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thrombotic thrombocytopenic purpura (TTP)
Warriors: Recently, I posted about 1 year side effects. Thank you for all of your responses. My SEs got the best of me and I’m writing from a hospital bed. The current theory is I have TTP, which is associated with hormonal therapy. I wanted to write and see if any of you have had the misfortune
Warriors: Recently, I posted about 1 year side effects. Thank you for all of your responses. My SEs got the best of me and I’m writing from a hospital bed. The current theory is I have TTP, which is associated with hormonal therapy. I wanted to write and see if any of you have had the misfortune
TMcgee
in
Advanced Prostate Cancer
8 months ago
Changing thyroid treatment and Testogel
Hi, I wonder if anyone can advise and apologies in advance for the long story! I consulted a private Endocrinologist and started taking Liothyronine in early October 1 x 5mg tablet 3 times a day. I was also on 25mg levothyroxine, 4pumps of estrogel, 2 tablets of progesterone and 1/8 pack of testogel
Hi, I wonder if anyone can advise and apologies in advance for the long story! I consulted a private Endocrinologist and started taking Liothyronine in early October 1 x 5mg tablet 3 times a day. I was also on 25mg levothyroxine, 4pumps of estrogel, 2 tablets of progesterone and 1/8 pack of testogel
Blu-cat11
in
Thyroid UK
8 months ago
Is it safe to use red light / near infrared therapy if you have Graves' disease?
Hi all, First a little bit of background about me. I am 49, living in Ireland. I have Graves's disease diagnosed by an endocrinologist who did antibody test etc.. After diagnosis I underwent 18 months on Carbimazole and then came off for a couple of months but my T3 and T4 shot back up again (and TSH
Hi all, First a little bit of background about me. I am 49, living in Ireland. I have Graves's disease diagnosed by an endocrinologist who did antibody test etc.. After diagnosis I underwent 18 months on Carbimazole and then came off for a couple of months but my T3 and T4 shot back up again (and TSH
MyNameIsAugust
in
Thyroid UK
11 months ago
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Adenomyosis, should I have hysterectomy?
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
mavenmi
in
Endometriosis UK
8 months ago
Prostate cancer treatment and IBS
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
merve1
in
IBS Network
8 months ago
I am still struggling with treatment decisions - Help please.
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
Nordman
in
Advanced Prostate Cancer
6 months ago
Soy concerns
Hi, I have been focusing on the nutrition posts to improve my diet as I have osteopenia. I am reading a lot of posts and articles saying to incorporate soy. I stay away from soy because of breast cancer risks. I don't have breast cancer but avoid any estrogen enhancing products/medication like hormone
Hi, I have been focusing on the nutrition posts to improve my diet as I have osteopenia. I am reading a lot of posts and articles saying to incorporate soy. I stay away from soy because of breast cancer risks. I don't have breast cancer but avoid any estrogen enhancing products/medication like hormone
Truth-seeker1951
in
Bone Health and Osteoporosis UK
8 months ago
Importance of ADT
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
vintage42
in
Advanced Prostate Cancer
7 months ago
Helpful group
Hello All, This group has been very helpful in providing information and suggestions on PC. I was diagnosed in Sept. 23 as Stage 4, Gleason 7 with all core samples testing positive and one met to the sacrum. Just completed 28 rounds of IMRT and have been on Lupron, Xtandi and Zometa for the last two
Hello All, This group has been very helpful in providing information and suggestions on PC. I was diagnosed in Sept. 23 as Stage 4, Gleason 7 with all core samples testing positive and one met to the sacrum. Just completed 28 rounds of IMRT and have been on Lupron, Xtandi and Zometa for the last two
Jeffdanger
in
Advanced Prostate Cancer
6 months ago
Should I have a hysterectomy?
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
The short version is that I have adenomyosis, but it is well enough managed on zoladex/Tibolone that I'm not having any significant pain and not bleeding enough that it is a problem, but I do have lots of more minor issues and my consultant thinks a hysterectomy would be better. I've got the op booked
mavenmi
in
Menopause and Perimenopause Support
8 months ago
The importance of training your legs (if you can, of course)
Engaging in fitness activities is considered a standard of care (SOC) for many cancer patients, not only because it enhances overall health but also due to the chemical interactions between muscles and cancer cells. Comprehensive body training is essential, with an emphasis on targeting the body's largest
Engaging in fitness activities is considered a standard of care (SOC) for many cancer patients, not only because it enhances overall health but also due to the chemical interactions between muscles and cancer cells. Comprehensive body training is essential, with an emphasis on targeting the body's largest
Maxone73
in
Advanced Prostate Cancer
8 months ago
subclinical - do I need levo?
I have been borderline Subclinical hypothyroidism for around 10 years. The GP put me on levothyroxine 2013, I took a low dose for a month or two but couldn’t tolerate it (palpitations), so I stopped. I was referred to Endo who did a check on my antibodies - was clear. Every year, my tsh was either just
I have been borderline Subclinical hypothyroidism for around 10 years. The GP put me on levothyroxine 2013, I took a low dose for a month or two but couldn’t tolerate it (palpitations), so I stopped. I was referred to Endo who did a check on my antibodies - was clear. Every year, my tsh was either just
Rambler16
in
Thyroid UK
8 months ago
Locally Advanced PC - should I accept offer of docetaxel?
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
Hi I'm UK based, new to Health Unlocked and just starting to get to grips with the chats. I was diagnosed August '23 with locally advanced PV. Spread has occurred to a seminal vesicle and, very slightly, to a pelvic lymph node (Oncologist called it 'subtle') Gleason of 4+5. I immediately embarked
TsarskoMomche
in
Advanced Prostate Cancer
8 months ago
Why not give Hyperbaric Oxygen Therapy (HBOT) as Adjunctive Therapy a Try?
I am thinking this will likely be my last post, unless something dramatic shakes out. Remember LTC CHESTY PULLER'S, USMC, comment, Battle of the Chosin Resvoir, North Korea, 1950. "The bas..... are in front of us and at our rear. They are on our right flank and our left flank. They won't get
I am thinking this will likely be my last post, unless something dramatic shakes out. Remember LTC CHESTY PULLER'S, USMC, comment, Battle of the Chosin Resvoir, North Korea, 1950. "The bas..... are in front of us and at our rear. They are on our right flank and our left flank. They won't get
Isthistheone
in
Cure Parkinson's
11 months ago
Androstenedione & Frailty
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
pca2004
in
Fight Prostate Cancer
8 months ago
ART NIH Predicting the Outcome of Salvage Radiation Therapy for Recurrent Prostate Cancer After Radical Prostatectomy
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
RMontana
in
Active Surveillance - Prostate Cancer
10 months ago
hormonnes .. are they ok or not
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
have been unwel for over 4 years now I have fibromyalgia since 2014 which I managed fine until 4/5 years ago became increased unwel daily .. have had to leave my job now due to ill health … recently had health check to see if could help as GP kept saying all in my head … results for Hormonnes were as
kes2008
in
Menopause and Perimenopause Support
8 months ago
Speechless by my GP’s response
I messaged my GP surgery and requested a full thyroid blood test (not just TSH which is all I’ve been able to get since COVID) as well as iron, vits B and D tests. I’ve been feeling really rotten, and want to look at every potential reason. Now, bear in mind I have been on HRT (prescribed by them) for
I messaged my GP surgery and requested a full thyroid blood test (not just TSH which is all I’ve been able to get since COVID) as well as iron, vits B and D tests. I’ve been feeling really rotten, and want to look at every potential reason. Now, bear in mind I have been on HRT (prescribed by them) for
Partiallythere
in
Thyroid UK
8 months ago
Where do I go for alternative to continuous ADT?
I am 63 yrs old and was diagnosed in March '23 with mHSPC, w/ multiple mets in lungs, bones and lymph glands. Began triplet therapy in April: Eligard shot every 3 months, Nubequa daily, and 6 rounds of docetaxel. SE's have been mild. I want to an alternative to continuous ADT, whether its IADT, BAT
I am 63 yrs old and was diagnosed in March '23 with mHSPC, w/ multiple mets in lungs, bones and lymph glands. Began triplet therapy in April: Eligard shot every 3 months, Nubequa daily, and 6 rounds of docetaxel. SE's have been mild. I want to an alternative to continuous ADT, whether its IADT, BAT
Forest1160
in
Fight Prostate Cancer
8 months ago
Does HRT cause weight gain?
Did you gain any weight when you talk HRT? I'm very concerned about this as I've read several reviews of people saying that they did and I haven't eaten disorder so that kind of thing terrifies me.
Did you gain any weight when you talk HRT? I'm very concerned about this as I've read several reviews of people saying that they did and I haven't eaten disorder so that kind of thing terrifies me.
Hidden
in
Women's Health
8 months ago
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