Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,284 public posts
Filter results
Newly diagnosed too, stage 0
I am 53, I found out due to my yearly checkups, my WBC are in 12000 which I understand is nothing yet. I did the FISH and I have the 13q deletion, not TP53 mutated and IGVH mutated. After the initial shock which was due to lack of information, I am doing ok. I haven’t been to my doctor to explain
I am 53, I found out due to my yearly checkups, my WBC are in 12000 which I understand is nothing yet. I did the FISH and I have the 13q deletion, not TP53 mutated and IGVH mutated. After the initial shock which was due to lack of information, I am doing ok. I haven’t been to my doctor to explain
patilin
in
CLL Support
5 years ago
Richter Transformation possible?
While I'm waiting for my husband Fish test, I'm reading about Richter transformation and feel scared as my husband has some of the symtoms: - enlarged spleen, quite massive, developed quite quick within one year - always feel hot (sweat) - lose weight - about 2 kg in 6 months - low platelet -77 ( last
While I'm waiting for my husband Fish test, I'm reading about Richter transformation and feel scared as my husband has some of the symtoms: - enlarged spleen, quite massive, developed quite quick within one year - always feel hot (sweat) - lose weight - about 2 kg in 6 months - low platelet -77 ( last
writepa
in
CLL Support
5 years ago
Dr. Siddiqi on Rationale for the TRANSCEND CAR-T CLL 004 Trial in CLL/SLL
[i]Tanya Siddiqi, MD, director, Chronic Lymphocytic Leukemia Program, Toni Stephenson Lymphoma Center, associate clinical professor, Department of Hematology & Hematopoietic Cell Transplantation, and a hematologist/oncologist at City of Hope, discusses the rationale for the phase I/II TRANSCEND CLL 004
[i]Tanya Siddiqi, MD, director, Chronic Lymphocytic Leukemia Program, Toni Stephenson Lymphoma Center, associate clinical professor, Department of Hematology & Hematopoietic Cell Transplantation, and a hematologist/oncologist at City of Hope, discusses the rationale for the phase I/II TRANSCEND CLL 004
AussieNeil
Partner
in
CLL Support
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Leukaemia Care selected as Telegraph charity for Christmas appeal. Article 'I've become best friends with the woman who saved my life'
https://youtu.be/zBrhezXxfSM Read Nickey and Anette's story https://www.telegraph.co.uk/christmas/0/become-best-friends-woman-saved-life/?WT.mc_id=tmgoff_hootsuite&utm_source=tmgoff_socialteam&utm_medium=twitter&utm_content=edd29791-5f21-45f4-b70f-6d712c9f9e37&utm_campaign=telegraph Snip: '[i] It’s
https://youtu.be/zBrhezXxfSM Read Nickey and Anette's story https://www.telegraph.co.uk/christmas/0/become-best-friends-woman-saved-life/?WT.mc_id=tmgoff_hootsuite&utm_source=tmgoff_socialteam&utm_medium=twitter&utm_content=edd29791-5f21-45f4-b70f-6d712c9f9e37&utm_campaign=telegraph Snip: '[i] It’s
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
Why do some health professional behave in a nasty manner?
but also with Chronic kidney disease grade 4, as well as chronic lymphacytic
leukaemia
, and osteoearthritis of the spine, hands and feet, and high blood pressure.
but also with Chronic kidney disease grade 4, as well as chronic lymphacytic
leukaemia
, and osteoearthritis of the spine, hands and feet, and high blood pressure.
sandyandtweed
in
Kidney Disease
5 years ago
Starting Treatment
I've been on W & W for 6 years, mutated IGVH, All the good genetic marker. My numbers are all quite good, no symtoms, feeling normal for 65, very fit, and I would remain in W & W except for the fact that my Neurtrophil count is dangerously low, .8 as of yesterday, up from .5 2 weeks ago. My Onc/Hem
I've been on W & W for 6 years, mutated IGVH, All the good genetic marker. My numbers are all quite good, no symtoms, feeling normal for 65, very fit, and I would remain in W & W except for the fact that my Neurtrophil count is dangerously low, .8 as of yesterday, up from .5 2 weeks ago. My Onc/Hem
12Caine12
in
CLL Support
5 years ago
Painful toes
Hi, I have recently been diagnosed with cml, not seen a specialist yet though it’s been 6 weeks since diagnosis via my hiv specialist who has been keeping a very close eye on my blood tests and had a Leukemia test done middle of August (October now). I have so many questions that I know can’t be answered
Hi, I have recently been diagnosed with cml, not seen a specialist yet though it’s been 6 weeks since diagnosis via my hiv specialist who has been keeping a very close eye on my blood tests and had a Leukemia test done middle of August (October now). I have so many questions that I know can’t be answered
Scream-N-kick
in
Leukaemia CARE
5 years ago
MD Anderson/Mayo or Peter MacCallum for treatment?
Hi all, My husband is just diagnosed with CLL with WBC at 49, Platelet at 77, enlarged spleen 20 cm and enlarged liver 17 cm. 70% lymphocytes in bone marrow. The FISH test is not available yet until next week so the treatment plan is also not available. But seem that he’s on Stage IV under RAI classification
Hi all, My husband is just diagnosed with CLL with WBC at 49, Platelet at 77, enlarged spleen 20 cm and enlarged liver 17 cm. 70% lymphocytes in bone marrow. The FISH test is not available yet until next week so the treatment plan is also not available. But seem that he’s on Stage IV under RAI classification
writepa
in
CLL Support
5 years ago
Global blood supply runs low - and that's a worry for those with CLL
A study funded by the National Institutes of Health reports that [i]"Nearly two-thirds of countries worldwide have an insufficient supply of blood for transfusion, according to findings from a recent modeling study including 195 countries and territories.[/i] [i]:[/i] [i]Shortages are attributable to
A study funded by the National Institutes of Health reports that [i]"Nearly two-thirds of countries worldwide have an insufficient supply of blood for transfusion, according to findings from a recent modeling study including 195 countries and territories.[/i] [i]:[/i] [i]Shortages are attributable to
AussieNeil
Partner
in
CLL Support
5 years ago
What is ERIC and Why Should We Care?
Dr. Stamatopolous is one of its directors and in these short videos he talks about ERIC in general and its first big meeting. He then discusses his research on the “cognitive dissonance” we all know so well when we are diagnosed with an incurable cancer and then told we need no treatment. Next he explains
Dr. Stamatopolous is one of its directors and in these short videos he talks about ERIC in general and its first big meeting. He then discusses his research on the “cognitive dissonance” we all know so well when we are diagnosed with an incurable cancer and then told we need no treatment. Next he explains
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
High platelet counts as with polycythemia Vera treatments
Does anyone have a doctor that allows high platelets as they are caused by the blood draws to control the HCT and the rest
Does anyone have a doctor that allows high platelets as they are caused by the blood draws to control the HCT and the rest
Hidden
in
MPN Voice
5 years ago
Night sweats ONION SCENT
My wife has noted that my night sweats come with a strong onion scent in the air while I sleep ..I detected it on my clothes if I work and get a lather going I have smelled it also this is a new one on me I shower 2 times a day and am embarrassed by the New aroma I hope
My wife has noted that my night sweats come with a strong onion scent in the air while I sleep ..I detected it on my clothes if I work and get a lather going I have smelled it also this is a new one on me I shower 2 times a day and am embarrassed by the New aroma I hope
lacroixx1
in
CLL Support
5 years ago
How did this happen ?
Just diagnosed with Essential Thrombocythaemia just cant' believe what is happening. Had bowel cancer (2015 surgery) and am still being monitored for it(hopefully last scan Dec 2019)! Going to local hospital tomorrow to collect 'Chemo' capsules-am very anxious about taking them but I have to-(also taking
Just diagnosed with Essential Thrombocythaemia just cant' believe what is happening. Had bowel cancer (2015 surgery) and am still being monitored for it(hopefully last scan Dec 2019)! Going to local hospital tomorrow to collect 'Chemo' capsules-am very anxious about taking them but I have to-(also taking
Ratton726
in
MPN Voice
5 years ago
Was my Jakafi dosage lowered inappropriatelyand need to be raised?
I have stage 3 myelofibrosis, I was on 20mg of Ruxolitinib signed up for a study drug Navitoclax and the first thing a P.A did not a hematologist was lower my ruxolitinib to 10 mg cause my platelets went down. Now I feel so much heat in my body that I can't tolerate it anymore feel like I am burning
I have stage 3 myelofibrosis, I was on 20mg of Ruxolitinib signed up for a study drug Navitoclax and the first thing a P.A did not a hematologist was lower my ruxolitinib to 10 mg cause my platelets went down. Now I feel so much heat in my body that I can't tolerate it anymore feel like I am burning
Boriqua
in
MPN Voice
5 years ago
Patient Advisory Board of patients (and caregivers) with Warm Autoimmune Hemolytic Anemia (wAIHA)
Hello, I wanted to give all of you a heads up (and a head start) on an exciting opportunity that Savvy Co-op is going to release on Monday. The co-op has an opportunity to build an advisory board of patients (and caregivers) with Warm Autoimmune Hemolytic Anemia (wAIHA). wAIHA can often present
Hello, I wanted to give all of you a heads up (and a head start) on an exciting opportunity that Savvy Co-op is going to release on Monday. The co-op has an opportunity to build an advisory board of patients (and caregivers) with Warm Autoimmune Hemolytic Anemia (wAIHA). wAIHA can often present
lankisterguy
Volunteer
in
CLL Support
5 years ago
CURCUMIN? – IS IT THE NEXT BEST THING...?
Post by MPN-MATE Admin » Wed Sep 25, 2019 10:29 am Hey all my MPN colleagues & friends... Thought that you might all enjoy a quick scan of this article on Curcumin, that seems to suggest that its powers might be just what the Pharmacist decided not to order... because it is possible much less expensive
Post by MPN-MATE Admin » Wed Sep 25, 2019 10:29 am Hey all my MPN colleagues & friends... Thought that you might all enjoy a quick scan of this article on Curcumin, that seems to suggest that its powers might be just what the Pharmacist decided not to order... because it is possible much less expensive
socrates_8
in
MPN Voice
5 years ago
NEW HOPE FOR AML...
Post by MPN-MATE Admin » Wed Sep 25, 2019 2:05 am Hey everyone... :-) This article is a tad tough to read through because of all the terminologies (jargon) used etc... However, it is not all that difficult to follow the gist of these findings if one treats it more like an analogy of some mystery and
Post by MPN-MATE Admin » Wed Sep 25, 2019 2:05 am Hey everyone... :-) This article is a tad tough to read through because of all the terminologies (jargon) used etc... However, it is not all that difficult to follow the gist of these findings if one treats it more like an analogy of some mystery and
socrates_8
in
MPN Voice
5 years ago
Accessing medication without a license in UK
I am aware this medication is available for AML
leukaemia
. And if licensed for cholangiocarcinoma in other countries. Our oncologist is happy to prescribe this medication off license. Our oncologist is trying to unfortunately other than USA we have not been successful.
I am aware this medication is available for AML
leukaemia
. And if licensed for cholangiocarcinoma in other countries. Our oncologist is happy to prescribe this medication off license. Our oncologist is trying to unfortunately other than USA we have not been successful.
lyndsw9
in
British Liver Trust
5 years ago
Jakavi a Janus kinase inhibitor ; does anyone know about this Med for the treatment of CLL
I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He is on a clinical trial. It’s approved for myelofibrosis, but now being used for CLL.
I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He is on a clinical trial. It’s approved for myelofibrosis, but now being used for CLL.
LovecuresCLL
in
CLL Support
5 years ago
CLL Trials Updates from European Haematology Association Meeting 2019
Patrick Thornton, MD, Beaumont Hospital, Dublin, Ireland, tells us about some of the excellent CLL updates presented at the 24th Congress of the European Hematology Association (EHA) 2019, held in Amsterdam. Dr Thornton discusses a variety of updates, such as bringing novel agents into the frontline
Patrick Thornton, MD, Beaumont Hospital, Dublin, Ireland, tells us about some of the excellent CLL updates presented at the 24th Congress of the European Hematology Association (EHA) 2019, held in Amsterdam. Dr Thornton discusses a variety of updates, such as bringing novel agents into the frontline
Jm954
Administrator
in
CLL Support
5 years ago
1
...
75
76
77
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1806 results
MPN Voice
834 results
Leukaemia CARE
270 results
View top 10 communities
Sort by
Most Relevant
Newest