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Postviral fatigue syndrome
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Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
6 months ago
Hydrocodone to Tramadol?
So the USA ran out of Hydrocodone 10/325 due to DEA putting limits on annual production. My last fill was 11-6-23. Luckily I had saved up 90 units for emergency (proof I'm not abusing) but that ran out yesterday. I asked my doc to prescribe tramadol hcl 50mg to get by until production resumes. Started
So the USA ran out of Hydrocodone 10/325 due to DEA putting limits on annual production. My last fill was 11-6-23. Luckily I had saved up 90 units for emergency (proof I'm not abusing) but that ran out yesterday. I asked my doc to prescribe tramadol hcl 50mg to get by until production resumes. Started
billy_in_slo
in
Restless Legs Syndrome
6 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
6 months ago
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vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
3 days ago
What am I doing wrong!
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Shopnow1
in
IBS Network
7 days ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
16 days ago
Horizant
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
DocCookie
in
Restless Legs Syndrome
17 days ago
medication timing???
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
Cookiebum24
in
Restless Legs Syndrome
1 month ago
Longest bout of RLS 13 days of no sleep
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
Bulldogmom2003
in
Restless Legs Syndrome
6 months ago
Therapulse - Do I really need to scale up slowly the way the maker says to?
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
UsableThought
in
Restless Legs Syndrome
6 months ago
RLS regimen for occasional big flare-ups?
I’m in the process of switching from Pramipexole to Pregabalin. To help ease the transition - Just got a Rx today for buprenorphine/naloxone (2/.5mg); I intend to cut the strips into fourths. Assuming all goes well with the rest of the transition, I’m wondering what people do to manage flare-ups?
I’m in the process of switching from Pramipexole to Pregabalin. To help ease the transition - Just got a Rx today for buprenorphine/naloxone (2/.5mg); I intend to cut the strips into fourths. Assuming all goes well with the rest of the transition, I’m wondering what people do to manage flare-ups?
707twitcher
in
Restless Legs Syndrome
6 months ago
what to do? Take .25mg Pramipexole and 7.5mg zopiclone for 2 or 3 nights? Or not?
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Rayme
in
Restless Legs Syndrome
6 months ago
Hydrocodone?
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
MountainWanderer
in
Restless Legs Syndrome
6 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
6 months ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
2 months ago
buprenorphine study
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
707twitcher
in
Restless Legs Syndrome
6 months ago
Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
6 months ago
Co-codamol any good for RLS or PLMD?
I asked my GP for buprenorphine. He gave me co-codamol. Does anyone have any personal experience of this opioid? I'm not in pain, but have PLMD. I'd love to know if anyone has used co-codamol - and how they took it - and what their experience of it has been.
I asked my GP for buprenorphine. He gave me co-codamol. Does anyone have any personal experience of this opioid? I'm not in pain, but have PLMD. I'd love to know if anyone has used co-codamol - and how they took it - and what their experience of it has been.
pianoplayerPLMD
in
Restless Legs Syndrome
6 months ago
Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
6 months ago
BUPROPION
I received an email from Goodrx saying that Bupropion caused hair loss. I am loosing hair quite frequently and was wondering if anybody is having the same results. Also, if this is the cause of my hair loss, what other antidepressants will not aggravate my RLS. They are asleep right now because of
I received an email from Goodrx saying that Bupropion caused hair loss. I am loosing hair quite frequently and was wondering if anybody is having the same results. Also, if this is the cause of my hair loss, what other antidepressants will not aggravate my RLS. They are asleep right now because of
Josana13
in
Restless Legs Syndrome
9 months ago
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