Search
Search
About
Log in
Join
Experiences with
Mayzent
Posts
Communities
20 public posts
Filter results
Mid 60's and my MS is still active. So much for the theory that as you age your MS becomes inactive...
Due to my history of having a serious infection while on Ocrevus, my neurologist opted to put me on
Mayzent
. If I do experience symptoms of any type of infections,
Mayzent
is easier to get out of the body then Ocrevus. It seems Ocrevus can last in the blood for over a year.
Due to my history of having a serious infection while on Ocrevus, my neurologist opted to put me on
Mayzent
. If I do experience symptoms of any type of infections,
Mayzent
is easier to get out of the body then Ocrevus. It seems Ocrevus can last in the blood for over a year.
Fancy59
CommunityAmbassador
in
My MSAA Community
8 months ago
Mayzent and SPMS?
I’ve completed all of the screening for
Mayzent
and have been “enrolled” in their program. Anyone have experience with this DMT?
I’ve completed all of the screening for
Mayzent
and have been “enrolled” in their program. Anyone have experience with this DMT?
irhunter
in
My MSAA Community
1 year ago
Improving?
Started daily 600 mg Alpha Lipoic Acid, 2000mg omega 3 and a couple d3 a week. 2mg daily
Mayzent
started in May. Today…. Avg 6900 steps a day with 3.3 miles walking. Rarely fall, maybe twice in last month due to tripping on hose or twine.
Started daily 600 mg Alpha Lipoic Acid, 2000mg omega 3 and a couple d3 a week. 2mg daily
Mayzent
started in May. Today…. Avg 6900 steps a day with 3.3 miles walking. Rarely fall, maybe twice in last month due to tripping on hose or twine.
irhunter
in
My MSAA Community
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Rise and Shine Sleepy Heads!
Coffee, yogurt, Baclofen,
Mayzent
, Olmesartan, and now Amoxicillin (for sinusitis… ugh) all on board. Now it’s out to the apiary, before the honey bees start flying, to weed eat the dreaded Bedstraw vine! Bedstraw is a weed that is covered in Velcro like cilia.
Coffee, yogurt, Baclofen,
Mayzent
, Olmesartan, and now Amoxicillin (for sinusitis… ugh) all on board. Now it’s out to the apiary, before the honey bees start flying, to weed eat the dreaded Bedstraw vine! Bedstraw is a weed that is covered in Velcro like cilia.
irhunter
in
My MSAA Community
11 months ago
Medicare and Mayzent
BTW,
Mayzent
has a “help” program but you can’t qualify if you own your home. Thanks in advance.
BTW,
Mayzent
has a “help” program but you can’t qualify if you own your home. Thanks in advance.
Lespauljoe
in
My MSAA Community
2 years ago
Mayzent: anyone try recently?
Hello Community, I am undergoing testing to be able to take
Mayzent
. Has anyone tried it and is still on it? Is it working for anyone? Seems like I've seen people having a lot of infections and other side effects.
Hello Community, I am undergoing testing to be able to take
Mayzent
. Has anyone tried it and is still on it? Is it working for anyone? Seems like I've seen people having a lot of infections and other side effects.
Rileymom
in
My MSAA Community
2 years ago
Apologies for my absence
I was on
Mayzent
until the end of April and I got sick and had many infections. Abscessed tooth, cuticle infections, numerous herpes outbreaks, acne so bad i could barely open my mouth to eat. My lymphocytes tanked at 410 and overall white count was right around 4K when i stopped taking it.
I was on
Mayzent
until the end of April and I got sick and had many infections. Abscessed tooth, cuticle infections, numerous herpes outbreaks, acne so bad i could barely open my mouth to eat. My lymphocytes tanked at 410 and overall white count was right around 4K when i stopped taking it.
wolfmom21fl
in
My MSAA Community
3 years ago
Is anyone on Copaxone and how are you doing on it?
I just cannot go thru another low white count situation like i did with the
Mayzent
.. It was a nightmare. never again. I would rather not be on anything at all than to do that again.. way too much
I just cannot go thru another low white count situation like i did with the
Mayzent
.. It was a nightmare. never again. I would rather not be on anything at all than to do that again.. way too much
wolfmom21fl
in
My MSAA Community
3 years ago
Mayzent, a multiple sclerosis drug, can promote myelin regeneration. I wonder if it is helpful for AMN. Have you paid attention to this drug
Mayzent
, a multiple sclerosis drug, can promote myelin regeneration. I wonder if it is helpful for AMN. Have you paid attention to this drug?
Mayzent
, a multiple sclerosis drug, can promote myelin regeneration. I wonder if it is helpful for AMN. Have you paid attention to this drug?
jayxie
in
AMN EASIER
4 years ago
MAYZENT! I've been approved for the brand new DMT called mayzent!
I've been approved for the brand new DMT called
Mayzent
? I have the starter dose and the first months caplets in my refrigerator unopened. With the pandemic going nuts across the United States I spoke with my neurologist and got approval to wait to start new DMT until the pandemic quiets down.
I've been approved for the brand new DMT called
Mayzent
? I have the starter dose and the first months caplets in my refrigerator unopened. With the pandemic going nuts across the United States I spoke with my neurologist and got approval to wait to start new DMT until the pandemic quiets down.
Fancy1959
CommunityAmbassador
in
My MSAA Community
4 years ago
Started Mayzent
I am on day 4 of the
Mayzent
. I have had no side effects except a silent or optic migraine and weakness. I hadn't noticed weakness until I went to PT. I tried to do an exercise I have done before and couldn't. It is a hard exercise. But it shocked me that I couldn't do it at all.
I am on day 4 of the
Mayzent
. I have had no side effects except a silent or optic migraine and weakness. I hadn't noticed weakness until I went to PT. I tried to do an exercise I have done before and couldn't. It is a hard exercise. But it shocked me that I couldn't do it at all.
cljones
in
My MSAA Community
4 years ago
Mayzent and High BP
I'm taking Lopressor 200 mg for High BP... have SPMS and my Dr is recommending
Mayzent
... Any ideas since this med is suppose to cause High BP,
I'm taking Lopressor 200 mg for High BP... have SPMS and my Dr is recommending
Mayzent
... Any ideas since this med is suppose to cause High BP,
pasmokey
in
My MSAA Community
4 years ago
Mayzent
They didn't come right out and say it but she said you have had progression without lesions so that's why we are putting you on
Mayzent
since it is for primary progressive MS. Sounds like ppms to me.
They didn't come right out and say it but she said you have had progression without lesions so that's why we are putting you on
Mayzent
since it is for primary progressive MS. Sounds like ppms to me.
cljones
in
My MSAA Community
4 years ago
MS....⤵️....Downturn.🙁😬😫
It is called
Mayzent
. It is one of the very news DMTs and the only one that specifically targets secondary progressive MS. So today I'm spending the day at University of Kentucky hospital. Jumping through hoops and doing multiple tests that I need to have before I can start
Mayzent
.
It is called
Mayzent
. It is one of the very news DMTs and the only one that specifically targets secondary progressive MS. So today I'm spending the day at University of Kentucky hospital. Jumping through hoops and doing multiple tests that I need to have before I can start
Mayzent
.
Fancy1959
CommunityAmbassador
in
My MSAA Community
4 years ago
Mayzent
Has anyone tried
Mayzent
? I finally got a confirmation of having a progressive form of MS. Now my doc wants me to try this new drug after seeing I have 2 new lesions on my spine at T2-3. They aren't active at this point thank goodness.
Has anyone tried
Mayzent
? I finally got a confirmation of having a progressive form of MS. Now my doc wants me to try this new drug after seeing I have 2 new lesions on my spine at T2-3. They aren't active at this point thank goodness.
cljones
in
My MSAA Community
4 years ago
This was a read I needed today
utm_source=facebook.com&utm_medium=promoted&utm_campaign=
Mayzent
-CAS&utm_confid=soviec04u
utm_source=facebook.com&utm_medium=promoted&utm_campaign=
Mayzent
-CAS&utm_confid=soviec04u
Angelchef80
in
My MSAA Community
5 years ago
Ocrevus not for me
Still a steady decline so Neurologist suggested we try
Mayzent
. Said he has had success with it. We know it is targeted for SPMS, but since there are no other drugs out there for PPMS and it has shown some success there, here I go. Say a prayer.
Still a steady decline so Neurologist suggested we try
Mayzent
. Said he has had success with it. We know it is targeted for SPMS, but since there are no other drugs out there for PPMS and it has shown some success there, here I go. Say a prayer.
DIsneyQueen
in
My MSAA Community
5 years ago
wondering about Mayzent.......
my neuro may want me to try it in August. anyone taking it?
my neuro may want me to try it in August. anyone taking it?
oklaguy
in
My MSAA Community
5 years ago
Mayzent and Mavenclad
Hi All.... Has anyone started either of these 2 new drugs? Back in Feb when I told my neuron that I didn’t think Ocrevus was doing anything for me, he told me to give it one more infusion which I did in April, it was my 3rd full dose. He said 2 new meds were coming out within 6 months, which they obviously
Hi All.... Has anyone started either of these 2 new drugs? Back in Feb when I told my neuron that I didn’t think Ocrevus was doing anything for me, he told me to give it one more infusion which I did in April, it was my 3rd full dose. He said 2 new meds were coming out within 6 months, which they obviously
All7
in
My MSAA Community
5 years ago
MSAA News Update - FDA Approves Mayzent® (Siponimod) Tablets
I just wanted to share the latest news update that MSAA posted on their website about the FDA approval of
Mayzent
® (Siponimod) tablets: https://mymsaa.org/news/
mayzent
-fda-approved/ Thank you! Emily
I just wanted to share the latest news update that MSAA posted on their website about the FDA approval of
Mayzent
® (Siponimod) tablets: https://mymsaa.org/news/
mayzent
-fda-approved/ Thank you! Emily
MSAA_Staff
in
My MSAA Community
5 years ago
Filter results
Clear filters
Posted in
All communities
My MSAA Community
19 results
AMN EASIER
1 result
Sort by
Most Relevant
Newest