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Self managing PD - Are we serious or not?
I’m back. With good reason though, inspired by a message I received, I decided to post. The following issues, in my opinion, are not being addressed properly within the whole pd community. (I am in the UK but this could equally apply anywhere). Ok here we go. (Another lengthy one) The drugs
I’m back. With good reason though, inspired by a message I received, I decided to post. The following issues, in my opinion, are not being addressed properly within the whole pd community. (I am in the UK but this could equally apply anywhere). Ok here we go. (Another lengthy one) The drugs
Leyther
in
Cure Parkinson's
12 years ago
Anyone else with severe vertigo?
I've had PD 9 years- well controlled with madopar, azilect, entacapone. For the past few weeks I've had very severe, completely debilitating vertigo attacks (NOT dizziness, this is true vertigo where the room swings suddenly and violently and won't stop and it's impossible to move without staggering
I've had PD 9 years- well controlled with madopar, azilect, entacapone. For the past few weeks I've had very severe, completely debilitating vertigo attacks (NOT dizziness, this is true vertigo where the room swings suddenly and violently and won't stop and it's impossible to move without staggering
pen1
in
Cure Parkinson's
12 years ago
PAIN IN THE ... ANYWHERE .....
I WA IN PAIN LAST NIGHT - WOKE UP AT 3 AM WITH AREAL SHOCKER OF A HEADACHE - AND IBS - I TOOK IBUPROFEN AND PARCETAMOL - NO EFFECT - IT WAS ONLY WHEN I TOOK A DOSE OF MODOPAR THAT I WENT BACK TO SLEEP - SHIULD I BE TAKING EXTRA STUFF THOUGH ?
I WA IN PAIN LAST NIGHT - WOKE UP AT 3 AM WITH AREAL SHOCKER OF A HEADACHE - AND IBS - I TOOK IBUPROFEN AND PARCETAMOL - NO EFFECT - IT WAS ONLY WHEN I TOOK A DOSE OF MODOPAR THAT I WENT BACK TO SLEEP - SHIULD I BE TAKING EXTRA STUFF THOUGH ?
shasha
in
Cure Parkinson's
12 years ago
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Shall I stop taking my medication?
Last night I felt the bed was moving under me and today sitting in the armchair I felt the chair was moving under me. Has anyone else had this happen to them? Could it be the pills I'm taking?I take 3 madopar and 2 amantadine tablets per day, should I stop taking the pills or cut down?
Last night I felt the bed was moving under me and today sitting in the armchair I felt the chair was moving under me. Has anyone else had this happen to them? Could it be the pills I'm taking?I take 3 madopar and 2 amantadine tablets per day, should I stop taking the pills or cut down?
camper
in
Cure Parkinson's
12 years ago
Sticking and falling
Can anyone help me?I'm fed up with sticking and falling over. I broke my humerus (upper arm) last September when I fell over in the hall, then last week I fell in the kitchen and I broke the same arm just above the wrist. Then this week to crown it all whilst getting into the car I fell and broke my
Can anyone help me?I'm fed up with sticking and falling over. I broke my humerus (upper arm) last September when I fell over in the hall, then last week I fell in the kitchen and I broke the same arm just above the wrist. Then this week to crown it all whilst getting into the car I fell and broke my
camper
in
PSP Association
12 years ago
for all my very kind parkie pals
i have seen my neuro now and have had delicious bread and cheese outside - being seranaded by birds - so i am feelinng fine - not that i wasnt before - it is just so awful not to be getting better - .. i have spoken at length with my neuro FREDERIC TORNY - same name as my husband and he says that
i have seen my neuro now and have had delicious bread and cheese outside - being seranaded by birds - so i am feelinng fine - not that i wasnt before - it is just so awful not to be getting better - .. i have spoken at length with my neuro FREDERIC TORNY - same name as my husband and he says that
shasha
in
Cure Parkinson's
12 years ago
Sinemet best practice - take a tablet when you feel you need it or stick to 3 times a day and be uncomfortable.
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
Yogibear
in
Cure Parkinson's
12 years ago
Boost Sinemet with Madopar Dispersible YES OR NO?
"if you need to take an extra sinemet thats ok, it may differ from day to day. Use the dispersible as required, just keep to a minimum, but if you need them, you need to take them". What does my PD Nurse mean by the above in quotations? not to boost the Sinement with Madopar Dispersible? does she
"if you need to take an extra sinemet thats ok, it may differ from day to day. Use the dispersible as required, just keep to a minimum, but if you need them, you need to take them". What does my PD Nurse mean by the above in quotations? not to boost the Sinement with Madopar Dispersible? does she
Yogibear
in
Cure Parkinson's
12 years ago
Does anyone know how my mum can stabilise after going into freefall?
My mum started taking madopar to boost her rasagiline but this has coincided with her having diarrohea. She was switched to Sinemet but the diarrohea has persisted so she's now off that too and on rasagiline only. A stool sample and bowel cancer test have come back as normal so I think maybe levodopar
My mum started taking madopar to boost her rasagiline but this has coincided with her having diarrohea. She was switched to Sinemet but the diarrohea has persisted so she's now off that too and on rasagiline only. A stool sample and bowel cancer test have come back as normal so I think maybe levodopar
mymumhasPD
in
Cure Parkinson's
12 years ago
Started Sinamet yesterday only glitch so far is quite bad restless legs what can I do?
I started Sinamet yesterday - 50mg, 3 times a day, I chose 8am, 1pm and 6pm. Take with food. So far so good. Only glitch is I had very bad restless legs last night which kept me awake. I ended up taking a Madopar dispersible tablet at 4am (50mg). Any suggestions on how to get a good nights sleep tonight
I started Sinamet yesterday - 50mg, 3 times a day, I chose 8am, 1pm and 6pm. Take with food. So far so good. Only glitch is I had very bad restless legs last night which kept me awake. I ended up taking a Madopar dispersible tablet at 4am (50mg). Any suggestions on how to get a good nights sleep tonight
Yogibear
in
Cure Parkinson's
12 years ago
I am 39 and taking 2 to 4 Madopar tablets a day do you think I will end up with dyskinesia?
I am starting Pramipexole .52mg per day prolonged release in the morning as Requip XL 6mg is not working out. The idea is that I take the lower dosage of dopamine agonist and top it up with Madopar. I am worried that I will end up with dyskinesia due to my age and how early I am taking Levodopa.
I am starting Pramipexole .52mg per day prolonged release in the morning as Requip XL 6mg is not working out. The idea is that I take the lower dosage of dopamine agonist and top it up with Madopar. I am worried that I will end up with dyskinesia due to my age and how early I am taking Levodopa.
Yogibear
in
Cure Parkinson's
12 years ago
Comments on Madopar and Requip XL
Currently taking 22mg Requip XL once a day at 7:30am .I've already tried Sinemet but they made me feel worse.PD nurse suggested Madopar dissolvable , 1x 62.5mg a day before i get up as i have mobility problems first thing in the morning. Does anyone out there have any experience of this combination?
Currently taking 22mg Requip XL once a day at 7:30am .I've already tried Sinemet but they made me feel worse.PD nurse suggested Madopar dissolvable , 1x 62.5mg a day before i get up as i have mobility problems first thing in the morning. Does anyone out there have any experience of this combination?
Helshubby
in
Cure Parkinson's
12 years ago
Are Sinemet and Madopar the same thing - L-Dopa ?
Currently taking Requip XL but they're starting to wear off . Have tried Sinemet but they made my tremour worse !! Doc has recommended trying Madopar (dissolvable ones) but a low dose once a day to start with as i struggle with mornings (don't we all?) Anyone have experience of this drug "cocktail" (
Currently taking Requip XL but they're starting to wear off . Have tried Sinemet but they made my tremour worse !! Doc has recommended trying Madopar (dissolvable ones) but a low dose once a day to start with as i struggle with mornings (don't we all?) Anyone have experience of this drug "cocktail" (
Helshubby
in
Cure Parkinson's
12 years ago
Drugs not toxic
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Hidden
in
Cure Parkinson's
12 years ago
Is anyone suffering from 'wearing off' periods inbetween meds and feel total confusion, anxiety and exhausted?
I have been taking various antagonistics for several years. Since starting on Madopar 125 & antacapone 5x times a day about a year ago (which last a good 2-3hrs before wearing off) my movement is totally restored but before my next dose is due, for an hour or so I experience total confusion, anxiety
I have been taking various antagonistics for several years. Since starting on Madopar 125 & antacapone 5x times a day about a year ago (which last a good 2-3hrs before wearing off) my movement is totally restored but before my next dose is due, for an hour or so I experience total confusion, anxiety
Debs65
in
Cure Parkinson's
12 years ago
BUSCOPAN for IBS
does anone know if i take BUSCOPAN FOR IBS - IT WILL BE BAD FOR ME OR MY MEDS - I AM ON MODOPAR AND NEUPRO PATCHES- i have looked it up on line but it does not go into enough detail
does anone know if i take BUSCOPAN FOR IBS - IT WILL BE BAD FOR ME OR MY MEDS - I AM ON MODOPAR AND NEUPRO PATCHES- i have looked it up on line but it does not go into enough detail
shasha
in
Cure Parkinson's
12 years ago
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