Experiences with

Low Dose Naltrexone (LDN)

Feeling really well today, early days though am 11 days in on 15 mg pred. I've picked up on a low carb diet being a good thing to follow. Any advice on this would be welcome. How many carbs should I be aiming a per day/meal?

Also was not opposed to the LDN (Low Dose Naltrexone) but could not give me a prescription for it. Suggested I take a lowish dose of ant inflammatory when I need - for pain - if for instance when Ive overdone it s bit He has given me a tapering protocol. All round I feel better for seeing him.

Hi Everyone, School is back in session and I am back to working full time. I am so grateful to have had the summer off to recuperate. Unfortunately as you all know from my last post I suffered a flare due to a stress related incident in July. I was down to 4MG (with Actemra). I increased to 5MG but

Saw my Rheumatologist today - seriously don't know why I pay him over £200 for less than 15 minutes! He said I must speak to my GP about the depression. Said the Dead Dlow Nearly Stop method is all well and good but he would like me to go down 1mg per month and I must just push through - Mmmm clearly

Given we hear lots of discussion on this forum regarding the multiple benefits of a low carb diet for people taking Pred - many may find this Lancet journal article (from the HU 'Healthy Eating' forum) of interest: http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(17)32252-3/abstract Best

Hi all anyone heard of LDN or low dose Naltrexone? There seem to be good results for ms sufferers and other autoimmune disorders although there is no mention of PMR specifically.

Hello all, You might remember me from my frustrated and angry post 2 months ago. Thanks to this wonderful forum I have learned to pace and start to accept the new me. Unfortunately even though I started a low carb, sugar free diet I have gained over 15 pounds since the middle of June. Of course

Just thought I would put on an update on the low carb eating regime I started nearly 7 months ago. Yay I've bit my goal weight this week😃. I started this year at 17.5 stone which is the heaviest I've been. I've stuck to the low carb diet pretty easily, no bread, potatoes or pasta and I've not found

I'm feeling v discouraged, last couple of days because, despite noticeably reducing Pred - now on 12mg ->> 11mg - my steroid-induced diabetes seems to be getting worse instead of better. My blood sugars are creeping up; not disastrous, but are hovering around 14mmol/l at all times - too high. This is

I haven't been on here for a while as I have been quietly getting on with managing my pmr and pred reduction with little or no drama. I am now down at 2.5mg after a little under 2 years and it looks promising that I should be off pred within the year possibly by October if all goes to plan. (dead slow

Hi all - has anyone tried Low Dose Naltrexone - and what were the results?

Hi all, I had been having a good spell and managed to get down to 22.5. The magic number I reached last time before a flare sent me back up again. My blood pressure increased and I was told to buy a monitor. Went to the doc as I was comcerned. She asked me if she would regret taking it in the surgery

I wrote several months ago on a fairly controversial topic regarding starting the use of Low Dose Naltrexone (orally 0.5mg) which in a short time made me feel nauseous even on such a low dose.

I suffer from PMR and have been prescribed prednisolone I am currently on now 2mg per day, having worked my way down from 40mg, I excercise 3-4 days a week and eat a high protein, low fat and low carb diet. I am very active at work and on average walk 10000 steps daily. My problem is I am gaining weight

hello Today I have my appt . to go over biopsy report and talk over dosing. I did not decreaes today due to being on the antiviral for a " shingle" like rash, it is a typical as crosses the midline of my abdomen. stopped the spread so that's positive. I didnt decrease due to advice here, thank you

This is the week when I'm down to 1mg of pred per day and feeling none the worse. Best wishes to everyone who is still struggling and feeling they're getting nowhere. Believe me, eventually you will find that 'somewhere' - maybe 'over the rainbow'! Good luck. Oh and the low carb diet is still wiorking

Maybe it's a bit early to say but I started quite a strict low carb diet two weeks ago and I am definitely feeling better. I have less pain and general mood is better and have also let 5lb in weight. The diet, or should I say new eating regime, does not mean I'm starving myself in fact quite the opposite

New to this website. I was diagnosed with GCA (Temporal Arteritis) in Nov 2016. [ESR = 86]. Started on 40mg Pred for a month; then gradually started to taper - down to 20 - then flare ~ 3 weeks ago. Back up to 30mg, then 25, now 20. Too fast? Not sure how effective it is. When I have a headache

I've been trying to stick to a low carb diet since 1 January (new Year's Resolution) to lose some of the weight I've gained since starting Pred for pmr in August. At first I lost a few pounds but since then, nothing. I have been following the Diet Doctor advice which advocates eating high fat foods instead

Me again. Full of questions today. I'm learning how to rest my body, but my mind just doesn't want to play that game! Okay, here goes.... My GP says my cholesterol is raised at 7.1. The cholesterol-reducing diet sheet he gave me sats that I should base all meals on a good size serving of carbs (and