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Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Prof Fegan talks from ASH 2018 | Telomere length can predict the outcome of FCR chemoimmunotherapy in CLL
We are in an era of fast evolving blood cancer treatment, novel non chemo therapies and new combinations offer the potential for individualised therapy choices based upon cryogenics and physiology. Individualised treatment plans for patients require reliable predictive prognostic tests to rule out
We are in an era of fast evolving blood cancer treatment, novel non chemo therapies and new combinations offer the potential for individualised therapy choices based upon cryogenics and physiology. Individualised treatment plans for patients require reliable predictive prognostic tests to rule out
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Raising funds across the Sahara.
Good morning Last year I posted a message to say that my youngest daughter would run six marathons in six days ,self supported across the Sahara desert to raise funds for MPN Voice ,who do such exemplary work for people like me who have been diagnosed with myelofibrosis and others with myeloproliferative
Good morning Last year I posted a message to say that my youngest daughter would run six marathons in six days ,self supported across the Sahara desert to raise funds for MPN Voice ,who do such exemplary work for people like me who have been diagnosed with myelofibrosis and others with myeloproliferative
kevinbros
in
MPN Voice
6 years ago
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Leukaemia Care CLL Support Groups
Leukaemia
care have announced the dates for their CLL Support groups for 2019 in Nottingham and Cambridge. Follow link for dates. https://www.cllsupport.org.uk/news/
leukaemia
-care-cll-support-groups
Leukaemia
care have announced the dates for their CLL Support groups for 2019 in Nottingham and Cambridge. Follow link for dates. https://www.cllsupport.org.uk/news/
leukaemia
-care-cll-support-groups
Myrddin
in
CLL Support
6 years ago
CLL, Bladder Cancer and BCG coming up for me
I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of extreme hemolytic reaction. Chemo infusions again in 2015, worked for a couple of years. Started Ibrutinib in April 2018. Prostate resection in D3cemer 2018.
I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of extreme hemolytic reaction. Chemo infusions again in 2015, worked for a couple of years. Started Ibrutinib in April 2018. Prostate resection in D3cemer 2018.
Jvanfire
in
CLL Support
6 years ago
CLL is no longer dormant
I live in Hamilton and being followed by a Hematologist at Mc Master. I have had my condition for 8 years and have never had a risk assessment. I had another blood test done and I am seeing my specialist Tuesday. This last year has not been so good . Should I request a Fish test, CT scan etc or what
I live in Hamilton and being followed by a Hematologist at Mc Master. I have had my condition for 8 years and have never had a risk assessment. I had another blood test done and I am seeing my specialist Tuesday. This last year has not been so good . Should I request a Fish test, CT scan etc or what
Mamouchi
in
CLL Support
6 years ago
Hospice / Pallative Care / Supportive Care for Blood Cancer patients is not suggested soon enough
Hematologists are outliers in care at the end of life EXPERT ANALYSIS FROM ASH 2018 Publish date: December 20, 2018 By Randy Dotinga Hematology News - SAN DIEGO – When it comes to aggressive care at the end of life, hematologists stand alone. ASH paper by Dr. David Hui of MD Anderson Cancer Center
Hematologists are outliers in care at the end of life EXPERT ANALYSIS FROM ASH 2018 Publish date: December 20, 2018 By Randy Dotinga Hematology News - SAN DIEGO – When it comes to aggressive care at the end of life, hematologists stand alone. ASH paper by Dr. David Hui of MD Anderson Cancer Center
lankisterguy
Volunteer
in
CLL Support
6 years ago
Deborah Sims discusses quality of life and CLL treatments
Filmed at ASH18, In this
Leukaemia
care video, Deborah, a CLL patient and patient advocate discusses the move by doctors towards talking about quality of life for patients when discussing treatment options. https://youtu.be/bH1xxyUhQY0
Filmed at ASH18, In this
Leukaemia
care video, Deborah, a CLL patient and patient advocate discusses the move by doctors towards talking about quality of life for patients when discussing treatment options. https://youtu.be/bH1xxyUhQY0
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Dr Manos Nikolousis video series filmed at the American Society of Haematology 2018 - Progress and reasons to be optimistic for AML patients
next three years, that when combined with knowledge of an individuals cryogenics and morphology will enable a proper approach to personalised treatment. https://youtu.be/2qd0c4TDRYc In this last clip Dr Manos Nikolousis discusses new trials in relapsed or refractory AML https://youtu.be/O6y5kfMj4aI
Leukaemia
next three years, that when combined with knowledge of an individuals cryogenics and morphology will enable a proper approach to personalised treatment. https://youtu.be/2qd0c4TDRYc In this last clip Dr Manos Nikolousis discusses new trials in relapsed or refractory AML https://youtu.be/O6y5kfMj4aI
Leukaemia
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
ASH 2018: Professor Peter Hillmen on the Combination of Ibrutinib and Obinutuzumab in CLL: Timing Matters
- Professor Peter Hillmen .... has chaired the chronic lymphocytic
leukaemia
(CLL) trials sub-group of the National Cancer Research Institute (NCRI) in the UK since 2002. He has lead the UK, and perhaps the world, in developing fast moving, clinically relevant and responsive trial design.
- Professor Peter Hillmen .... has chaired the chronic lymphocytic
leukaemia
(CLL) trials sub-group of the National Cancer Research Institute (NCRI) in the UK since 2002. He has lead the UK, and perhaps the world, in developing fast moving, clinically relevant and responsive trial design.
lankisterguy
Volunteer
in
CLL Support
6 years ago
Starting Bendamustine tomorrow
Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular NHL. I had Rituxan 2 days ago and it went pretty well. What can I expect as I start the chemo? I’ve read up on all of the possibilities but thought I should ask some real warriors! Thanks so much 🙏🏼
Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular NHL. I had Rituxan 2 days ago and it went pretty well. What can I expect as I start the chemo? I’ve read up on all of the possibilities but thought I should ask some real warriors! Thanks so much 🙏🏼
Finschick
in
CLL Support
6 years ago
What a year - and some good news to end it
Back in January I was diagnosed with ET, then MF (despite having no fibrosis but I didn’t realise this made no sense at the time) and then imminent AML (despite having no
leukaemia
cells but, again, when the doctor tells you something you tend to take their word for it).
Back in January I was diagnosed with ET, then MF (despite having no fibrosis but I didn’t realise this made no sense at the time) and then imminent AML (despite having no
leukaemia
cells but, again, when the doctor tells you something you tend to take their word for it).
Timjonze
in
MPN Voice
6 years ago
FCR, novel agents, advances in CLL treatment, what CLL patients can hope for in the future. Australian experts discuss advances at ASH2018
Leukaemia
Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https://youtu.be/rcrhOkkFW5o
Leukaemia
Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https://youtu.be/rcrhOkkFW5o
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
FCR, novel agents, advances in CLL treatment, what CLL patients can hope for in the future. Australian experts discuss advances at ASH2018
Leukaemia
Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https://youtu.be/rcrhOkkFW5o
Leukaemia
Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https://youtu.be/rcrhOkkFW5o
HAIRBEAR_UK
Administrator
in
CLL Support
6 years ago
ibrutinib, opposite effect.
Hi there everyone, Hope everyone is doing well. Happy New Year! I am writing this post because my dad just started ibrutinib on December 19 2018 and has went for two weekly blood tests, and each time his white blood count levels have gone down ( we were told it would skyrocket.) His WBC was at 406 in
Hi there everyone, Hope everyone is doing well. Happy New Year! I am writing this post because my dad just started ibrutinib on December 19 2018 and has went for two weekly blood tests, and each time his white blood count levels have gone down ( we were told it would skyrocket.) His WBC was at 406 in
aj33
in
CLL Support
6 years ago
Antioxidants: good, bad or indifferent...
How well, I remember my Merlot cure of 2012... Resveratrol a stilbenoids, has been looked at in CLL, and seems to have some sinergy with fludarabine... [i]Antioxidants and their putative beneficial effects on health have been in the medical news for as long as I can remember. Antioxidants act as ‘free
How well, I remember my Merlot cure of 2012... Resveratrol a stilbenoids, has been looked at in CLL, and seems to have some sinergy with fludarabine... [i]Antioxidants and their putative beneficial effects on health have been in the medical news for as long as I can remember. Antioxidants act as ‘free
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Want to help my dad
My dad has had essential thrombocythemia jak 2 positive for a year. He used to work and be fairly active, but this seems to be getting the better of him and he's always fatigued and it's getting him down. How can I help him start finding some enjoyment out of life again? Is there a fitness, diet or hobby
My dad has had essential thrombocythemia jak 2 positive for a year. He used to work and be fairly active, but this seems to be getting the better of him and he's always fatigued and it's getting him down. How can I help him start finding some enjoyment out of life again? Is there a fitness, diet or hobby
Pgm1987
in
MPN Voice
6 years ago
3 On-Line Immunology Courses are Being Offered by Rice University, Houston
If you have some college biology under your belt, Rice University in Houston has recently moved their on-line immunology courses from the EdX.org platform to the Coursera.org platform. These are not focused on any specific disease, though diseases, including cancer, are mentioned, as are the use of
If you have some college biology under your belt, Rice University in Houston has recently moved their on-line immunology courses from the EdX.org platform to the Coursera.org platform. These are not focused on any specific disease, though diseases, including cancer, are mentioned, as are the use of
SeymourB
in
CLL Support
6 years ago
Confused
Hi Everyone I have had PMR for about 4months now , I take 15mg ofSteroids lowered down to 14 mg now, have had blood tests every 4 weeks and see doctor also every 4weeks . saw doc today and tests for my white cells have gone up each month ,he thinks that I have
Leukaemia
and have been referred to a
Hi Everyone I have had PMR for about 4months now , I take 15mg ofSteroids lowered down to 14 mg now, have had blood tests every 4 weeks and see doctor also every 4weeks . saw doc today and tests for my white cells have gone up each month ,he thinks that I have
Leukaemia
and have been referred to a
Annecath
in
PMRGCAuk
6 years ago
Does anyone know whether you can take vitamin B12 whilst taking hydroxycarbamide?
I have read that vitamin B12 can help anaemia and some cancers, I've been taking hydroxycarbamide for nearly a year, is it safe to take vitamin B12?
I have read that vitamin B12 can help anaemia and some cancers, I've been taking hydroxycarbamide for nearly a year, is it safe to take vitamin B12?
lizl
in
MPN Voice
6 years ago
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