad, he has been dealing with this disease since 2019, he was put on vacation 2 years ago and for the last 2 years off medication his PSA was around 0.01, life was good and we were happy for him until his last two psa tests which jumped to 0.4 ! He had a scan and one
godhelpus
in
Advanced Prostate Cancer
3 months ago
Rising PSA
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
JolleySprings
in
Advanced Prostate Cancer
3 months ago
Next step
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
Elbers123
in
Advanced Prostate Cancer
3 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
3 months ago
Radiation PSA, Orgovyx, Bone density Update 2/18/24
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
alperk
in
Advanced Prostate Cancer
3 months ago
Father’s CRPCa Failed chemo (Cabazitaxel,Docetaxel) and Failed LU177
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Vishwa1890
in
Advanced Prostate Cancer
3 months ago
Metastatic prostate cancer in the lungs
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
S4survivor
in
Advanced Prostate Cancer
3 months ago
prostate met to esophagus
on the road for 9 years. Short story.. biopsy 4+3. Surg. Found in margins, pelvic lymphs. PSA 3 after. C11 found in lymph in chest. Chemo, then zytiga, Lupron, then 37 radiation, and meds then meds a year. Non detectable NED 7 years no meds tx 6 years. PSA started going up, slowly, bout 18 mo
on the road for 9 years. Short story.. biopsy 4+3. Surg. Found in margins, pelvic lymphs. PSA 3 after. C11 found in lymph in chest. Chemo, then zytiga, Lupron, then 37 radiation, and meds then meds a year. Non detectable NED 7 years no meds tx 6 years. PSA started going up, slowly, bout 18 mo
Kittenlover50
in
Advanced Prostate Cancer
3 months ago
PSA rise
2 months ago my PSA was 20. I have had extensive screening done prior to starting a clinical trial on Tuesday. My PSA has gone up to 367 since then. CT scan showed no significant change and I had bone scan yesterday. Onco says it may just be increased activity of existing cancer cells and not necessarily
2 months ago my PSA was 20. I have had extensive screening done prior to starting a clinical trial on Tuesday. My PSA has gone up to 367 since then. CT scan showed no significant change and I had bone scan yesterday. Onco says it may just be increased activity of existing cancer cells and not necessarily
konichiwa12
in
Advanced Prostate Cancer
3 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
3 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
3 months ago
18F-flotufolastat PET alters treatment approach for nearly 90% of patients with recurrent prostate cancer
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
"18F-flotufolastat is approved by the FDA for use in patients with suspected prostate cancer metastasis who are potentially curable by definitive surgery or radiation, and patients with suspected prostate cancer recurrence based on elevated PSA levels." https://www.urologytimes.com/view/18f-flotufolastat-pet-alters-treatment-approach-for-nearly
Maxone73
in
Advanced Prostate Cancer
3 months ago
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
3 months ago
1
...
10
11
12
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
12790 results
Thyroid UK
5641 results
British Liver Trust
4440 results
View top 10 communities
Sort by
Most Relevant
Newest