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Experiences with
Primary ciliary dyskinesia (PCD)
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apomorphine, anyone on this?
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Todd-pw
in
Cure Parkinson's
4 months ago
Bang for your buck
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
heartinmotion
in
Cure Parkinson's
4 months ago
Has anyone had success reducing levodopa-induced Dyskinesias after using Dr. Laurie Mischley’s regimen? (High DHA Fish Oil, Citicholine)
I would like to know if anyone has been successful in reducing or eliminating levodopa-induced dyskinesias after using Dr. Laurie Mischley's regimen (High DHA Fish Oil and Citicholine). There were quite a number of posts here about 2 months ago. I took the fish oil one extra month because there was
I would like to know if anyone has been successful in reducing or eliminating levodopa-induced dyskinesias after using Dr. Laurie Mischley's regimen (High DHA Fish Oil and Citicholine). There were quite a number of posts here about 2 months ago. I took the fish oil one extra month because there was
PNWpWp2014d
in
Cure Parkinson's
4 months ago
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question about macuna
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
limcheeese22
in
Cure Parkinson's
4 months ago
How Much Carbidopa Levodopa After 5-10 Years? Any other meds?
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
jimcaster
in
Cure Parkinson's
5 months ago
Have any one heard or tried L-Tyrosine ?
My son bought L-Tyrosine for me, and said it helps PD by research, it can help you make dopamine . It is a kind of Amino Acid. My doctor said that you can try it, but, should not take it with levodopa the same time, should take it apart from levodopa. Has someone tried it ?
My son bought L-Tyrosine for me, and said it helps PD by research, it can help you make dopamine . It is a kind of Amino Acid. My doctor said that you can try it, but, should not take it with levodopa the same time, should take it apart from levodopa. Has someone tried it ?
Grandsonlover
in
Cure Parkinson's
5 months ago
AbbVie’s Produodopa approved by SMC to treat Parkinson’s disease patients in Scotland
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
AbbVie’s Produodopa (foslevodopa-foscarbidopa) has been accepted by the Scottish Medicines Consortium (SMC) for use within NHS Scotland to treat advanced levodopa-responsive Parkinson’s disease (PD). PD patients with severe motor fluctuations and hyperkinesia or dyskinesia when previous available combinations
Farooqji
in
Cure Parkinson's
5 months ago
Ribonucleic Acid (RNA) and its Role in Parkinson’s Disease (PD) and Levodopa-induced Dyskinesias
https://www.apdaparkinson.org/article/rna-research-krithy-irmady/
https://www.apdaparkinson.org/article/rna-research-krithy-irmady/
Farooqji
in
Cure Parkinson's
5 months ago
overdose
I was diagnosed Feb 1 2024. Is it possible to overdose on Co-Beneldopa 200 MG. I take three doses a day [3 x 200 mg]. I try to take them at 8-hour intervals but often screw up, as my memory is so bad. Any side effects of Co-Beneldopa?
I was diagnosed Feb 1 2024. Is it possible to overdose on Co-Beneldopa 200 MG. I take three doses a day [3 x 200 mg]. I try to take them at 8-hour intervals but often screw up, as my memory is so bad. Any side effects of Co-Beneldopa?
disilusioned
in
PSP Association
5 months ago
NE3107 added to levodopa enhances motor, non-motor benefits
“These data suggest that NE3107 as an adjunct therapy to levodopa may hold promise in ameliorating specific non-motor symptoms of Parkinson’s Disease, particularly in sleep/fatigue and restlessness of the legs,” Joseph Palumbo, MD, BioVie’s chief medical officer, said in a company press release. https
“These data suggest that NE3107 as an adjunct therapy to levodopa may hold promise in ameliorating specific non-motor symptoms of Parkinson’s Disease, particularly in sleep/fatigue and restlessness of the legs,” Joseph Palumbo, MD, BioVie’s chief medical officer, said in a company press release. https
Farooqji
in
Cure Parkinson's
5 months ago
Citicoline: "patients treated with citicoline experienced a significant worsening 45 days after the medication was discontinued". Updated.
This statement appears in a review that was published here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10548481/ It is attributed to a study published in a book on citicoline in 1985. I've been unable to locate a copy of this book either online, for sale or to borrow from a library. Book: Zappia
This statement appears in a review that was published here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10548481/ It is attributed to a study published in a book on citicoline in 1985. I've been unable to locate a copy of this book either online, for sale or to borrow from a library. Book: Zappia
park_bear
in
Cure Parkinson's
6 months ago
Sebum?
So PD causes seborrhea. And seborrhea causes pimples. I get pimples under the hair line. Coal Tar shampoo is the standard treatment for seborrhea. Using shampoo whole-body gets a bit pricey. Using a kitchen scrubber sponge as well might help. But because coal tar is very drying, it stimulates
So PD causes seborrhea. And seborrhea causes pimples. I get pimples under the hair line. Coal Tar shampoo is the standard treatment for seborrhea. Using shampoo whole-body gets a bit pricey. Using a kitchen scrubber sponge as well might help. But because coal tar is very drying, it stimulates
kaypeeoh
in
Cure Parkinson's
6 months ago
foot flop
I take sinamet comtan and amantadine. Recently my foot flop has gotten worse. I can’t tell if I should take my medicine sooner than usual.
I take sinamet comtan and amantadine. Recently my foot flop has gotten worse. I can’t tell if I should take my medicine sooner than usual.
Blake0488
in
Cure Parkinson's
6 months ago
Recent study on Levodopa
Read the article at https://www.tandfonline.com/doi/full/10.1080/14740338.2023.2227096 Expert opinion No strong evidence exists to support use of a specific adjunctive treatment for improving Off time. Only one medication has demonstrated improvement in dyskinesia in levodopa-treated PD patients
Read the article at https://www.tandfonline.com/doi/full/10.1080/14740338.2023.2227096 Expert opinion No strong evidence exists to support use of a specific adjunctive treatment for improving Off time. Only one medication has demonstrated improvement in dyskinesia in levodopa-treated PD patients
pdpatient
in
Cure Parkinson's
6 months ago
Easy-to-use inhaled levodopa system readying request for US approval
That’s according to results from a company-sponsored clinical trial (NCT06037590) comparing the pharmacological properties of Levodopa Cyclops against those of Inbrija, an approved inhaled powder formulation of levodopa developed by Acorda Therapeutics. “This randomized cross-over trial of Levodopa
That’s according to results from a company-sponsored clinical trial (NCT06037590) comparing the pharmacological properties of Levodopa Cyclops against those of Inbrija, an approved inhaled powder formulation of levodopa developed by Acorda Therapeutics. “This randomized cross-over trial of Levodopa
Farooqji
in
Cure Parkinson's
7 months ago
Request for Information
Request for Information Hi from the UK, I take trihexyphenidyl (2 mg 2 x day) I want to take Citicoline but I’m sure I read somewhere that the two are not compatible as one stops the other from working. I’d be very glad if anyone has any experience of this. I am twenty years in and have been taking
Request for Information Hi from the UK, I take trihexyphenidyl (2 mg 2 x day) I want to take Citicoline but I’m sure I read somewhere that the two are not compatible as one stops the other from working. I’d be very glad if anyone has any experience of this. I am twenty years in and have been taking
Palmar
in
Cure Parkinson's
7 months ago
DHA for dyskinesia also improving sleep?
I'm doing Dr. Mischley's DHA protocol for dyskinesia (https://healthunlocked.com/cure-parkinsons/posts/150377221/high-dose-dha-and-dyskinesia-my-experience-so-far). I started my second bottle of high-dose DHA this past Friday. I feel like I'm experiencing almost exactly what she said she sees in her
I'm doing Dr. Mischley's DHA protocol for dyskinesia (https://healthunlocked.com/cure-parkinsons/posts/150377221/high-dose-dha-and-dyskinesia-my-experience-so-far). I started my second bottle of high-dose DHA this past Friday. I feel like I'm experiencing almost exactly what she said she sees in her
1LittleWillow
in
Cure Parkinson's
7 months ago
Restless foot
Hi ugly sick old men, lately I've had an annoying problem with my right foot, and especially in bed at night I can't keep it still. Definitely a form of dyskinesia caused by Levodopa. Tips for solving the problem? Thank you .
Hi ugly sick old men, lately I've had an annoying problem with my right foot, and especially in bed at night I can't keep it still. Definitely a form of dyskinesia caused by Levodopa. Tips for solving the problem? Thank you .
Axter
in
Cure Parkinson's
7 months ago
Swapping Rasagiline for Safinamide - Hobson’s Choice or out of the frying pan and into the fire?
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
Lyricist
in
Cure Parkinson's
7 months ago
Unlocking the Maze of B Complexes: A Handy List for Safe Dosages and Bioactive Vitamins
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
Esperanto
in
Cure Parkinson's
7 months ago
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