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Experiences with
Permanent atrial fibrillation
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Having a STEMI in mid 40's...the search for underlying causes / answers for premature CHD.
Hi Everyone, My husband had a major STEMI in March 2023 with a full blockage of his circumflex artery. He was 44 years old and playing 5-a-side football in a local sports centre when he collapsed without warning. Thank goodness it happened there of all places however, as the swift actions of his team
Hi Everyone, My husband had a major STEMI in March 2023 with a full blockage of his circumflex artery. He was 44 years old and playing 5-a-side football in a local sports centre when he collapsed without warning. Thank goodness it happened there of all places however, as the swift actions of his team
Fortunate1
in
British Heart Foundation
2 months ago
Amitriptyline and Atrial Fibrillation
I am currently not on any meds for Fibro but have just seen a Pain Consultant who has suggested a trial of 10mg Amitriptylene. He is aware that I have AFib for which I take a blood thinner but says this is a very low dose although he has said I should be cautious.Has anyone else had experience of taking
I am currently not on any meds for Fibro but have just seen a Pain Consultant who has suggested a trial of 10mg Amitriptylene. He is aware that I have AFib for which I take a blood thinner but says this is a very low dose although he has said I should be cautious.Has anyone else had experience of taking
Jomaur
in
Fibromyalgia Action UK
11 months ago
Song and Dance ?
I was thinking of the best way to celebrate my eight month anniversary since my WMM (Wolf Mini Maze) in Tokyo by Dr Ohtsuka at the NewHeart Watanabe Hospital. I am still in NSR (normal sinus rhythm) and my divorce from AFib is finalised. As our friend Jim knows, I went a little mad (as you do) when
I was thinking of the best way to celebrate my eight month anniversary since my WMM (Wolf Mini Maze) in Tokyo by Dr Ohtsuka at the NewHeart Watanabe Hospital. I am still in NSR (normal sinus rhythm) and my divorce from AFib is finalised. As our friend Jim knows, I went a little mad (as you do) when
saulger
in
AF Association
11 months ago
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Atrial Fibrillation medication
Hi, I’m not sure how to proceed here. I’m just hoping someone else feels as frustrated as I do. I was told when I was diagnosed with AF over a year ago that I would be able to live a normal life. It wouldn’t impact on me and everything would carry on as usual. I haven’t found that to be true. My irregular
Hi, I’m not sure how to proceed here. I’m just hoping someone else feels as frustrated as I do. I was told when I was diagnosed with AF over a year ago that I would be able to live a normal life. It wouldn’t impact on me and everything would carry on as usual. I haven’t found that to be true. My irregular
SashaPooch
in
AF Association
11 months ago
Ablation for all types of AF?
I was reading a recent post - To 'ablate or not to ablate' by Tamgirl. Most responses were yes to ablation. I ask this question of everybody on each side of the fence. Do you know what type of AF you have? Your type of AF may have had a bearing on your decision to ablate or hold of on ablation. Vagal
I was reading a recent post - To 'ablate or not to ablate' by Tamgirl. Most responses were yes to ablation. I ask this question of everybody on each side of the fence. Do you know what type of AF you have? Your type of AF may have had a bearing on your decision to ablate or hold of on ablation. Vagal
OzRob
in
AF Association
11 months ago
just had a pacemaker cardioverter defibrillator fitted
hi I’m 18 years old and I’ve been fitted with a new pacemaker defibrillator fitted I was vvvvrushed in because my old pacemaker got infected I’ve also had a mechanical valve fitted can anyone advise me can you live a normal life
hi I’m 18 years old and I’ve been fitted with a new pacemaker defibrillator fitted I was vvvvrushed in because my old pacemaker got infected I’ve also had a mechanical valve fitted can anyone advise me can you live a normal life
Sweetgabby
in
British Heart Foundation
3 months ago
I/V ICD update on query 15 days ago
I posted a query on experience of having a Boston Instruments I/V cardioverter defibrillator fitted as I was getting bumps and beats since the implant three weeks ago. I gave feedback following contact with the hospital who advised me no issues and I needed to let it settle down.Today I took a call
I posted a query on experience of having a Boston Instruments I/V cardioverter defibrillator fitted as I was getting bumps and beats since the implant three weeks ago. I gave feedback following contact with the hospital who advised me no issues and I needed to let it settle down.Today I took a call
Chinkoflight
in
Atrial Fibrillation Support
3 months ago
What would you expect?
Hi Everyone, Just thought I’d ask here as the help I’ve received on here has been invaluable. Since my Cardioversion in Jan 2022 I have been in a sinus rhythm. I was originally told prior to the Cardioversion that if 6 months after I’m still in a sinus rhythm. I would be able to come off the edoxaban
Hi Everyone, Just thought I’d ask here as the help I’ve received on here has been invaluable. Since my Cardioversion in Jan 2022 I have been in a sinus rhythm. I was originally told prior to the Cardioversion that if 6 months after I’m still in a sinus rhythm. I would be able to come off the edoxaban
wordzo
in
AF Association
11 months ago
Post ablation short of breath
I am 74 years old. I had a catheter ablation 3 days ago having been in permanent Afib for 5 months. I have suffered from asthma since childhood & have an FEV of a 90 year old, or so I'm told. Nevertheless I was 3 months trekking in Nepal recently (Nov to January this year), hiking to 5,400 metres and
I am 74 years old. I had a catheter ablation 3 days ago having been in permanent Afib for 5 months. I have suffered from asthma since childhood & have an FEV of a 90 year old, or so I'm told. Nevertheless I was 3 months trekking in Nepal recently (Nov to January this year), hiking to 5,400 metres and
jnbee
in
Atrial Fibrillation Support
11 months ago
A DNA test, a book and a diet - my AFib Eureka moment !
First I wanted to say what a fantastic group this is and just how much it has supported, reassured and lifted me on my Afib journey, it’s been invaluable I’m a 61 year old woman with paroxysmal lone Afib, possibly SVT too. My story in brief is that I was diagnosed 3 years ago after my Fitbit showed
First I wanted to say what a fantastic group this is and just how much it has supported, reassured and lifted me on my Afib journey, it’s been invaluable I’m a 61 year old woman with paroxysmal lone Afib, possibly SVT too. My story in brief is that I was diagnosed 3 years ago after my Fitbit showed
Dyldog
in
Arrhythmia Alliance
1 year ago
A DNA test, a book and a diet - AFib Eureka moment !
First I wanted to say what a fantastic group this is and just how much it has supported, reassured and lifted me on my AFib journey, it’s been invaluable I’m a 61 year old woman with paroxysmal lone AFib, possibly SVT too. My story in brief is that I was diagnosed 3 years ago after my Fitbit showed
First I wanted to say what a fantastic group this is and just how much it has supported, reassured and lifted me on my AFib journey, it’s been invaluable I’m a 61 year old woman with paroxysmal lone AFib, possibly SVT too. My story in brief is that I was diagnosed 3 years ago after my Fitbit showed
Dyldog
in
AF Association
1 year ago
PAF - move to PiP only
Hi Can anyone tell me of their experiences of moving from daily medication (Flecainide) to PiP only? Heart attack in 2019, out of the blue - fit & healthy. Investigations - no real culprit - eventually a few months later, after symptoms & further investigations, diagnosed with paroxysmal AFib. Basically
Hi Can anyone tell me of their experiences of moving from daily medication (Flecainide) to PiP only? Heart attack in 2019, out of the blue - fit & healthy. Investigations - no real culprit - eventually a few months later, after symptoms & further investigations, diagnosed with paroxysmal AFib. Basically
AAJJTt
in
Atrial Fibrillation Support
1 year ago
Two interesting articles
Here are links to two interesting articles. The first one details the benefits of exercise in preventing AF (it’s not clear if this applies to those who already have AF). The second-an older one which has been posted before but can probably stand repetition-details the negative effects of even small
Here are links to two interesting articles. The first one details the benefits of exercise in preventing AF (it’s not clear if this applies to those who already have AF). The second-an older one which has been posted before but can probably stand repetition-details the negative effects of even small
Samazeuilh2
in
Atrial Fibrillation Support
1 year ago
What is Left Atrial Rhythm and is it related to Afib?
I have paroxysmal Afib, which appears to be well managed with Flecainide and Metoprolol. I am having an unrelated medical procedure next week so my anaesthetist sent me for an ECG, which I had to drop back to her office. After getting the ECG done by a nurse at my local GP's rooms, the nurse took the
I have paroxysmal Afib, which appears to be well managed with Flecainide and Metoprolol. I am having an unrelated medical procedure next week so my anaesthetist sent me for an ECG, which I had to drop back to her office. After getting the ECG done by a nurse at my local GP's rooms, the nurse took the
bean_counter27
in
Atrial Fibrillation Support
1 year ago
Tom Lockyer: I was technically dead for two minutes 40 seconds after cardiac arrest
Tom Lockyer shares his story with BBC News stating that he was ‘technically dead’ for two minutes and forty seconds after his Sudden Cardiac Arrest in December: https://www.bbc.co.uk/sport/av/football/68346337 Without the use of an Automated External Defibrillator, he would not be alive today. Visit
Tom Lockyer shares his story with BBC News stating that he was ‘technically dead’ for two minutes and forty seconds after his Sudden Cardiac Arrest in December: https://www.bbc.co.uk/sport/av/football/68346337 Without the use of an Automated External Defibrillator, he would not be alive today. Visit
Lucy-Admin
Administrator
in
Supraventricular Tachycardia Support
3 months ago
Tom Lockyer: I was technically dead for two minutes 40 seconds after cardiac arrest
Tom Lockyer shares his story with BBC News stating that he was ‘technically dead’ for two minutes and forty seconds after his Sudden Cardiac Arrest in December: https://www.bbc.co.uk/sport/av/football/68346337 Without the use of an Automated External Defibrillator, he would not be alive today. Visit
Tom Lockyer shares his story with BBC News stating that he was ‘technically dead’ for two minutes and forty seconds after his Sudden Cardiac Arrest in December: https://www.bbc.co.uk/sport/av/football/68346337 Without the use of an Automated External Defibrillator, he would not be alive today. Visit
Lucy-Admin
Administrator
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
Tom Lockyer: I was technically dead for two minutes 40 seconds after cardiac arrest
Tom Lockyer shares his story with BBC News stating that he was ‘technically dead’ for two minutes and forty seconds after his Sudden Cardiac Arrest in December: https://www.bbc.co.uk/sport/av/football/68346337 Without the use of an Automated External Defibrillator, he would not be alive today. Visit
Tom Lockyer shares his story with BBC News stating that he was ‘technically dead’ for two minutes and forty seconds after his Sudden Cardiac Arrest in December: https://www.bbc.co.uk/sport/av/football/68346337 Without the use of an Automated External Defibrillator, he would not be alive today. Visit
Lucy-Admin
Administrator
in
Heart Rhythm Disorders Support
3 months ago
Tom Lockyer: I was technically dead for two minutes 40 seconds after cardiac arrest
Tom Lockyer shares his story with BBC News stating that he was ‘technically dead’ for two minutes and forty seconds after his Sudden Cardiac Arrest in December: https://www.bbc.co.uk/sport/av/football/68346337 Without the use of an Automated External Defibrillator, he would not be alive today. Visit
Tom Lockyer shares his story with BBC News stating that he was ‘technically dead’ for two minutes and forty seconds after his Sudden Cardiac Arrest in December: https://www.bbc.co.uk/sport/av/football/68346337 Without the use of an Automated External Defibrillator, he would not be alive today. Visit
Lucy-Admin
Administrator
in
Heart Failure Support
3 months ago
Flecainide, Diltiazem and Shortness of Breath
Anyone get shortness of breath (SOB) from Flecainide and/or Diltiazem -- not right away, but months later? For the first six months on both drugs, I had no SOB. For the second six months I had SOB. Now that I stopped both drugs, it seems better. Could be a coincidence, but looking for group experiences
Anyone get shortness of breath (SOB) from Flecainide and/or Diltiazem -- not right away, but months later? For the first six months on both drugs, I had no SOB. For the second six months I had SOB. Now that I stopped both drugs, it seems better. Could be a coincidence, but looking for group experiences
mjames1
in
Atrial Fibrillation Support
1 year ago
A question please
I had had bouts of Afib ranging on average of 12-18 hours a time for many years. I then had one of 55 hours 5 years ago. Then it was back to the usual pattern. Suddenly I’m into another long one? I have always self converted and never been to hospital, except twice in 18 years and that was with chest
I had had bouts of Afib ranging on average of 12-18 hours a time for many years. I then had one of 55 hours 5 years ago. Then it was back to the usual pattern. Suddenly I’m into another long one? I have always self converted and never been to hospital, except twice in 18 years and that was with chest
Frances123
in
AF Association
1 year ago
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