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Hairy Cell Leukaemia
I was diagnosed with hairy cell
leukaemia
in may 2018. I was treated with cladribine. I gained partial remission in December 2018. After a bone marrow biopsy in March 2019 my
leukaemia
is growing again and I need further treatment.
I was diagnosed with hairy cell
leukaemia
in may 2018. I was treated with cladribine. I gained partial remission in December 2018. After a bone marrow biopsy in March 2019 my
leukaemia
is growing again and I need further treatment.
Sajsingers
in
Leukaemia CARE
5 years ago
Lab Visit
B cell and T cell signalling and how they regulate pathways in B and T cell
Leukaemia
and Lymphoma. How Molecular mechanisms control proliferation and survival in malignant lymphocytes and research into developing novel compounds to interfere with key cancer promoting pathways.
B cell and T cell signalling and how they regulate pathways in B and T cell
Leukaemia
and Lymphoma. How Molecular mechanisms control proliferation and survival in malignant lymphocytes and research into developing novel compounds to interfere with key cancer promoting pathways.
retired46
in
CLL Support
5 years ago
ASH 2018: Dr. Lindsey Roeker, on real world use of venetoclax for CLL (chronic lymphocytic leukemia)
Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news: https://cllsociety.org/2019/06/ash-2018-dr-lindsey-roeker-on-real-world-use-of-venetoclax-for-cll-chronic-lymphocytic-leukemia/
Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news: https://cllsociety.org/2019/06/ash-2018-dr-lindsey-roeker-on-real-world-use-of-venetoclax-for-cll-chronic-lymphocytic-leukemia/
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
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Upcoming event CLL Ireland National information day June 8th
Confirmed speakers Dr Brian Koffman and Patty Koffman CLL Society Nick York
Leukaemia
Care It's Free to attend but Registration is necessary - go to http://eepurl.com/go9zeL
Confirmed speakers Dr Brian Koffman and Patty Koffman CLL Society Nick York
Leukaemia
Care It's Free to attend but Registration is necessary - go to http://eepurl.com/go9zeL
Irishcll
in
CLL Ireland
5 years ago
Starting my diagnostic journey
Hello. So glad to find this resource. I am a 68 year old woman in excellent general health. Yet I just learned two weeks ago that I have CLL, probably SLL. I’ve been working with a wonderful hematologist in nyc and hope to be seen soon at Sloan Kettering and Weill Cornell. Today my doctor said that my
Hello. So glad to find this resource. I am a 68 year old woman in excellent general health. Yet I just learned two weeks ago that I have CLL, probably SLL. I’ve been working with a wonderful hematologist in nyc and hope to be seen soon at Sloan Kettering and Weill Cornell. Today my doctor said that my
Sunfishjoy
in
CLL Support
5 years ago
Bendamustine and Rituximab and liver toxicity
My first round of BR went fine with no change in liver numbers. My ALT and AST are usually under 20. Three days after my second round they were slightly over 20, 5 days after the second round they were close to 40, and 10 days after the second round (today) they are over 100, which concerns me. Has anyone
My first round of BR went fine with no change in liver numbers. My ALT and AST are usually under 20. Three days after my second round they were slightly over 20, 5 days after the second round they were close to 40, and 10 days after the second round (today) they are over 100, which concerns me. Has anyone
profrich
in
CLL Support
5 years ago
High MCV
Hi, I have PV and being treated with hydroxycarbamide 1000/1500mg alternate days. This seems to be keeping main bloods under control apart from a steady increase in my MCV level. When I last saw my haematologist 3 months ago he was very relaxed about it, saying it was only to be expected when on hydroxycarbamide
Hi, I have PV and being treated with hydroxycarbamide 1000/1500mg alternate days. This seems to be keeping main bloods under control apart from a steady increase in my MCV level. When I last saw my haematologist 3 months ago he was very relaxed about it, saying it was only to be expected when on hydroxycarbamide
paddy67
in
MPN Voice
5 years ago
I’ve had Polycythemia Vera for 10 years. Dr. suspects it is turning into Myleofibrosis
Good morning. I was diagnosed about 10 years ago with Polycythemia Vera. I am Jak2 positive. I was prescribed hydroxyurea and one low-dose aspirin a day. I also had phlebotomies when my hematocrit was over 42. Recently my hematologist felt like my polycythemia vera May be changing into Myleofibrosis.
Good morning. I was diagnosed about 10 years ago with Polycythemia Vera. I am Jak2 positive. I was prescribed hydroxyurea and one low-dose aspirin a day. I also had phlebotomies when my hematocrit was over 42. Recently my hematologist felt like my polycythemia vera May be changing into Myleofibrosis.
Cknight6
in
MPN Voice
5 years ago
Bendamustine and Rituximab and Low Lymphocyte Count
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
profrich
in
CLL Support
5 years ago
High Red Blood counts neg. Jak2 and all mutation tests
I have been diagnosed with primary polycythemia because all of my red blood counts were all quite high. My platelets were normal but monocytes were high and mutation tests came back negative. I’m scheduled to see hematologist in a month, it’s frustrating! I read that sometimes mutation ie jak2 sometimes
I have been diagnosed with primary polycythemia because all of my red blood counts were all quite high. My platelets were normal but monocytes were high and mutation tests came back negative. I’m scheduled to see hematologist in a month, it’s frustrating! I read that sometimes mutation ie jak2 sometimes
Cali-Med
in
MPN Voice
5 years ago
Jakafi
Diagnosed with myelofibrosis on 10/17. Began jakafi 3 weeks ago. Platelets went down to 80 and doctor told me to stop jakafi. Did that last night and experienced terrible stomach intestinal problems this morning. Has anyone out there had same experience?
Diagnosed with myelofibrosis on 10/17. Began jakafi 3 weeks ago. Platelets went down to 80 and doctor told me to stop jakafi. Did that last night and experienced terrible stomach intestinal problems this morning. Has anyone out there had same experience?
USSpurdy
in
MPN Voice
5 years ago
A phase II trial of eltrombopag for patients with CLL and thrombocytopenia
Approximately 5% of patients with previously‐untreated chronic lymphocytic
leukaemia
(CLL) and 25–30% of patients with previously‐treated CLL have thrombocytopenia (Tsang & Parikh, 2017). As thrombocytopenia is commonly seen in active CLL, the diagnosis of CLL‐associated ITP can be difficult.
Approximately 5% of patients with previously‐untreated chronic lymphocytic
leukaemia
(CLL) and 25–30% of patients with previously‐treated CLL have thrombocytopenia (Tsang & Parikh, 2017). As thrombocytopenia is commonly seen in active CLL, the diagnosis of CLL‐associated ITP can be difficult.
Jm954
Administrator
in
CLL Support
5 years ago
New Leukaemia Care pens available to order
Hi all, A patient spotted one of our new quirky pens last week and we've been overwhelmed with people asking for one. We've now created a form for people to order them online. They are currently UK only and full box orders are restricted to hospitals https://www.leukaemiacare.org.uk/syringe-pens-order-form
Hi all, A patient spotted one of our new quirky pens last week and we've been overwhelmed with people asking for one. We've now created a form for people to order them online. They are currently UK only and full box orders are restricted to hospitals https://www.leukaemiacare.org.uk/syringe-pens-order-form
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
5 years ago
Granddaughter diagnosed with acute lymphoblastic leukaemia
My 4 year old granddaughter was diagnosed with acute lymphoblastic
leukaemia
about 5 weeks ago. She has been in hospital on and off for about 4 weeks. She keeps getting infections and viruses and has had gruelling chemotherapy.
My 4 year old granddaughter was diagnosed with acute lymphoblastic
leukaemia
about 5 weeks ago. She has been in hospital on and off for about 4 weeks. She keeps getting infections and viruses and has had gruelling chemotherapy.
Nanny1952
in
Leukaemia CARE
5 years ago
Newbie ...
I was diagnosed with
leukaemia
in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular risks.
I was diagnosed with
leukaemia
in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular risks.
SomersetJo
in
British Heart Foundation
5 years ago
Chronic lymphocytic leukemia/B-cell prolymphocytic leukemia. A tutorial for physicians, useful for us too.
From Feb 2019 An extensive overview of CLL, directed at educating PCPs or GPs covering all aspects of the disease, investigation and treatment. https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/hematology/chronic-lymphocytic-leukemia-b-cell-prolymphocytic-leukemia-2/ Jackie
From Feb 2019 An extensive overview of CLL, directed at educating PCPs or GPs covering all aspects of the disease, investigation and treatment. https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/hematology/chronic-lymphocytic-leukemia-b-cell-prolymphocytic-leukemia-2/ Jackie
Jm954
Administrator
in
CLL Support
5 years ago
We eat what we are – let’s detoxify the word ‘chemical’
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
AussieNeil
Administrator
in
CLL Support
5 years ago
UK CLL Clinical Trial Portfolio updated May 2019
The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us https://www.cllsupport.org.uk/article/uk-cll-clinical-trials-portfolio-may-2019
The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us https://www.cllsupport.org.uk/article/uk-cll-clinical-trials-portfolio-may-2019
Myrddin
in
CLL Support
5 years ago
Cheap Ibrutinib for B Cell Prolymphocitic Leukemia Patient in Pakistan
My father was diagnosed with B Cell Prolymphocitic Leukemia in March 2017. He received 6 Cycles of Chemotherapy (Rituximab+Bendamestine). Last cycle was received in January 2018. Now the disease has relapsed and doctor has advised Ibrutinib. In Pakistan Ibrutinib costs Pakistani Rupees 200,000/- per
My father was diagnosed with B Cell Prolymphocitic Leukemia in March 2017. He received 6 Cycles of Chemotherapy (Rituximab+Bendamestine). Last cycle was received in January 2018. Now the disease has relapsed and doctor has advised Ibrutinib. In Pakistan Ibrutinib costs Pakistani Rupees 200,000/- per
B-PLL_Pakistan
in
Leukaemia CARE
5 years ago
Cheap Ibrutinib for B Cell Prolymphocitic Leukemia Patient in Pakistan
My father was diagnosed with B Cell Prolymphocitic Leukemia in March 2017. He received 6 Cycles of Chemotherapy (Rituximab+Bendamestine). Last cycle was received in January 2018. Now the disease has relapsed and doctor has advised Ibrutinib. In Pakistan Ibrutinib costs Pakistani Rupees 200,000/- per
My father was diagnosed with B Cell Prolymphocitic Leukemia in March 2017. He received 6 Cycles of Chemotherapy (Rituximab+Bendamestine). Last cycle was received in January 2018. Now the disease has relapsed and doctor has advised Ibrutinib. In Pakistan Ibrutinib costs Pakistani Rupees 200,000/- per
B-PLL_Pakistan
in
CLL Support
5 years ago
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