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Low Platelet count from new member
CLL is there a platelet transfusion to boost platelet count.? It's the only troubling number in my bloodwork having been diagnosed in 2011.
CLL is there a platelet transfusion to boost platelet count.? It's the only troubling number in my bloodwork having been diagnosed in 2011.
PajamaGame
in
CLL Support
2 years ago
CoQ10 dosage and when to take ?
I have CLL and my hematologist approved CoQ10. CoQ10 is recommended in Mayo litererature, for those with no counter-indications. But I lack good information about how many mg CoQ10 that I could ingest daily, and when to take the cap or caps . Thus, I would appreciate guidance. Also suggestions
I have CLL and my hematologist approved CoQ10. CoQ10 is recommended in Mayo litererature, for those with no counter-indications. But I lack good information about how many mg CoQ10 that I could ingest daily, and when to take the cap or caps . Thus, I would appreciate guidance. Also suggestions
janvog
in
CLL Support
2 years ago
To remove my port or not?
Hello, I am a 66 year old male, CLL for about 10 years, was in W &W until Feb, 2021, then completed 6 months treatment with Bendamustine and Rituximab in July 2021, two follow up appts. since then both went well with MRD at 0.07%. I had a Infusaport (port) placed for my treatment. My question is for
Hello, I am a 66 year old male, CLL for about 10 years, was in W &W until Feb, 2021, then completed 6 months treatment with Bendamustine and Rituximab in July 2021, two follow up appts. since then both went well with MRD at 0.07%. I had a Infusaport (port) placed for my treatment. My question is for
napa
in
CLL Support
2 years ago
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COVID-19 UPDATES - The latest experimental therapies - not CLL specific, but potential treatment for COVID-19 in many cancer patients
COVID-19 UPDATES Dr. Leyfman Discusses the Increased Risk of COVID-19 and Cancer Patients In our third and final interview with , experimental therapies for COVID-19 are discussed. While not CLL specific, Dr. Leyfman does present potential options for treating COVID-19 in cancer patients broadly.
COVID-19 UPDATES Dr. Leyfman Discusses the Increased Risk of COVID-19 and Cancer Patients In our third and final interview with , experimental therapies for COVID-19 are discussed. While not CLL specific, Dr. Leyfman does present potential options for treating COVID-19 in cancer patients broadly.
lankisterguy
Volunteer
in
CLL Support
2 years ago
Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Luv2Craft
in
CLL Support
2 years ago
To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
APS and non-Hodgkin's Lymphoma
I was recently diagnosed with non Hodgkins Lymphoma. Is there anyone else in our group with APS and non Hodgkins Lymphoma? Also of note....back in 2018 when I was first diagnosed with APS I asked the hematologist if I might have Lymphoma as I saw a correlation between the 2 in my research online.
I was recently diagnosed with non Hodgkins Lymphoma. Is there anyone else in our group with APS and non Hodgkins Lymphoma? Also of note....back in 2018 when I was first diagnosed with APS I asked the hematologist if I might have Lymphoma as I saw a correlation between the 2 in my research online.
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
Leukemia & Lymphoma Society (USA) provides a LLS Clinical Trial Nurse Navigator to assist you throughout the entire clinical trial process
CLINICAL TRIAL SUPPORT CENTER (CTSC)
https://www.lls.org/support-resources/clinical-trial-support-center-ctsc?c_src Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma
CLINICAL TRIAL SUPPORT CENTER (CTSC)
https://www.lls.org/support-resources/clinical-trial-support-center-ctsc?c_src Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma
lankisterguy
Volunteer
in
CLL Support
3 years ago
New Mermber w MCL strating rescue treatment w Calquence
Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6 Qts, then only Rituximab every two months for 24 months, ended on Feb 2021 w excellent results, then on Nov/Dec 2021. Symtoms reappearded on Nov/Dec 2021. On Jan 2022 started new treatment w Calquence, doing ok till now
Hi, Im new here I have MCL, started my treatment w Benedustine + Rituximab for 6 Qts, then only Rituximab every two months for 24 months, ended on Feb 2021 w excellent results, then on Nov/Dec 2021. Symtoms reappearded on Nov/Dec 2021. On Jan 2022 started new treatment w Calquence, doing ok till now
xxje
in
Non Hodgkin's Lymphoma Friends
3 years ago
Evidence omicron risk is higher for blood cancer patients
after two vaccine doses, neutralising antibodies against omicron was detectable in 19% patients against delta was detetable in 39% against original SARS-CoV-2 in 89% patients (p<0.0001). After third vaccine dose, against omicron was 56% against delta 71% and original 86%. CLL patients may
after two vaccine doses, neutralising antibodies against omicron was detectable in 19% patients against delta was detetable in 39% against original SARS-CoV-2 in 89% patients (p<0.0001). After third vaccine dose, against omicron was 56% against delta 71% and original 86%. CLL patients may
Bartlet
in
CLL Support
3 years ago
R-Chop failed with lymphoma, what's next treatment?
My wife (81 but in great physical shape) was diagnosed with stage 3 follicular lymphoma and began R-Chop therapy in August 2021, finished December. Pet scan late December showed a return of several nodes that an earlier Pet scan (October) showed "almost resolved". The Doctor is concerned that her condition
My wife (81 but in great physical shape) was diagnosed with stage 3 follicular lymphoma and began R-Chop therapy in August 2021, finished December. Pet scan late December showed a return of several nodes that an earlier Pet scan (October) showed "almost resolved". The Doctor is concerned that her condition
ronsolo306
in
Non Hodgkin's Lymphoma Friends
3 years ago
R-Chop failed with lymphoma, What's Next?
My wife (81 but in great physical shape) was diagnosed with stage 3 follicular lymphoma and began R-Chop therapy in August 2021, finished December. Pet scan late December showed a return of several nodes that an earlier Pet scan (October) showed "almost resolved". The Doctor is concerned that her condition
My wife (81 but in great physical shape) was diagnosed with stage 3 follicular lymphoma and began R-Chop therapy in August 2021, finished December. Pet scan late December showed a return of several nodes that an earlier Pet scan (October) showed "almost resolved". The Doctor is concerned that her condition
ronsolo306
in
CLL Support
3 years ago
Accessing new treatments against COVID19 and priority PCR home test kits
Blood Cancer UK have sent me a survey "With an increase in Omicron cases, we know it's an understandably worrying time for people with blood cancer. That's why we've launched a new survey about blood cancer and vaccines, access to new treatments, and employment" I cannot direct you to this with a direct
Blood Cancer UK have sent me a survey "With an increase in Omicron cases, we know it's an understandably worrying time for people with blood cancer. That's why we've launched a new survey about blood cancer and vaccines, access to new treatments, and employment" I cannot direct you to this with a direct
Sumoldbloke
in
CLL Support
3 years ago
Repress Cancer Cells
High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate Bradley S. Hanberry, Ryan Berger, and Jason A. Zastre Department of Pharmaceutical and Biomedical Sciences, College of Pharmacy, University of Georgia, R.C. Wilson Pharmacy Building, Athens, GA, 30602 USA
High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate Bradley S. Hanberry, Ryan Berger, and Jason A. Zastre Department of Pharmaceutical and Biomedical Sciences, College of Pharmacy, University of Georgia, R.C. Wilson Pharmacy Building, Athens, GA, 30602 USA
Hidden
in
Non Hodgkin's Lymphoma Friends
3 years ago
Dr. Koffman’s ASH 2021 Day 4 Highlights
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Anyone else stopping RITUXIMAB
Hi everyone I hope ur all well. I am interested to know if anyone has been advised to stop RITUXIMAB infusions? I went for my infusion on Thursday (it was 5 weeks late as I had a third dose of vaccine in between time) My consultant told me patients on ritux who contracted covid had no efficacy. The vaccines
Hi everyone I hope ur all well. I am interested to know if anyone has been advised to stop RITUXIMAB infusions? I went for my infusion on Thursday (it was 5 weeks late as I had a third dose of vaccine in between time) My consultant told me patients on ritux who contracted covid had no efficacy. The vaccines
Maverick77
in
LUPUS UK
3 years ago
No Hodgkins Lymphoma infusion
Has any one gone through infusion cycles using Obinitusamab and bendamustine 6 cycles. What side effects and how did you deal with side effect symptoms.
Has any one gone through infusion cycles using Obinitusamab and bendamustine 6 cycles. What side effects and how did you deal with side effect symptoms.
Spascal
in
Non Hodgkin's Lymphoma Friends
3 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
3 years ago
Mantle Cell Lymphoma...need best treatment options
Can anyone help with Mantle Cell Lymphoma and what treatments are available? I know this forum is for CLL/SLL but does anyone have any information on this? A good friend was diagnosed yesterday, Stage 4, and he says he won't take the radiation/drip treatment.
Can anyone help with Mantle Cell Lymphoma and what treatments are available? I know this forum is for CLL/SLL but does anyone have any information on this? A good friend was diagnosed yesterday, Stage 4, and he says he won't take the radiation/drip treatment.
DawnRedwood
in
CLL Support
3 years ago
Reduce cancerous cells
Low doses of thiamine hcl increase cancer threat ….. High dose is considered above 75mg per day. .https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC3963161/?fbclid=IwAR3UMFj4c2z24JeAfiOoF79xej4LMJKUVZvSfheDAhHqkwB1lJNdo1LrpTU
Low doses of thiamine hcl increase cancer threat ….. High dose is considered above 75mg per day. .https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC3963161/?fbclid=IwAR3UMFj4c2z24JeAfiOoF79xej4LMJKUVZvSfheDAhHqkwB1lJNdo1LrpTU
Hidden
in
Non Hodgkin's Lymphoma Friends
3 years ago
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