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Piqray
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Just started Piqray - now w/ rash
I have a PIK3CA mutation - so 1st of June I started on
Piqray
(alpelisib) and fulvestrant injections (ER strongly +, PR-, HER2-). Now by day 9/10, I've got a pretty decent rash over much of my body. A known side effect. It doesn't itch really, but its pretty extensive.
I have a PIK3CA mutation - so 1st of June I started on
Piqray
(alpelisib) and fulvestrant injections (ER strongly +, PR-, HER2-). Now by day 9/10, I've got a pretty decent rash over much of my body. A known side effect. It doesn't itch really, but its pretty extensive.
tab78FN
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SHARE Metastatic Breast Cancer
3 years ago
Is anyone taking Alpelisib/Piqray in Australia?
I have the PIK3CA mutation and have recently started taking Alpelisib. I’d love to hear from anyone else living in Australia who is also on this drug. Thanks so much!
I have the PIK3CA mutation and have recently started taking Alpelisib. I’d love to hear from anyone else living in Australia who is also on this drug. Thanks so much!
NewZealander
in
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3 years ago
Piqray
I've just learned I have the
Piqray
mutation and will be starting on it as soon as I get approval from insurance. For anyone else with experience with
Piqray
, I would appreciate any info you can share. The only real side effect with Ibrance was fatigue and it would come and go in waves.
I've just learned I have the
Piqray
mutation and will be starting on it as soon as I get approval from insurance. For anyone else with experience with
Piqray
, I would appreciate any info you can share. The only real side effect with Ibrance was fatigue and it would come and go in waves.
bankusboysmom
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SHARE Metastatic Breast Cancer
3 years ago
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Loss of taste buds
Has anyone experienced total loss of taste while on
Piqray
and fulvestrant? Can you ever get your taste buds back?
Has anyone experienced total loss of taste while on
Piqray
and fulvestrant? Can you ever get your taste buds back?
Remyan
in
SHARE Metastatic Breast Cancer
3 years ago
Piqray tolerable by anyone
Read with great interest posts about
Piqray
. I am waiting to see if I have the mutation. After being on Ibrance and Faslodex for a year with no progression, that all changed quickly so on to next line of treatment. Has anyone taken
Piqray
and experienced tolerable side effects?
Read with great interest posts about
Piqray
. I am waiting to see if I have the mutation. After being on Ibrance and Faslodex for a year with no progression, that all changed quickly so on to next line of treatment. Has anyone taken
Piqray
and experienced tolerable side effects?
ndastrogal
in
SHARE Metastatic Breast Cancer
3 years ago
PIK3CA mutation and Piqray with Faslodex (Fulvestrant)
Anyone on the combination of
Piqray
and Faslodex? Its hard not to freak when I read up on this type of mutation. Any insight, advise, commentary is definitely welcomed ! Thank you in Advance !
Anyone on the combination of
Piqray
and Faslodex? Its hard not to freak when I read up on this type of mutation. Any insight, advise, commentary is definitely welcomed ! Thank you in Advance !
Adele_Julia
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3 years ago
Osteoporosis Made Worse by Piqray & fulvestrant?
Has anyone had spinal compression fractures from osteoporosis while on these meds?
Has anyone had spinal compression fractures from osteoporosis while on these meds?
Remyan
in
SHARE Metastatic Breast Cancer
3 years ago
What can I do or take to get of Piqray without headaches!]
Hi all, I am having to get off
Piqray
to have surgery and to be accessed for a trial drug. The problem is I can not go cold turkey because of the massive headaches I have been getting every time I don't use the
Piqray
.
Hi all, I am having to get off
Piqray
to have surgery and to be accessed for a trial drug. The problem is I can not go cold turkey because of the massive headaches I have been getting every time I don't use the
Piqray
.
Gaily71
in
SHARE Metastatic Breast Cancer
4 years ago
Lung Ground Glass Opacities
She’s BRCA positive so Lynparza will probably be our next step before
Piqray
(which seems to have much worse side effects). Has anyone had similar experiences with ground glass opacities in their lungs, and if so were they confirmed to be metastatic spread?
She’s BRCA positive so Lynparza will probably be our next step before
Piqray
(which seems to have much worse side effects). Has anyone had similar experiences with ground glass opacities in their lungs, and if so were they confirmed to be metastatic spread?
Half-Full
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3 years ago
New METS found in recent PET. Changing to Piqray
I'll finish the 2 1/2 weeks I have left on the Verzenio, then do a wash out for 2 weeks and start
Piqray
. Wondering what experiences anyone has had with this treatment. I'll continue to get monthly Faslodex shots and Zometa every 3 months.
I'll finish the 2 1/2 weeks I have left on the Verzenio, then do a wash out for 2 weeks and start
Piqray
. Wondering what experiences anyone has had with this treatment. I'll continue to get monthly Faslodex shots and Zometa every 3 months.
Lolli2020
in
SHARE Metastatic Breast Cancer
4 years ago
Bone Mets
If so, I will start
piqray
with faslodex (which I currently do)..If no mutation he will start me on affinator (again w faslodex). He feels these are better second lines of treatment now that there is more bone activity.
If so, I will start
piqray
with faslodex (which I currently do)..If no mutation he will start me on affinator (again w faslodex). He feels these are better second lines of treatment now that there is more bone activity.
ndastrogal
in
SHARE Metastatic Breast Cancer
4 years ago
Xeloda failed after only 2 cycles
Ibrance, then
Piqray
now Xeloda. I am really worried. I spoke with my oncologist yesterday and there are 3 classes of IV Chemos. Xeloda, Taxols and Doxils. It looks like I'm on to Doxil after a liver biopsy. But I am only 52, with 4 kids from 12 to 22.
Ibrance, then
Piqray
now Xeloda. I am really worried. I spoke with my oncologist yesterday and there are 3 classes of IV Chemos. Xeloda, Taxols and Doxils. It looks like I'm on to Doxil after a liver biopsy. But I am only 52, with 4 kids from 12 to 22.
klhowe
in
SHARE Metastatic Breast Cancer
4 years ago
Piqray or Xeloda? What were your experience?
Piqray
pros - targets my mutation. Xeloda pros - side effects not as bad as
Piqray
. More established drug. Onc sees good results and patients on it for years. Xeloda cons - not as targeted as
Piqray
. I would be grateful for your suggestions, recommendations, thoughts to help me choose.
Piqray
pros - targets my mutation. Xeloda pros - side effects not as bad as
Piqray
. More established drug. Onc sees good results and patients on it for years. Xeloda cons - not as targeted as
Piqray
. I would be grateful for your suggestions, recommendations, thoughts to help me choose.
Jonesburger
in
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4 years ago
Drug
Hi anyone taking
piqray
just wondering if it is a treatment in Britain/N H S
Hi anyone taking
piqray
just wondering if it is a treatment in Britain/N H S
Elizz
in
SHARE Metastatic Breast Cancer
4 years ago
Piqray failed after 3 months, on to Xeloda
Hi, I really wanted
Piqray
to work. I took all the diarrhea and high blood sugar for the past 3 months. But the latest CT scan showed Liver Tumors increased in size and number. So, I'm on to Xeloda. Does anyone have advice or feedback on Xeloda? what to expect, tips, success stories?
Hi, I really wanted
Piqray
to work. I took all the diarrhea and high blood sugar for the past 3 months. But the latest CT scan showed Liver Tumors increased in size and number. So, I'm on to Xeloda. Does anyone have advice or feedback on Xeloda? what to expect, tips, success stories?
klhowe
in
SHARE Metastatic Breast Cancer
4 years ago
Pain between shoulder blades on upper back. back
I am currently taking a Faslodex injection once a month and with that Dr. recently added 300 mgs of
Piqray
. I got results from Pet scan and there was nothing new found. No new growth, thank God.
I am currently taking a Faslodex injection once a month and with that Dr. recently added 300 mgs of
Piqray
. I got results from Pet scan and there was nothing new found. No new growth, thank God.
rpeacock
in
SHARE Metastatic Breast Cancer
4 years ago
Endoscopy results
I’m going to ask about getting the gene test to see if I’m a candidate for
Piqray
. I know you have to have the gene. I read where NeoGenomics can take a biopsy sample and test it.
I’m going to ask about getting the gene test to see if I’m a candidate for
Piqray
. I know you have to have the gene. I read where NeoGenomics can take a biopsy sample and test it.
KMBL_
in
SHARE Metastatic Breast Cancer
4 years ago
Piqray
She did not have a good result with Ibrance and now they changed her to
Piqray
. What experience have any of you had with this new medicine. Love to all. 💕
She did not have a good result with Ibrance and now they changed her to
Piqray
. What experience have any of you had with this new medicine. Love to all. 💕
Maludagui
in
SHARE Metastatic Breast Cancer
4 years ago
Starting new treatment with Piqray
Hi all, Has anyone started treatment on
Piqray
? I was on Ibrance but I have a mutant on that will not work with ibrance. New treatment is faslodex ( used before),
Piqray
and aroasin. Please share your experience on the
Piqray
and aromasin!
Hi all, Has anyone started treatment on
Piqray
? I was on Ibrance but I have a mutant on that will not work with ibrance. New treatment is faslodex ( used before),
Piqray
and aroasin. Please share your experience on the
Piqray
and aromasin!
Gaily71
in
SHARE Metastatic Breast Cancer
4 years ago
Piqray and fasrodex
I have bone meets and it seems that now my liver might be affected My onco is suggesting
Piqray
and the side effects are frightening I think that it will impact my life such that I will be unable to work and function Anyone on
Piqray
I am also exploring Iscador mistletoe,,, not si available here but
I have bone meets and it seems that now my liver might be affected My onco is suggesting
Piqray
and the side effects are frightening I think that it will impact my life such that I will be unable to work and function Anyone on
Piqray
I am also exploring Iscador mistletoe,,, not si available here but
equavel
in
SHARE Metastatic Breast Cancer
4 years ago
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