Experiences with

Morton's neuroma

Hi All, I’m just looking for any of your experience in changing roles at work to accommodate your AN. I’m on watch and wait with my first year scan results due on Xmas Eve. My symptoms are fairly stable but they have increased slightly over the last 12months. Bit more tingly and pain on the AN

Hi, i had gamma knife sept 23 and I've just had a scan sept 24. I do have a telephone appointment with my consultant early november and i have to admit i'm quite anxious regarding any results. I was told when i had the gamma knife that they dont expect it to stabilise and shrink for at least a year,

My upcoming AN surgery will result in permanent hearing loss in my left ear. What is the experience of living with hearing in only one ear, and has anyone had cochlear implants? How effective are they?

Has anyone had a cyst growing? My husband was diagnosed with an acoustic neuroma 8 years ago, he had surgery 6 years ago, life has been living hell since. I didn't dream it would affect us so much long term. In the last year we've been trying to pick the pieces of our life up again yet 2 months ago the

Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse

I was diagnosed with a 5mm acoustic neuroma a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I had another MRI to check if the tumour has grown. It hasn't, it's the same size. Now I received a letter saying that my next scan will be in 3 years

Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail

Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment. My husband is

Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on

Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour

The whole story, the truth and nothing but the truth! I developed Tinnitus mildly I'd say about six months ago but I have always had neck issues, been having massage to relieve aches but now joining up the dots, this seems to be linked to the AN. Back in November 2022 I took part in a day of scanning

Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.

Hi All I'm having a guided by ultrasound steroid injection for neuroma in my foot. Really not looking forward to this but hopefully it will help. Can I just ask what footwear I should wear to the procedure and how well will I be able to walk afterwards? I've been told I can't drive for 6 hours

Hi All I'm having a guided by ultrasound steroid injection for neuroma in my foot. Really not looking forward to this but hopefully it will help. Can I just ask what footwear I should wear to the procedure and how well will I be able to walk afterwards? I've been told I can't drive for 6 hours but

Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and very loud and sometimes has different pitches all at once like an orchestra. It's constant, 24/7. I'd had a very slight ringing for several months

hi all I had surgery 15th June 2022 to remove a large tumour. I have had a few problems after including facial paralysis on my right side after but it literally normal now. I had a lot of injections. My right eye is completely dry and they did a nerve transplant to try and correct this. So have been

Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back

My hubby has had ongoing issues with his left ear, doc thought he had an ear infection, was given antibiotics, didn’t help. Then he started with headaches which was unusual for him. He then had a fullness feeling in his head, constantly tired and a dull pain at the back of his head. Also has tinnitus

You are all babies so far that I have read. My tumor was removed by surgery AN and they called it a schwannoma. But who knew from what I was told I don't think they knew much. It was taken in 1990, a large bugger that left me deaf, palsied, tinnitus, open eyed, and short of balance., Neeedless

6 weeks of headaches on the side of the tumour and they’ve been getting worse. I’m due to see the original ENT consultant on Wednesday next week but and ideas why now? It’s over 12 months since the Gamma knife and possibly due to Eustachian tube disfunction. The pain is sometimes sharp and intense