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Paroxysmal atrial fibrillation
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Update on trametinib (Mekinist) for low grade serous ovarian cancer
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
OvacomeSupport
My Ovacome Team
in
My Ovacome
9 months ago
Three weeks post ablation - slipped beats
Hi all. Had an ablation on Feb 9th. First two weeks were a breeze. Zero symptoms. On days 15 started getting skipped beats. Felt normal rhythm but the delay was hicupp/gurgling. Felt like frog was in my throat too. They don’t last long, usually less than 4 min. Goes back to normal sinus rhythm. Sometime
Hi all. Had an ablation on Feb 9th. First two weeks were a breeze. Zero symptoms. On days 15 started getting skipped beats. Felt normal rhythm but the delay was hicupp/gurgling. Felt like frog was in my throat too. They don’t last long, usually less than 4 min. Goes back to normal sinus rhythm. Sometime
Jcaskey
in
AF Association
1 year ago
clinical trial vyd222 monoclonal AB against covid update science 37
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
bachplayer13
in
CLL Support
9 months ago
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If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
9 months ago
newbie diagnosed with ectopic beats, but also paroxysmal atrial fibrillation
Had slow heart beat for 5 days with slight flutterings. Thought it was my Afib starting again. Had ecg at drs yesterday and was told it was ectopic beats. I’m not taking any medication , was on 2.5mg Bisoprolol as pill in pocket, but advised to stop it. It’s horrible, I have them all day,not sure why
Had slow heart beat for 5 days with slight flutterings. Thought it was my Afib starting again. Had ecg at drs yesterday and was told it was ectopic beats. I’m not taking any medication , was on 2.5mg Bisoprolol as pill in pocket, but advised to stop it. It’s horrible, I have them all day,not sure why
24623057
in
British Heart Foundation
2 years ago
pacemaker & defibrillator
I’ve been told I need a pacemaker/ Defibrillator fitted quite soon. My heart failure has only gone up from 33% to 35% heart pumping function and although stable my symptoms are worrying and I need help from these devices. My tablets can’t be increased as I have low blood pressure and would make my symptoms
I’ve been told I need a pacemaker/ Defibrillator fitted quite soon. My heart failure has only gone up from 33% to 35% heart pumping function and although stable my symptoms are worrying and I need help from these devices. My tablets can’t be increased as I have low blood pressure and would make my symptoms
honeybubs
in
British Heart Foundation
1 year ago
Atrial Fibulation from cancer treatment not standard Afib. Update post EP Consultation
Hello Everyone so as promised an update. I saw my EP on Friday. He explained that Afib usually occurs around certain sites in the left Atrium (? Is that the correct term) and these are the sites they target when doing an Ablation. He said when we do cryo we can't see where the electrical impulses are
Hello Everyone so as promised an update. I saw my EP on Friday. He explained that Afib usually occurs around certain sites in the left Atrium (? Is that the correct term) and these are the sites they target when doing an Ablation. He said when we do cryo we can't see where the electrical impulses are
waveylines
in
Atrial Fibrillation Support
1 year ago
Pacemaker implanted AV node ablated
Monday I had the rest of my surgery finished, and my pacemaker connected and AV node ablated. I have a new and different pacemaker if you did not see my previous posts. It is called.Azure by Medtronics and only approved in October by the FDA here in the states. According to my doctor prior to this,
Monday I had the rest of my surgery finished, and my pacemaker connected and AV node ablated. I have a new and different pacemaker if you did not see my previous posts. It is called.Azure by Medtronics and only approved in October by the FDA here in the states. According to my doctor prior to this,
DawnTX
in
AF Association
1 year ago
New clinical trial BNT152+153.
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
kklott01
in
Advanced Prostate Cancer
9 months ago
An update on new therapy clinical trial enrollment Phase I/II TheraPb clinical trial of ²¹²Pb-ADVC001 to treat PSMA-positive mCRPC
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
Maxone73
in
Advanced Prostate Cancer
9 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
9 months ago
Heart Rate 72 to 120 and back to 72. Has anyone had sporadic fluctuating rates like this? I’m in a dire straits 😕
This is new for me! I get an extreme headache when this happens and it also subsides also causes my BP to rise Last ablation successful I felt- watchman install- no anticoagulant- but 81 gram aspirin - used 30mg Ditalzam during blanking period- no problem No meds needed till NOW: tried 30mg Diltiazam
This is new for me! I get an extreme headache when this happens and it also subsides also causes my BP to rise Last ablation successful I felt- watchman install- no anticoagulant- but 81 gram aspirin - used 30mg Ditalzam during blanking period- no problem No meds needed till NOW: tried 30mg Diltiazam
Tantaanna
in
AF Association
1 year ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
9 months ago
clinical trials and dropped off a cliff
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Johnkelsey
in
Advanced Prostate Cancer
9 months ago
Do you live with advanced liver disease? Are you interested in attending an in-person workshop in Bristol or Liverpool this month?
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
BritishLiverTrust1
Partner
in
British Liver Trust
9 months ago
Metastic clear cell...
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
carrotmunch5
in
My Ovacome
9 months ago
Aspen Neuroscience Granted Fast Track Designation
FDA Grants Fast Track Designation to ANPD001, Autologous Investigational Cell Therapy for the Treatment of Parkinson’s Disease SAN DIEGO, Oct. 19, 2023 /PRNewswire/ — Aspen Neuroscience today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for ANPD001 for
FDA Grants Fast Track Designation to ANPD001, Autologous Investigational Cell Therapy for the Treatment of Parkinson’s Disease SAN DIEGO, Oct. 19, 2023 /PRNewswire/ — Aspen Neuroscience today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for ANPD001 for
redhawk1
in
Cure Parkinson's
9 months ago
Heavy arms and legs…
First time posting. Hello everyone. I was diagnosed with AF in October. It is present all the time - heart rate in 80’s and 90’s. I was aware my heart was racing & I felt tired & uncomfortable. I was immediately put on Apixaban & Bisoprolol. Having started medication my arms & legs became very heavy
First time posting. Hello everyone. I was diagnosed with AF in October. It is present all the time - heart rate in 80’s and 90’s. I was aware my heart was racing & I felt tired & uncomfortable. I was immediately put on Apixaban & Bisoprolol. Having started medication my arms & legs became very heavy
Heartening
in
Atrial Fibrillation Support
1 year ago
drug holiday
I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing days it’s taken. I would really appreciate any feed back. My story is I’ve got really good bloods now and have been taking ibrutinib for 4 years
I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing days it’s taken. I would really appreciate any feed back. My story is I’ve got really good bloods now and have been taking ibrutinib for 4 years
Zoethedog
in
CLL Support
9 months ago
Bayer Investing in New Cell Therapy Facility
Bayer Opens First Cell Therapy Manufacturing Facility to Advance Regenerative Medicines on a Global Scale $250 million (USD) plant will help produce transformational cell and gene therapies on a global scale Creating readiness for first production runs of potential commercial launches, including bemdaneprocel
Bayer Opens First Cell Therapy Manufacturing Facility to Advance Regenerative Medicines on a Global Scale $250 million (USD) plant will help produce transformational cell and gene therapies on a global scale Creating readiness for first production runs of potential commercial launches, including bemdaneprocel
redhawk1
in
Cure Parkinson's
9 months ago
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