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Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
8 months ago
Success Story (so far, anyway)
I've had RLS for decades, starting in my 30s. Was on carb/levidopa for a while till it became no longer effective, then switched to Roprinirole, which worked just great, but had to keep upping the dosage to keep it's effectiveness. At 4MG of Roprinirole, I was running out of options, did some research
I've had RLS for decades, starting in my 30s. Was on carb/levidopa for a while till it became no longer effective, then switched to Roprinirole, which worked just great, but had to keep upping the dosage to keep it's effectiveness. At 4MG of Roprinirole, I was running out of options, did some research
buzzin247
in
Restless Legs Syndrome
8 months ago
One Small Setback...
I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with
I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with
vikkitennis
in
Restless Legs Syndrome
9 months ago
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Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
9 months ago
RLS Absence and Clarification
I have had RLS for over 25+ years, used and exhausted all the RLS medications, when neurologist prescribed methadone, five months ago. I am at 20 mg, twice nightly. About 3-4 weeks ago, the symptoms disappeared, and I am trying to figure it out, possibly the Group can help. I began taking the magnesium
I have had RLS for over 25+ years, used and exhausted all the RLS medications, when neurologist prescribed methadone, five months ago. I am at 20 mg, twice nightly. About 3-4 weeks ago, the symptoms disappeared, and I am trying to figure it out, possibly the Group can help. I began taking the magnesium
vikkitennis
in
Restless Legs Syndrome
9 months ago
To Infuse or not to Infuse
I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few lines you will know whether the person gave it a thumbs up or down. If you read the replies you may find more stories. I welcome anyone who
I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few lines you will know whether the person gave it a thumbs up or down. If you read the replies you may find more stories. I welcome anyone who
DesertOasis
in
Restless Legs Syndrome
10 months ago
Psilocybin
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
JustVisiting23
in
Restless Legs Syndrome
10 months ago
switching meds
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
senders
in
Restless Legs Syndrome
10 months ago
Now in hospice
I try to keep posts short and concise so I’ll try to keep this as brief as possible. We recently returned from a 2 week trip to SoCal to visit family and friends. I was hoping to post some nice QOL pics but in actuality the trip was fraught with difficulties. On return we had a visit with my husband
I try to keep posts short and concise so I’ll try to keep this as brief as possible. We recently returned from a 2 week trip to SoCal to visit family and friends. I was hoping to post some nice QOL pics but in actuality the trip was fraught with difficulties. On return we had a visit with my husband
Hidden
in
Advanced Prostate Cancer
11 months ago
why docs don’t want to prescribe opioids for RLS….😔
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
Kakally
in
Restless Legs Syndrome
11 months ago
Buprenorphine SL vs transdermal
Hi. Can anyone weigh in on their experience or knowledge of the advantages or disadvantages of the different formulations of buprenorphine? I understand there is a risk of severe tooth decay with the sublingual formulation but is that only in the drug-addicted population? Has anyone had personal experience
Hi. Can anyone weigh in on their experience or knowledge of the advantages or disadvantages of the different formulations of buprenorphine? I understand there is a risk of severe tooth decay with the sublingual formulation but is that only in the drug-addicted population? Has anyone had personal experience
Doctorplacebo
in
Restless Legs Syndrome
11 months ago
Victory!!
Finally, I have no more symptoms of RLS - through diet alone! I eat no more than 40G carbs/day, eat at least 50G protein/day, eat no sugar, maple syrup, sugary drinks, jams, jellies - nothing with a glycemic index over 40, eat only low histamine foods, and follow all the other traditionally recommended
Finally, I have no more symptoms of RLS - through diet alone! I eat no more than 40G carbs/day, eat at least 50G protein/day, eat no sugar, maple syrup, sugary drinks, jams, jellies - nothing with a glycemic index over 40, eat only low histamine foods, and follow all the other traditionally recommended
Seaux
in
Restless Legs Syndrome
11 months ago
moving to Eastern Europe
I’m wondering what meditation is available for restless legs in Europe and how enlightened Eastern Europe may be as to the use of Belbuca. I’m currently on 2 mg Neupro and 800 mg of Gabapentin. But I have used both Belbuca and Methadone in the past. I know there is a clinic on the coast in Kotor Montenegro
I’m wondering what meditation is available for restless legs in Europe and how enlightened Eastern Europe may be as to the use of Belbuca. I’m currently on 2 mg Neupro and 800 mg of Gabapentin. But I have used both Belbuca and Methadone in the past. I know there is a clinic on the coast in Kotor Montenegro
Jrskyhook32
in
Restless Legs Syndrome
1 year ago
new meds
i have severe RLS and i take Methadone daily for this. I have recently been put on Eliquis and Spironolactone . Would either of these aggravate my RLS? Thanks for your help.
i have severe RLS and i take Methadone daily for this. I have recently been put on Eliquis and Spironolactone . Would either of these aggravate my RLS? Thanks for your help.
wairoa36
in
Restless Legs Syndrome
1 year ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
1 year ago
Methadone Use
I am interested in hearing from others of their methadone use. Did you start out with a small dosage, and within months, became immune to that dosage, and increased it? I began with 5 mg, 2.5 mg twice a day; now it is 10 mg, although, I am reluctant to increase it to 10mg. GI problems is another factor
I am interested in hearing from others of their methadone use. Did you start out with a small dosage, and within months, became immune to that dosage, and increased it? I began with 5 mg, 2.5 mg twice a day; now it is 10 mg, although, I am reluctant to increase it to 10mg. GI problems is another factor
vikkitennis
in
Restless Legs Syndrome
1 year ago
MS and RLS, Top UK Neurologist talks about Dopamine Agonists
One of the top MS neurologists in the UK has written about RLS in MS patients and states that he does not prescribe dopamine agonists because of the risk of augmentation. He also prescribes methadone for refractory RLS. It's a small step, but hopefully, little by little, the message will get through
One of the top MS neurologists in the UK has written about RLS in MS patients and states that he does not prescribe dopamine agonists because of the risk of augmentation. He also prescribes methadone for refractory RLS. It's a small step, but hopefully, little by little, the message will get through
Joolsg
in
Restless Legs Syndrome
1 year ago
How does restless sleep affect morning blood sugar?
Hi - I notice that in the nights I have problematic sleep - up many times despite good methadone treatment - my blood glucose if over 100, but then is normal after meals during the day. Do any of you have trouble controlling blood sugar after a bad night of struggling to get some zzzzs?
Hi - I notice that in the nights I have problematic sleep - up many times despite good methadone treatment - my blood glucose if over 100, but then is normal after meals during the day. Do any of you have trouble controlling blood sugar after a bad night of struggling to get some zzzzs?
ratfancy
in
Restless Legs Syndrome
1 year ago
More Methadone?
I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years now which has been pretty good, allowing me approximately 5 hours of sleep some nights. Recently it has worked less well. I’ve been up frequently
I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years now which has been pretty good, allowing me approximately 5 hours of sleep some nights. Recently it has worked less well. I’ve been up frequently
wairoa36
in
Restless Legs Syndrome
1 year ago
Methadone withdrawal?
I am asking for a member on the fb page i am co-admin of. This lady is having a methadone drug holiday as instructed by her doctor. Her methadone isn’t working after being on it for several years. She is weaning off it but nothing she has tried to help with withdrawals is helping including medicinal
I am asking for a member on the fb page i am co-admin of. This lady is having a methadone drug holiday as instructed by her doctor. Her methadone isn’t working after being on it for several years. She is weaning off it but nothing she has tried to help with withdrawals is helping including medicinal
Hidden
in
Restless Legs Syndrome
1 year ago
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