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6 public communities
Anticoagulation Support
3,803 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
PBCers Organization
1,400 members
PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) information and offer support to its members. Topics discussed include symptoms, medication, diet, personal experiences, transplant and anything else PBC related.
Parents of ALD Newborns
98 members
We are here to offer support as you navigate through your babies first few years of life after a diagnosis of adrenoleukodystrophy. Knowledge is power and now you have the power to save your child's life. Some of the information that is floating around on the internet is not correct and we hope to fix that by closely monitoring the info that is posted on this forum.
MPN Voice
10,445 members
MPN Voice provides information and emotional support to patients with Myeloproliferative neoplasms. MPNs are chronic diseases affecting the levels of blood cells in the body, the three main types are Essential Thrombocythaemia (ET), Polycythaemia Vera (PV) and Myelofibrosis (MF). People affected by MPNs often feel isolated and need support and accurate information about their MPN, MPN Voice provides this support and information via the website, patient forums and this online forum at HealthUnlocked which gives people with a MPN a place to ask questions and discuss their condition, symptoms, medication and other related concerns with fellow patients.
PMRGCAuk
20,342 members
Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide information and support, raise awareness, and foster research into PMR and GCA. On this forum you can share your own experiences of dealing with these little-known and frightening conditions with others who know what you are talking about; and also gain ideas about ways to take care of yourself and help yourself on the road to recovery. Do discuss ideas you find on the forum with your doctor, especially if you are considering changing your level of medication Our website is http://www.pmrgca.org.uk.
Acid Reflux Support
1,567 members
For more than three decades, the OPA has fought against oesophageal and gastric cancers, raising awareness, supporting patients, caregivers and their families. Whether you are in the early stages or further along in your journey, the OPA is dedicated to offering support and guidance. Did you know? There are over 65 Million people in the UK and it is estimated that over 1 in 10 people suffer from Reflux Disease. Reflux disease can have a terrible impact on a patients quality of life affecting many aspects of their everyday functioning. For many people, this can be managed effectively with lifestyle changes and/or medication prescribed by their GP such as omeprazole, lansoprazole and esomeprazole (as well as others). However there are over 2 million people in the UK who do not respond effectively to this treatment and for these people, there are other options they can consider to treat their disease. Head to our website for more information - https://opa.org.uk/