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Non-small-cell lung carcinoma
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Never Give Up! Always Have Fun
Hi I m new to Health Unlock, I am a survivor of Thyroid,Breast and Lung Cancer, nothing related. I was first diagnosed with thyroid cancer in 1991, breast May 2006 followed by Lung in July 2006 ( not a good year). I participated in a phase 2 experimental study of Tarcevia. I am excited to say I closed
Hi I m new to Health Unlock, I am a survivor of Thyroid,Breast and Lung Cancer, nothing related. I was first diagnosed with thyroid cancer in 1991, breast May 2006 followed by Lung in July 2006 ( not a good year). I participated in a phase 2 experimental study of Tarcevia. I am excited to say I closed
SBLT
in
Lung Cancer Support
7 years ago
Traveling abroad
Need to travel abroad my son is getting married outside of London. I need a double lung transplant and I'm 100% dependent on oxygen can anybody give me guidance on how to do this
Need to travel abroad my son is getting married outside of London. I need a double lung transplant and I'm 100% dependent on oxygen can anybody give me guidance on how to do this
joanie44
in
COPD Friends
7 years ago
Come along to our Young people versus blood cancer day on the 23rd September 2017 in London , book your free place now.
Free place , register now , this day is for nurses in the morning but also patients and carers in the afternoon . Lots of talks on fertility , getting back to work, stem cell transplantation and much more. http://www.leukaemiacare.org.uk/patient-and-carer-conferences
Free place , register now , this day is for nurses in the morning but also patients and carers in the afternoon . Lots of talks on fertility , getting back to work, stem cell transplantation and much more. http://www.leukaemiacare.org.uk/patient-and-carer-conferences
Esther07
in
Leukaemia Support
7 years ago
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Singing with the Wigan warblers more improvements means no rush to surgeries
Check up after my cat scan was expecting to hear if suitable for endobroncial valves Feb 2016 referral for lung transplant assessment fev1 had dropped to 29% August 2016 fev1 45% everything else still poor repeat cat scan in new year Yesterday fev1 still 40% gas transfer low but walking abilities 50%
Check up after my cat scan was expecting to hear if suitable for endobroncial valves Feb 2016 referral for lung transplant assessment fev1 had dropped to 29% August 2016 fev1 45% everything else still poor repeat cat scan in new year Yesterday fev1 still 40% gas transfer low but walking abilities 50%
1hopefuture
in
Lung Conditions Community Forum
7 years ago
New patient-driven group for EGFR patients with resistance to targeted treatment
In case anyone has been wondering what I've been doing lately, I've been working on this project with 3 other EGFR+ lung cancer patients. A new patient-driven group is forming for lung cancer patients with EGFR mutations who have developed resistance to at least one EGFR targeted treatment drug. This
In case anyone has been wondering what I've been doing lately, I've been working on this project with 3 other EGFR+ lung cancer patients. A new patient-driven group is forming for lung cancer patients with EGFR mutations who have developed resistance to at least one EGFR targeted treatment drug. This
scifiknitter
Blogger
in
Lung Cancer Support
7 years ago
Chest infection?
I have severe breathing problems and on non invasive ventilation. I just wanna know I don't feel too good. My chest feels heavy and painful but can you have a chest infection without a cold & cough? & when I take my ventilator mask off my SATs drop & i am breathless. I suffer from pneumonia a lot
I have severe breathing problems and on non invasive ventilation. I just wanna know I don't feel too good. My chest feels heavy and painful but can you have a chest infection without a cold & cough? & when I take my ventilator mask off my SATs drop & i am breathless. I suffer from pneumonia a lot
rawr_a_tiny_bit
in
Lung Conditions Community Forum
7 years ago
COPD OXYGEN
Hi my name is Linda, have COPD awaiting double lung transplant, just been put on oxygen 3Ltr 15 hrs, my 4yr old granddaughter stays once a week, can she still sleep with me in my bed, as I have oxygen through the night. Thanks for any replies :)
Hi my name is Linda, have COPD awaiting double lung transplant, just been put on oxygen 3Ltr 15 hrs, my 4yr old granddaughter stays once a week, can she still sleep with me in my bed, as I have oxygen through the night. Thanks for any replies :)
xxtango14459xx
in
Lung Conditions Community Forum
7 years ago
GP didn't order intrinsic factor test!
Hello, I went to my GP practice and got print-outs of all my blood test results, but discovered I never even had the IF test! Instead she did the gastric parietal cell antibody test (negative) as well as a number of others (all negative): Anti Mitochondrial Antibody Anti Smooth Muscle Antibody Liver
Hello, I went to my GP practice and got print-outs of all my blood test results, but discovered I never even had the IF test! Instead she did the gastric parietal cell antibody test (negative) as well as a number of others (all negative): Anti Mitochondrial Antibody Anti Smooth Muscle Antibody Liver
Curlygal
in
Pernicious Anaemia Society
7 years ago
GCA and Tocilizumab
I have just heard that I have funding and approval from the NHS to take Tocilizumab and will be having my first infusion this week or the week after. Then I have weekly injections after. I wondered if anyone knew if there are any immediate effects. Also do you go on taking other medications. I am on
I have just heard that I have funding and approval from the NHS to take Tocilizumab and will be having my first infusion this week or the week after. Then I have weekly injections after. I wondered if anyone knew if there are any immediate effects. Also do you go on taking other medications. I am on
christine2715
in
PMRGCAuk
7 years ago
*FREE INFORMATION DAY*Come along to our Young People Versus Blood Cancer Day Trekstock & Leukaemia CARE
Book your free place today , the afternoon session is for patients and carers and hosted jointly by Trekstok & Leukaemia CARE in London on the 23rd September. https://www.eventbrite.co.uk/e/young-people-against-blood-cancer-information-day-tickets-32880028049?aff=WebsiteText Talks on fertility, stem
Book your free place today , the afternoon session is for patients and carers and hosted jointly by Trekstok & Leukaemia CARE in London on the 23rd September. https://www.eventbrite.co.uk/e/young-people-against-blood-cancer-information-day-tickets-32880028049?aff=WebsiteText Talks on fertility, stem
Esther07
in
Leukaemia Support
7 years ago
IF Antibody test back - so what next
Following up on my previous posts (low B12, started on B12 loading shots - had second today so too early to tell results on symptoms) Finally got my IF antibody test back today Results: 2.9 U/mL (Normal: < 6 U/mL) I'm aware of the inherent reliability of the test (40-60%) so realise that it doesn't
Following up on my previous posts (low B12, started on B12 loading shots - had second today so too early to tell results on symptoms) Finally got my IF antibody test back today Results: 2.9 U/mL (Normal: < 6 U/mL) I'm aware of the inherent reliability of the test (40-60%) so realise that it doesn't
GavinUK
in
Pernicious Anaemia Society
7 years ago
stage 4 mutations question
Hello. My grandmother (88) was diagnosed with stage 4 lung cancer 10 days ago. I am trying to help her and my parents make decisions. She has a tumor in her right lung and the doctor says that cancer cells are present in the fluid in her lung (which makes the stage 4). No other cancer is present
Hello. My grandmother (88) was diagnosed with stage 4 lung cancer 10 days ago. I am trying to help her and my parents make decisions. She has a tumor in her right lung and the doctor says that cancer cells are present in the fluid in her lung (which makes the stage 4). No other cancer is present
christine6
in
Lung Cancer Support
7 years ago
JUST THE FACTS: SCT/Sickle Cell Trait ==> "People with Diabetes and Sickle Cell Trait Should Have Reliable A1C Test"
Source: NIH (National Institutes of Health) Web site https://www.nih.gov/news-events/news-releases/people-diabetes-sickle-cell-trait-should-have-reliable-a1c-test) Wednesday, November 28, 2007 ARTICLE TITLE: "People with Diabetes and Sickle Cell Trait Should Have Reliable A1C Test" QUOTE #1: ""In the
Source: NIH (National Institutes of Health) Web site https://www.nih.gov/news-events/news-releases/people-diabetes-sickle-cell-trait-should-have-reliable-a1c-test) Wednesday, November 28, 2007 ARTICLE TITLE: "People with Diabetes and Sickle Cell Trait Should Have Reliable A1C Test" QUOTE #1: ""In the
RadiantSue
in
Sickle Cell Society
7 years ago
Treatment dilemma with stage IV squamous cell
My girlfriend has stage IV squamous cell carcinoma and has been offered pembrolizumab which if successful may give her some extra months. However she has also been told the side effects can be very nasty, and some people have died from the treatment. She already has bowel diseases and a weak heart so
My girlfriend has stage IV squamous cell carcinoma and has been offered pembrolizumab which if successful may give her some extra months. However she has also been told the side effects can be very nasty, and some people have died from the treatment. She already has bowel diseases and a weak heart so
tonyp62
in
The Roy Castle Lung Cancer Foundation
7 years ago
STIFF PERSON SYNDROME( a rare disease where your muscles go stiff, with ongoing spasms in any and all muscles) GAD65
I was diagnosed with SPS in 2013, although at that stage my neurologist was of the opinion that I had the syndrome for at least 5 years before being diagnosed. I am on high dosages of mood depressants, morphine etc . Not many has this disease, and I have been trying to get into a clinical trial for stem
I was diagnosed with SPS in 2013, although at that stage my neurologist was of the opinion that I had the syndrome for at least 5 years before being diagnosed. I am on high dosages of mood depressants, morphine etc . Not many has this disease, and I have been trying to get into a clinical trial for stem
carin02011966
in
Lung Conditions Community Forum
7 years ago
Is this the right test?
I've been diagnosed with B12 (113) and folate (3.1) deficiency. I'm getting the loading injections at the moment. The doctor has given me a blood test form to get a "gastic parietal cell antibody" test. Is this the right test? I thought I should be getting the Anti intrinsic factor antibody test as that
I've been diagnosed with B12 (113) and folate (3.1) deficiency. I'm getting the loading injections at the moment. The doctor has given me a blood test form to get a "gastic parietal cell antibody" test. Is this the right test? I thought I should be getting the Anti intrinsic factor antibody test as that
Orpheusss
in
Pernicious Anaemia Society
7 years ago
Mets to ribs and spine confirmed.
Hi all I spoke to my mums CNS today and he confirmed that the uptake on the PET scan indicates cancerous deposits on 2 of my mums ribs and also the base of her spine. We don't know for sure that it is from the lung cancer or previous breast cancer but the specialists are going with it is more likely
Hi all I spoke to my mums CNS today and he confirmed that the uptake on the PET scan indicates cancerous deposits on 2 of my mums ribs and also the base of her spine. We don't know for sure that it is from the lung cancer or previous breast cancer but the specialists are going with it is more likely
MissyD1
in
Lung Cancer Support
7 years ago
Mets to ribs and spine confirmed.
Hi all I spoke to my mums CNS today and he confirmed that the uptake on the PET scan indicates cancerous deposits on 2 of my mums ribs and also the base of her spine. We don't know for sure that it is from the lung cancer or previous breast cancer but the specialists are going with it is more likely
Hi all I spoke to my mums CNS today and he confirmed that the uptake on the PET scan indicates cancerous deposits on 2 of my mums ribs and also the base of her spine. We don't know for sure that it is from the lung cancer or previous breast cancer but the specialists are going with it is more likely
MissyD1
in
The Roy Castle Lung Cancer Foundation
7 years ago
Giant Cell Arteritis and Tocilizumab Patient Experience Needed
If you have been treated with Tocilizumab for Giant Cell Arteritis VUK would like to hear of your experiences both good and bad. Please contact John Mills email John.mills@vasculitis.org.uk as soon as possible
If you have been treated with Tocilizumab for Giant Cell Arteritis VUK would like to hear of your experiences both good and bad. Please contact John Mills email John.mills@vasculitis.org.uk as soon as possible
Suzym2u
Vasculitis UK
in
Vasculitis UK
7 years ago
Sickle Cell Trait
Hi Im 21 years old and have been diagnosed with Sickle Cell Trait when i was seven, I have been experiencing some dizziness a couple days now which is very uncomfortable. It feels as if i am very intoxicated, moving my head and neck in certain directions is extremely discomforting as it feels like if
Hi Im 21 years old and have been diagnosed with Sickle Cell Trait when i was seven, I have been experiencing some dizziness a couple days now which is very uncomfortable. It feels as if i am very intoxicated, moving my head and neck in certain directions is extremely discomforting as it feels like if
Miguelf
in
Sickle Cell Society
7 years ago
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