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After over ten years only cardopa- leva dopa in extended release plus short acting doses are doing some good. Any good ideas for rigidity?
Comtan, amantadine, mirapex, azilect psych/ side effects now terrifying. Lower body rigiidity is challenging mobility without a wheelchair.
Comtan, amantadine, mirapex, azilect psych/ side effects now terrifying. Lower body rigiidity is challenging mobility without a wheelchair.
VeryBlue
in
Cure Parkinson's
11 years ago
Coconut oil has improved my life
I am 74 years old and I have Parkinson's, diagnosed 3 1/2 years ago and am under conventional drug treatment by Mayo Clinic. A year ago, while taking Mirapex Er (3mg) and Azilect (1Mg), my symptoms had progressed to severe slowness, unsteadiness, chronic stiffness and joint pain, frequent freezing episodes
I am 74 years old and I have Parkinson's, diagnosed 3 1/2 years ago and am under conventional drug treatment by Mayo Clinic. A year ago, while taking Mirapex Er (3mg) and Azilect (1Mg), my symptoms had progressed to severe slowness, unsteadiness, chronic stiffness and joint pain, frequent freezing episodes
fwes
in
Cure Parkinson's
11 years ago
Any body else suffering head injuries?
Hello all , I am new to this community- glad to have found it. i am 50 have had severe rls and rlmd since i was 10. have been on everything from sinemet to vicodin, mirapex to oxycontin and have only gotten progressively worse. i am currently taking 6- 8 mg of requip with limited success. i have
Hello all , I am new to this community- glad to have found it. i am 50 have had severe rls and rlmd since i was 10. have been on everything from sinemet to vicodin, mirapex to oxycontin and have only gotten progressively worse. i am currently taking 6- 8 mg of requip with limited success. i have
spikel1
in
Restless Legs Syndrome
11 years ago
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My husband has parkinson and is taking mirapex and sinement and drinks beer and jack daniels every weekend...is this safe?
pumpkinpie1
in
Cure Parkinson's
11 years ago
GABAPENTIN for nerve pain?
Was debilitated with sciatica pain and my general practitioner (after careful consideration, research for interaction, and discussion) carefully prescribed gabapentin 300 mg once a day. My PD meds are carbidopa/levodopa, comtan and mirapex. (Mirapex was the possible interaction). Within two hours of
Was debilitated with sciatica pain and my general practitioner (after careful consideration, research for interaction, and discussion) carefully prescribed gabapentin 300 mg once a day. My PD meds are carbidopa/levodopa, comtan and mirapex. (Mirapex was the possible interaction). Within two hours of
cathi
in
Cure Parkinson's
11 years ago
RLS, Frustration, Meds, Withdrawal, Anger, Etc.
So, I called the Dr on Monday to let him know the Mirapex wasn't working. I had to leave a message, of course. Finally, the nurse called me back at 5:30 pm and wanted to know the dose I was taking. I told her I followed instructions and was on .125 mg for 5 days, then .25 mg for five days, and was currently
So, I called the Dr on Monday to let him know the Mirapex wasn't working. I had to leave a message, of course. Finally, the nurse called me back at 5:30 pm and wanted to know the dose I was taking. I told her I followed instructions and was on .125 mg for 5 days, then .25 mg for five days, and was currently
ookla
in
Restless Legs Syndrome
11 years ago
How long do most meds take? Did tramadol spoil me?
The first time I took tramadol, after fifteen minutes I felt relief wash over me. It was amazing to sit there and finally have my legs feel normal. I'm beginning to think that's an unfair standard to hold other meds to. I've was on mirapex at .125 mg for five days and now at .25 mg for four days. I'm
The first time I took tramadol, after fifteen minutes I felt relief wash over me. It was amazing to sit there and finally have my legs feel normal. I'm beginning to think that's an unfair standard to hold other meds to. I've was on mirapex at .125 mg for five days and now at .25 mg for four days. I'm
ookla
in
Restless Legs Syndrome
11 years ago
first time, long time - mind if i just vent a little bit?
When I was first diagnosed with rls, the first med i was given was requip... which i wasn't able to take because it made me vomit. After that, the doctor gave me tramadol and it was like a miracle. I was finally able to sit at my desk at work during the day, watch tv on the couch in the evening, and
When I was first diagnosed with rls, the first med i was given was requip... which i wasn't able to take because it made me vomit. After that, the doctor gave me tramadol and it was like a miracle. I was finally able to sit at my desk at work during the day, watch tv on the couch in the evening, and
ookla
in
Restless Legs Syndrome
11 years ago
I have a couple questions about Neupro and Mirapex.
I was on Mirapex until a year ago when I realized I was augmenting badly because I kept upping the dose and got less and less relief. I went through withdrawal, cold turkey, for 3 to 4 weeks before I started Horizant. Pretty quickly I realized that I had to take two Horizant to get good results, and
I was on Mirapex until a year ago when I realized I was augmenting badly because I kept upping the dose and got less and less relief. I went through withdrawal, cold turkey, for 3 to 4 weeks before I started Horizant. Pretty quickly I realized that I had to take two Horizant to get good results, and
lovepugs
in
Restless Legs Syndrome
11 years ago
Have you been asked by your GP (in the UK) to cut down one of your drugs?
I was recently asked by GP, not specialist, to take one Mirapex slow release instead of two 0.52mg. Ordinarily I might have said yes relying on his opinion but intuition made me ask why. The answer was cost cutting. Of course I said NO. Please check with your specialists before changing anything. Don't
I was recently asked by GP, not specialist, to take one Mirapex slow release instead of two 0.52mg. Ordinarily I might have said yes relying on his opinion but intuition made me ask why. The answer was cost cutting. Of course I said NO. Please check with your specialists before changing anything. Don't
Hidden
in
Cure Parkinson's
11 years ago
Is anyone else suffering from swollen ankles and feet from taking Mirapex? Has anyone found ways to alleviate this problem?
norobot
in
Cure Parkinson's
12 years ago
Is anyone still on Mirapex?
I've tried others but the only one that works is mirapex. However, I have numerous small skin eruptions covered with a small scab - if you remove scab (easily done in your shower)it bleeds and forms another scab. These aren't big - perhaps the size of the head of a straight pin. Is anyone aware
I've tried others but the only one that works is mirapex. However, I have numerous small skin eruptions covered with a small scab - if you remove scab (easily done in your shower)it bleeds and forms another scab. These aren't big - perhaps the size of the head of a straight pin. Is anyone aware
Bella5
in
Restless Legs Syndrome
12 years ago
Constipation
Anyone have success with
miralax
?
Anyone have success with
miralax
?
Jenette
in
Cure Parkinson's
12 years ago
I am so frustrated that I can't do anything to help my husband with his pain and doctors aren't helping.
He is having really bad pain in his legs to the point he cries. Because of his cognitive issues, I can't understand everything he is trying to tell me so I don't for sure know what he is experiencing. I've been driving the Neurologist crazy with my calls asking for help. He was taken off Mirapex several
He is having really bad pain in his legs to the point he cries. Because of his cognitive issues, I can't understand everything he is trying to tell me so I don't for sure know what he is experiencing. I've been driving the Neurologist crazy with my calls asking for help. He was taken off Mirapex several
Hidden
in
Cure Parkinson's
12 years ago
Has anyone had problems when increasing Sinemet? My hubby was taken off Mirapex and his Sinemet was slowly increased to 2 pills 4xday
but now has leg pain and still trouble walking as well as loss of appetite and cognitive issues. Doctor said to reduce it back to where it was so hopefully that will work. Dr. hasn't offered anything else to try so I'm at a loss on what to do. If his current state continues, he will probably not be
but now has leg pain and still trouble walking as well as loss of appetite and cognitive issues. Doctor said to reduce it back to where it was so hopefully that will work. Dr. hasn't offered anything else to try so I'm at a loss on what to do. If his current state continues, he will probably not be
Hidden
in
Cure Parkinson's
12 years ago
see below
I have had Parkinson's for 14 years and take SInamet 7-8 times a day, Mirapex, and amantadine,I have never had a tremor or balance issue. My main symptoms are stiffness of neck , shoulders, fatigue, illegible handwriting and clumsiness, and panic attacks. I wonder if DBS would help these symptoms
I have had Parkinson's for 14 years and take SInamet 7-8 times a day, Mirapex, and amantadine,I have never had a tremor or balance issue. My main symptoms are stiffness of neck , shoulders, fatigue, illegible handwriting and clumsiness, and panic attacks. I wonder if DBS would help these symptoms
Karen3
in
Cure Parkinson's
12 years ago
Has anybody ever taken senement25/100 with Mirapex at the same time
hawaii
in
Cure Parkinson's
12 years ago
Sores from Neupro patches
I have severe rls and have been on several different Parkinson's medications that never helped or made me sick to my stomach. I was not sleeping and was taking hot baths or shower up to 4 times a night with my rls, I moved and twitched so much I ended up hurting my knee.. My sleep doctor put me on
I have severe rls and have been on several different Parkinson's medications that never helped or made me sick to my stomach. I was not sleeping and was taking hot baths or shower up to 4 times a night with my rls, I moved and twitched so much I ended up hurting my knee.. My sleep doctor put me on
Glcooper
in
Restless Legs Syndrome
12 years ago
Allergies, Constipation and Motility (and Movicol !)
Movicol (or
Miralax
in the USA) is an osmotic laxative and a great drug for short term use in such cases (Type 1 stool) .
Movicol (or
Miralax
in the USA) is an osmotic laxative and a great drug for short term use in such cases (Type 1 stool) .
Hidden
FABED
in
FABED
12 years ago
Has anyone noticed the chemical smell that comes with taking Sinemet
I was taking Sinemet and Mirapex and gave up on the sinemet because i couldnt tolerate the smell of it.. Somehow this drug affected my sense of smell and everything i was exposed to. Coffee smelled terrible.. and even my breath had that chemical smell. One friend said he could tell if someone had pk
I was taking Sinemet and Mirapex and gave up on the sinemet because i couldnt tolerate the smell of it.. Somehow this drug affected my sense of smell and everything i was exposed to. Coffee smelled terrible.. and even my breath had that chemical smell. One friend said he could tell if someone had pk
Lawrencium
in
Cure Parkinson's
12 years ago
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