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Piqray
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Does anyone have experience with Enhertu? I was HER2 - low in 2019 and my last liver biopsy was HER2 - 0. Planning to start Enhertu next.
Here is what I’ve been on so far: 1) Fulvestrant and Fasoldex/Pablociclib for 15 months - stopped due to progression in the bone 2)
Piqray
/Alpelesib and Letrozole for 1 month - had to stop due to severe rash 3) Afinitor/Everolimus and exemestane for 8 months - stopped due to pneumonitis and progression
Here is what I’ve been on so far: 1) Fulvestrant and Fasoldex/Pablociclib for 15 months - stopped due to progression in the bone 2)
Piqray
/Alpelesib and Letrozole for 1 month - had to stop due to severe rash 3) Afinitor/Everolimus and exemestane for 8 months - stopped due to pneumonitis and progression
Sparky95
in
SHARE Metastatic Breast Cancer
2 years ago
Order of treatment- so many different ones!!
I’m thinking about my sister moving from Ibrance and exemesane to
Piqray
and Fulvestrant. Isn’t there anything in between? Is this where a second option can be useful? Would love to know how others handle this?
I’m thinking about my sister moving from Ibrance and exemesane to
Piqray
and Fulvestrant. Isn’t there anything in between? Is this where a second option can be useful? Would love to know how others handle this?
Jessie55
in
SHARE Metastatic Breast Cancer
2 years ago
Piqray and its side effects
Her first one on the list of
Piqray
. I have heard a lot of scary stories about
Piqray
. So, I'm hoping that anyone on it can let me know how their side effects played out, if they were able to be mitigated and controlled, and how well it has worked on the breast cancer.
Her first one on the list of
Piqray
. I have heard a lot of scary stories about
Piqray
. So, I'm hoping that anyone on it can let me know how their side effects played out, if they were able to be mitigated and controlled, and how well it has worked on the breast cancer.
Fiercefighter13
in
SHARE Metastatic Breast Cancer
2 years ago
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Piqray withdrawal
Are there withdrawal symptoms when stop taking
piqray
Are there withdrawal symptoms when stop taking
piqray
Kfhh
in
SHARE Metastatic Breast Cancer
2 years ago
Lobular progression to stomach and colon
I am pretty sure my oncologist will want to change out Verzenio to
Piqray
as the Verzenio switch was more or less a hail Mary pass and we weren't banking on a great result, but thought it was worth trying.
I am pretty sure my oncologist will want to change out Verzenio to
Piqray
as the Verzenio switch was more or less a hail Mary pass and we weren't banking on a great result, but thought it was worth trying.
Fiercefighter13
in
SHARE Metastatic Breast Cancer
2 years ago
Hi All
Feeling pretty bad after not tolerating
piqray
twice then ibrance not working and hormone blockers not working I have more lesions on my bone and will be starting taxol. Is anyone taking this and how bad is the hair loss, feeling miserable
Feeling pretty bad after not tolerating
piqray
twice then ibrance not working and hormone blockers not working I have more lesions on my bone and will be starting taxol. Is anyone taking this and how bad is the hair loss, feeling miserable
elle3054
in
SHARE Metastatic Breast Cancer
2 years ago
Those women where it spread to their liver??
Something about
piqray
(NOPE) and something called Enshur (I know that spelling is wrong), but the other two months on treatment did not work so I lost time by taking them. Thank you in advance.
Something about
piqray
(NOPE) and something called Enshur (I know that spelling is wrong), but the other two months on treatment did not work so I lost time by taking them. Thank you in advance.
kearnan
in
SHARE Metastatic Breast Cancer
2 years ago
Piqray isn’t on site’s list of meds
I tried to add
Piqray
to my treatment profile. How do we get health unlocked to update its list of possible MBC meds?
I tried to add
Piqray
to my treatment profile. How do we get health unlocked to update its list of possible MBC meds?
Buffwright
in
SHARE Metastatic Breast Cancer
2 years ago
Update
The have put me on Faslodex and
Piqray
. I did receive 2 shots of Faslodex while I was there however ai am not sure I will take the
piqray
. The side effects to that med is absolutely ridiculous and I want to live not die from the meds.
The have put me on Faslodex and
Piqray
. I did receive 2 shots of Faslodex while I was there however ai am not sure I will take the
piqray
. The side effects to that med is absolutely ridiculous and I want to live not die from the meds.
Itisfinished
in
SHARE Metastatic Breast Cancer
2 years ago
Piqray causing kidney failure
Has anyone been taken off
Piqray
because it caused kidney failure? If so, what drug did your Oncologist prescribe? Or did you do chemo? Thank you
Has anyone been taken off
Piqray
because it caused kidney failure? If so, what drug did your Oncologist prescribe? Or did you do chemo? Thank you
Gailcav
in
SHARE Metastatic Breast Cancer
2 years ago
Piqray or IV chemo
I would really like to try
Piqray
instead of IV chemo. Any positive thoughts or experience would help. Thank you Trying to keep up the good fight. Lori 🙏🏻
I would really like to try
Piqray
instead of IV chemo. Any positive thoughts or experience would help. Thank you Trying to keep up the good fight. Lori 🙏🏻
Jhshl512
in
SHARE Metastatic Breast Cancer
2 years ago
Hair loss - maybe from Piqray?
Hi Friends, I haven't been active for awhile - but I've been wondering if anyone else has experienced hair loss from taking
Piqray
.
Hi Friends, I haven't been active for awhile - but I've been wondering if anyone else has experienced hair loss from taking
Piqray
.
Lolli2020
in
SHARE Metastatic Breast Cancer
2 years ago
Piqray
Hi everyone, Going to start
piqray
soon for Pik3ca mutation and wondered of anyone is on it? Rox
Hi everyone, Going to start
piqray
soon for Pik3ca mutation and wondered of anyone is on it? Rox
Mcangel11
in
SHARE Metastatic Breast Cancer
2 years ago
I’ve recently completed my third round of IV chemo. I have Mets in my liver and bone. I’m going to start Faslodex / Piqray . Any suggestions
Faslodex or
Piqray
experiences
Faslodex or
Piqray
experiences
Rubyln15
in
SHARE Metastatic Breast Cancer
3 years ago
Petscan showed progression. Moving from Ibrance to Piqray. Terrified.
Now my onc is moving me to
Piqray
, Fulvestrant (which I'm already on) and adding Zometa for the bones. My question is what's next if
Piqray
stops working ! Maybe I'm reading Dr. Google too much but my understanding is
Piqray
is the only drug available for the Pic3K mutation.
Now my onc is moving me to
Piqray
, Fulvestrant (which I'm already on) and adding Zometa for the bones. My question is what's next if
Piqray
stops working ! Maybe I'm reading Dr. Google too much but my understanding is
Piqray
is the only drug available for the Pic3K mutation.
Adele_Julia
in
SHARE Metastatic Breast Cancer
3 years ago
Itching from Piqray….need relief!
I’m on
Piqray
, Fulvestrant and Xgeva. My torso and scalp have been super itchy of late. Does anyone have a treatment that works?
I’m on
Piqray
, Fulvestrant and Xgeva. My torso and scalp have been super itchy of late. Does anyone have a treatment that works?
Buffwright
in
SHARE Breast Cancer Support
3 years ago
Piqray
Any
Piqray
users? Any suggestions. Thanks Reenie
Any
Piqray
users? Any suggestions. Thanks Reenie
Rbeth
in
SHARE Metastatic Breast Cancer
3 years ago
Changing Meds to Xeloda/capecitabine
Since then I was on Ibrance/Pablociclib and Fulvestrant/Fasoldex then a short try with
Piqray
/Alpelesib (I developed the rash 3x so didn’t even make it through my first month). I was on Afinitor/Everolimus and Letrozole/Femara for 6 months.
Since then I was on Ibrance/Pablociclib and Fulvestrant/Fasoldex then a short try with
Piqray
/Alpelesib (I developed the rash 3x so didn’t even make it through my first month). I was on Afinitor/Everolimus and Letrozole/Femara for 6 months.
Sparky95
in
SHARE Metastatic Breast Cancer
3 years ago
MBC changing from oral chemo to drip
I took Ibrance for 11 months before it quit working, then a short 10 days on
Piqray
which sent me to the ER with anaphylactic shock. Now I’ve been on Xeloda for only five months and is no longer working. My cancer antigens are going up and cancer Mets on liver are growing.
I took Ibrance for 11 months before it quit working, then a short 10 days on
Piqray
which sent me to the ER with anaphylactic shock. Now I’ve been on Xeloda for only five months and is no longer working. My cancer antigens are going up and cancer Mets on liver are growing.
Kellyonekanobe
in
SHARE Metastatic Breast Cancer
3 years ago
Two weeks on Xeloda and high liver counts but low hemoglobin, calcium and platelets.
I have been on 4 lines of treatments (ibrance with examestane, ibrance with Faslodex,
Piqray
with Faslodex that caused me severe allergy and tamoxifen) My last Petct showed a wide progression to the bones and new met in liver.
I have been on 4 lines of treatments (ibrance with examestane, ibrance with Faslodex,
Piqray
with Faslodex that caused me severe allergy and tamoxifen) My last Petct showed a wide progression to the bones and new met in liver.
Cureforever
in
SHARE Metastatic Breast Cancer
3 years ago
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