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Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Is there any order to when new medications or PARP inhibitor are tried?
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
Shorehousejam
in
Fight Prostate Cancer
4 months ago
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Question, each month with rising PSA, when do I do a pet scan
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Medical cannabis oil for pain relief
Morning Endo Warriors, Is anyone taking
medical
cannabis
oil for pain relief? I am stage 4 endo, adeno, frozen pelvis, with endo lesions on my bowel. Awaiting hysterectomy and bowel surgery but waiting list is up yo 1 year!
Morning Endo Warriors, Is anyone taking
medical
cannabis
oil for pain relief? I am stage 4 endo, adeno, frozen pelvis, with endo lesions on my bowel. Awaiting hysterectomy and bowel surgery but waiting list is up yo 1 year!
MrsMarlene
in
Endometriosis UK
2 years ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
4 months ago
Advice needed!!
Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting results. Stage 3C High grade serous cancer. Experiencing back pain in recent weeks, just wondered if anyone else had experienced this and if we should
Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting results. Stage 3C High grade serous cancer. Experiencing back pain in recent weeks, just wondered if anyone else had experienced this and if we should
ORGM
in
My Ovacome
4 months ago
re: Cancer in general. Know your enemy.
I got a
medical
cannabis
card and bought six vines of Rick Simpson Oil (RSO). It restored my sleep and gave back my appetite. I heard cannabis oil is effective against cancer but there is no reliable study showing proof.
I got a
medical
cannabis
card and bought six vines of Rick Simpson Oil (RSO). It restored my sleep and gave back my appetite. I heard cannabis oil is effective against cancer but there is no reliable study showing proof.
Lifer69
in
Advanced Prostate Cancer
1 year ago
Does anyone have experience of Radical Prostatectomy surgery or External Beam Therapy (with hormone therapy)?
Good morning, a fairly specific question: I had a HA in 2018 followed by single stent, diagnosis: Ischaemic heart disease, usual medication, rehab and all fine. In 2021 I was diagnosed with Chronic Inflammatory demyalinating polyneuropathy (CIDP), rare and little known condition - not related to the
Good morning, a fairly specific question: I had a HA in 2018 followed by single stent, diagnosis: Ischaemic heart disease, usual medication, rehab and all fine. In 2021 I was diagnosed with Chronic Inflammatory demyalinating polyneuropathy (CIDP), rare and little known condition - not related to the
ken-b
in
British Heart Foundation
5 months ago
Do Sulforaphane, Melatonin, and Cayenne Pepper work?
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
I've been a lurker for a while. First time post. I have had a radical prostatectomy, chemo (docetaxel - 6 infusions 3 weeks apart), radiation (38 doses) and Lupron (18 months). I am done with all treatment for now. PSA minimum was 0.02, now at 0.04. I've been reading a lot about sulforaphane (BROQ)
SisuMike
in
Advanced Prostate Cancer
5 months ago
Diagnostic Imaging Not Yet Enough for Biopsy-Free Radical Prostatectomy - MedPage Today, November 27, 2023
Biopsy-free PCa diagnostics would be welcomed by anyone who has had one or more needle biopsies. This article in MedPage Today summarizes the current status for the several methodologies being studied as alternatives. Good info for those currently on AS or just watching a rising PSA. From the lead-in
Biopsy-free PCa diagnostics would be welcomed by anyone who has had one or more needle biopsies. This article in MedPage Today summarizes the current status for the several methodologies being studied as alternatives. Good info for those currently on AS or just watching a rising PSA. From the lead-in
cujoe
in
Fight Prostate Cancer
5 months ago
husband with CRPC needing advice
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Betsyhrd
in
Advanced Prostate Cancer
5 months ago
Big decsions regarding SRT/ADT due to BCR post RP
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Advanced Prostate Cancer
6 months ago
Big decisions regarding SRT and ADT for BCR
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Prostate Cancer Network
6 months ago
Will I be able to Radiate Prostate Bed Fossa, mass is abutting rectum and bladder?
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team a second Medical Oncologist from Cancer
Shorehousejam
in
Fight Prostate Cancer
6 months ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Laparotomy, Radical hysterectomy, bilateral salpingo-oophrectomy
I had a major surgery about 8 months ago but the pain around my stomach hasn't gone away. My blood tests and CT scan results are normal.They mentioned that have adhesions which make me in pain all day all night, so I only rely on the pain reliefs.
I had a major surgery about 8 months ago but the pain around my stomach hasn't gone away. My blood tests and CT scan results are normal.They mentioned that have adhesions which make me in pain all day all night, so I only rely on the pain reliefs.
Bandung
in
My Ovacome
6 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Radical prostatectomy consultant in the south of England
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
I've been diagnosed with prostate cancer, quite aggressive with a Gleason of 9 (4+5). No spread has been detected on a CT scan and I'm due to have a NM bone whole body scan on Friday to detect any spread to the bones. Assuming there is no or little spread, I am keen to have a radical laparoscopic prostatectomy
MarkS
in
Prostate Cancer Network
6 months ago
Post surgery issues
Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after 5 nights. I have suffered with horrible bloating and pain since and was told when still in the hospital it was from post-surgery gas which I know
Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after 5 nights. I have suffered with horrible bloating and pain since and was told when still in the hospital it was from post-surgery gas which I know
Jpembs
in
My Ovacome
6 months ago
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