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Experiences with
Piqray
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Changing Meds to Xeloda/capecitabine
Since then I was on Ibrance/Pablociclib and Fulvestrant/Fasoldex then a short try with
Piqray
/Alpelesib (I developed the rash 3x so didn’t even make it through my first month). I was on Afinitor/Everolimus and Letrozole/Femara for 6 months.
Since then I was on Ibrance/Pablociclib and Fulvestrant/Fasoldex then a short try with
Piqray
/Alpelesib (I developed the rash 3x so didn’t even make it through my first month). I was on Afinitor/Everolimus and Letrozole/Femara for 6 months.
Sparky95
in
SHARE Metastatic Breast Cancer
3 years ago
MBC changing from oral chemo to drip
I took Ibrance for 11 months before it quit working, then a short 10 days on
Piqray
which sent me to the ER with anaphylactic shock. Now I’ve been on Xeloda for only five months and is no longer working. My cancer antigens are going up and cancer Mets on liver are growing.
I took Ibrance for 11 months before it quit working, then a short 10 days on
Piqray
which sent me to the ER with anaphylactic shock. Now I’ve been on Xeloda for only five months and is no longer working. My cancer antigens are going up and cancer Mets on liver are growing.
Kellyonekanobe
in
SHARE Metastatic Breast Cancer
3 years ago
Two weeks on Xeloda and high liver counts but low hemoglobin, calcium and platelets.
I have been on 4 lines of treatments (ibrance with examestane, ibrance with Faslodex,
Piqray
with Faslodex that caused me severe allergy and tamoxifen) My last Petct showed a wide progression to the bones and new met in liver.
I have been on 4 lines of treatments (ibrance with examestane, ibrance with Faslodex,
Piqray
with Faslodex that caused me severe allergy and tamoxifen) My last Petct showed a wide progression to the bones and new met in liver.
Cureforever
in
SHARE Metastatic Breast Cancer
3 years ago
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How to combat the loss of taste (complete loss) when taking piqray
My mums on
piqray
and faslodex injections , moment she starts with the
piqray
she starts losing taste and cannot eat anything .
My mums on
piqray
and faslodex injections , moment she starts with the
piqray
she starts losing taste and cannot eat anything .
Innira
in
SHARE Metastatic Breast Cancer
3 years ago
Fenbendazole
I’ve gone through 3 oral chemo, Ibrance, 11 month,
Piqray
10 days and now Xeloda had stopped working after 5 months. Started Joe’s protocol 6/19/21.
I’ve gone through 3 oral chemo, Ibrance, 11 month,
Piqray
10 days and now Xeloda had stopped working after 5 months. Started Joe’s protocol 6/19/21.
Kellyonekanobe
in
SHARE Metastatic Breast Cancer
3 years ago
Piqray
I will start on
piqray
soon. Has anyone been on this? Side effects?
I will start on
piqray
soon. Has anyone been on this? Side effects?
scarlson24
in
SHARE Metastatic Breast Cancer
3 years ago
Hair falling out with Piqray?
I was just wondering if anyone else is experiencing more hair loss since starting on
Piqray
.
I was just wondering if anyone else is experiencing more hair loss since starting on
Piqray
.
Lolli2020
in
SHARE Metastatic Breast Cancer
3 years ago
Taxol or Piqray
Everything I read about
Piqray
scares me. I still want to have quality of life. My daughter is starting college and I want to be able to watch her play her sport. TAI
Everything I read about
Piqray
scares me. I still want to have quality of life. My daughter is starting college and I want to be able to watch her play her sport. TAI
Wildcat1
in
My Ovacome
3 years ago
Is anyone taking Alpelisib/Piqray in Australia?
I have the PIK3CA mutation and have recently started taking Alpelisib. I’d love to hear from anyone else living in Australia who is also on this drug. Thanks so much!
I have the PIK3CA mutation and have recently started taking Alpelisib. I’d love to hear from anyone else living in Australia who is also on this drug. Thanks so much!
NewZealander
in
SHARE Metastatic Breast Cancer
3 years ago
Just started Piqray - now w/ rash
I have a PIK3CA mutation - so 1st of June I started on
Piqray
(alpelisib) and fulvestrant injections (ER strongly +, PR-, HER2-). Now by day 9/10, I've got a pretty decent rash over much of my body. A known side effect. It doesn't itch really, but its pretty extensive.
I have a PIK3CA mutation - so 1st of June I started on
Piqray
(alpelisib) and fulvestrant injections (ER strongly +, PR-, HER2-). Now by day 9/10, I've got a pretty decent rash over much of my body. A known side effect. It doesn't itch really, but its pretty extensive.
tab78FN
in
SHARE Metastatic Breast Cancer
3 years ago
Piqray
I've just learned I have the
Piqray
mutation and will be starting on it as soon as I get approval from insurance. For anyone else with experience with
Piqray
, I would appreciate any info you can share. The only real side effect with Ibrance was fatigue and it would come and go in waves.
I've just learned I have the
Piqray
mutation and will be starting on it as soon as I get approval from insurance. For anyone else with experience with
Piqray
, I would appreciate any info you can share. The only real side effect with Ibrance was fatigue and it would come and go in waves.
bankusboysmom
in
SHARE Metastatic Breast Cancer
4 years ago
Loss of taste buds
Has anyone experienced total loss of taste while on
Piqray
and fulvestrant? Can you ever get your taste buds back?
Has anyone experienced total loss of taste while on
Piqray
and fulvestrant? Can you ever get your taste buds back?
Remyan
in
SHARE Metastatic Breast Cancer
4 years ago
Piqray tolerable by anyone
Read with great interest posts about
Piqray
. I am waiting to see if I have the mutation. After being on Ibrance and Faslodex for a year with no progression, that all changed quickly so on to next line of treatment. Has anyone taken
Piqray
and experienced tolerable side effects?
Read with great interest posts about
Piqray
. I am waiting to see if I have the mutation. After being on Ibrance and Faslodex for a year with no progression, that all changed quickly so on to next line of treatment. Has anyone taken
Piqray
and experienced tolerable side effects?
ndastrogal
in
SHARE Metastatic Breast Cancer
4 years ago
PIK3CA mutation and Piqray with Faslodex (Fulvestrant)
Anyone on the combination of
Piqray
and Faslodex? Its hard not to freak when I read up on this type of mutation. Any insight, advise, commentary is definitely welcomed ! Thank you in Advance !
Anyone on the combination of
Piqray
and Faslodex? Its hard not to freak when I read up on this type of mutation. Any insight, advise, commentary is definitely welcomed ! Thank you in Advance !
Adele_Julia
in
SHARE Metastatic Breast Cancer
4 years ago
Osteoporosis Made Worse by Piqray & fulvestrant?
Has anyone had spinal compression fractures from osteoporosis while on these meds?
Has anyone had spinal compression fractures from osteoporosis while on these meds?
Remyan
in
SHARE Metastatic Breast Cancer
4 years ago
What can I do or take to get of Piqray without headaches!]
Hi all, I am having to get off
Piqray
to have surgery and to be accessed for a trial drug. The problem is I can not go cold turkey because of the massive headaches I have been getting every time I don't use the
Piqray
.
Hi all, I am having to get off
Piqray
to have surgery and to be accessed for a trial drug. The problem is I can not go cold turkey because of the massive headaches I have been getting every time I don't use the
Piqray
.
Gaily71
in
SHARE Metastatic Breast Cancer
4 years ago
Lung Ground Glass Opacities
She’s BRCA positive so Lynparza will probably be our next step before
Piqray
(which seems to have much worse side effects). Has anyone had similar experiences with ground glass opacities in their lungs, and if so were they confirmed to be metastatic spread?
She’s BRCA positive so Lynparza will probably be our next step before
Piqray
(which seems to have much worse side effects). Has anyone had similar experiences with ground glass opacities in their lungs, and if so were they confirmed to be metastatic spread?
Half-Full
in
SHARE Metastatic Breast Cancer
4 years ago
New METS found in recent PET. Changing to Piqray
I'll finish the 2 1/2 weeks I have left on the Verzenio, then do a wash out for 2 weeks and start
Piqray
. Wondering what experiences anyone has had with this treatment. I'll continue to get monthly Faslodex shots and Zometa every 3 months.
I'll finish the 2 1/2 weeks I have left on the Verzenio, then do a wash out for 2 weeks and start
Piqray
. Wondering what experiences anyone has had with this treatment. I'll continue to get monthly Faslodex shots and Zometa every 3 months.
Lolli2020
in
SHARE Metastatic Breast Cancer
4 years ago
Bone Mets
If so, I will start
piqray
with faslodex (which I currently do)..If no mutation he will start me on affinator (again w faslodex). He feels these are better second lines of treatment now that there is more bone activity.
If so, I will start
piqray
with faslodex (which I currently do)..If no mutation he will start me on affinator (again w faslodex). He feels these are better second lines of treatment now that there is more bone activity.
ndastrogal
in
SHARE Metastatic Breast Cancer
4 years ago
Xeloda failed after only 2 cycles
Ibrance, then
Piqray
now Xeloda. I am really worried. I spoke with my oncologist yesterday and there are 3 classes of IV Chemos. Xeloda, Taxols and Doxils. It looks like I'm on to Doxil after a liver biopsy. But I am only 52, with 4 kids from 12 to 22.
Ibrance, then
Piqray
now Xeloda. I am really worried. I spoke with my oncologist yesterday and there are 3 classes of IV Chemos. Xeloda, Taxols and Doxils. It looks like I'm on to Doxil after a liver biopsy. But I am only 52, with 4 kids from 12 to 22.
klhowe
in
SHARE Metastatic Breast Cancer
4 years ago
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