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An Early Look at When CAR-T Therapy Fails Patients With CLL
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Jm954
Administrator
in
CLL Support
4 years ago
Low in mood & no motivation
My dad died April 19’ from
leukaemia
complications when we thought he was recovering and my uncle died very unexpectedly at the beginning of the month on the flight home from holiday. I have been struggling to take it all in. I now have my 96 year old grandmother to watch over.
My dad died April 19’ from
leukaemia
complications when we thought he was recovering and my uncle died very unexpectedly at the beginning of the month on the flight home from holiday. I have been struggling to take it all in. I now have my 96 year old grandmother to watch over.
mynameisbecki
in
Mental Health Support
4 years ago
COVID-19 Particularly Risky for CLL Patients
I must say, this article from Fred Hutch did nothing to brighten my day. But, it did make me wash my hands (yet again). According to Dr. Steve Pergam, clinical and infectious disease researcher at Fred Hutch, patients with hematologic malignancies are at greatest risk from COVID-19. Of course, CLL is
I must say, this article from Fred Hutch did nothing to brighten my day. But, it did make me wash my hands (yet again). According to Dr. Steve Pergam, clinical and infectious disease researcher at Fred Hutch, patients with hematologic malignancies are at greatest risk from COVID-19. Of course, CLL is
Lily_Pad_Master
in
CLL Support
4 years ago
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Tagresso Treatment
Anyone being treated with Tagresso? I have EGFR mutation and am on the drug as first line of defense. I was a non smoker and diagnosed at stage four. The cancer is in my right lung and was on my vernacular vertebrae. At the five week scan the cancer on my back was gone and the tumors had 50% shrinkage
Anyone being treated with Tagresso? I have EGFR mutation and am on the drug as first line of defense. I was a non smoker and diagnosed at stage four. The cancer is in my right lung and was on my vernacular vertebrae. At the five week scan the cancer on my back was gone and the tumors had 50% shrinkage
celesteDeS
in
Lung Conditions Community Forum
4 years ago
High risk for COVID-19 and receiving letters/contact from NHS
conditions, it’s probably sensible to contact your specialists directly: - people who have received an organ transplant and remain on ongoing immunosuppression medication - people with cancer who are undergoing active chemotherapy or radiotherapy - people with cancers of the blood or bone marrow such as
leukaemia
conditions, it’s probably sensible to contact your specialists directly: - people who have received an organ transplant and remain on ongoing immunosuppression medication - people with cancer who are undergoing active chemotherapy or radiotherapy - people with cancers of the blood or bone marrow such as
leukaemia
PMRpro
Ambassador
in
PMRGCAuk
4 years ago
LDH levels and myelofibrosis
So I have MF and my doctor is very pleased that my hemoglobin is stable at 10,9 for the last 6 weeks and my platelets are holding between 450 and 600. However, on Friday I went for my regular visit for lab work and my LDH shot up to almost 900, which it is very high for me. I’ve tried to find information
So I have MF and my doctor is very pleased that my hemoglobin is stable at 10,9 for the last 6 weeks and my platelets are holding between 450 and 600. However, on Friday I went for my regular visit for lab work and my LDH shot up to almost 900, which it is very high for me. I’ve tried to find information
Cja1956
in
MPN Voice
4 years ago
Acalabrutinib three weeks appointment
I don’t know where my previous post went. Very likely, I did something wrong, so here it goes. The only side effect was bad headache for one week after which it became dull and I don’t even need to take Tylenol. Some fatigue and less energy and that is all. 👍🏻 My results are: WBC low at 3.9,
I don’t know where my previous post went. Very likely, I did something wrong, so here it goes. The only side effect was bad headache for one week after which it became dull and I don’t even need to take Tylenol. Some fatigue and less energy and that is all. 👍🏻 My results are: WBC low at 3.9,
studebaker
in
CLL Support
4 years ago
MPN News for treatment primary myelofibrosis, post-PVMF, Post ET-MF and Primary myelofibrosis
Hello all. It has been a while but I wanted to share this latest info. The combination of panobinostat (Farydak) and ruxolitinib (Jakafi) demonstrated efficacy and a tolerable safety profile as a treatment for patients with primary myelofibrosis (PMF) and post-polycythemia vera–related myelofibrosis
Hello all. It has been a while but I wanted to share this latest info. The combination of panobinostat (Farydak) and ruxolitinib (Jakafi) demonstrated efficacy and a tolerable safety profile as a treatment for patients with primary myelofibrosis (PMF) and post-polycythemia vera–related myelofibrosis
mammared
in
MPN Voice
4 years ago
Analysing and Resequencing Gene Panels from the UK CLL4 trial (1999-2004) is helping patients today.
The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no Rituximab in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life. For patients who required further
The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no Rituximab in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life. For patients who required further
Jm954
Administrator
in
CLL Support
4 years ago
Official Government advice on who is in the ‘at risk’ category for Covid-19
those who may be at particular risk due to complex health problems such as: People who have received an organ transplant and remain on ongoing immunosuppression medication People with cancer who are undergoing active chemotherapy or radiotherapy People with cancers of the blood or bone marrow such as
leukaemia
those who may be at particular risk due to complex health problems such as: People who have received an organ transplant and remain on ongoing immunosuppression medication People with cancer who are undergoing active chemotherapy or radiotherapy People with cancers of the blood or bone marrow such as
leukaemia
Bookworm55
in
NRAS
4 years ago
Unexplained Polycythemia
Hi there, I was just diagnosed with unexplained secondary polycythemia, I am negative for the JAK2 mutation but they haven't tested for Exon 12 yet. It seems they've done every test under the sun and cannot determine the cause of my polycythemia. It makes me wonder if I actually do have primary. I'm
Hi there, I was just diagnosed with unexplained secondary polycythemia, I am negative for the JAK2 mutation but they haven't tested for Exon 12 yet. It seems they've done every test under the sun and cannot determine the cause of my polycythemia. It makes me wonder if I actually do have primary. I'm
Confusedatpolycythem
in
MPN Voice
4 years ago
Generosity
The
Leukaemia
Foundation is aiming for zero deaths from blood cancer by 2035. It sure feels achievable with all these new treatments. My husband is still in deep remission on I & V captivate trial 2 and a half years in. My thoughts and best wishes to you all.
The
Leukaemia
Foundation is aiming for zero deaths from blood cancer by 2035. It sure feels achievable with all these new treatments. My husband is still in deep remission on I & V captivate trial 2 and a half years in. My thoughts and best wishes to you all.
catnapcrew
in
CLL Support
5 years ago
Acalabrutinib plus Obinutuzumab in Treatment-Naïve and Relapsed/Refractory CLL
Overall response rates were 95% (treatment-naïve) and 92% (relapsed/refractory). Thirty-two percent of treatment-naïve and 8% of relapsed/refractory patients achieved complete remission. At 36 months, 94% (treatment-naïve) and 88% (relapsed/refractory) were progression free. Acalabrutinib plus obinutuzumab
Overall response rates were 95% (treatment-naïve) and 92% (relapsed/refractory). Thirty-two percent of treatment-naïve and 8% of relapsed/refractory patients achieved complete remission. At 36 months, 94% (treatment-naïve) and 88% (relapsed/refractory) were progression free. Acalabrutinib plus obinutuzumab
Jm954
Administrator
in
CLL Support
4 years ago
Corona risk after successful treatment?
I am wondering about the state of the immune system after successful treatment for CLL. My husband's bone marrow was MRD-negative 6 months ago, all blood tests good apart from slightly low lymphocytes. He has been told to expect long term remission. Is he now as likely as the average person to contract
I am wondering about the state of the immune system after successful treatment for CLL. My husband's bone marrow was MRD-negative 6 months ago, all blood tests good apart from slightly low lymphocytes. He has been told to expect long term remission. Is he now as likely as the average person to contract
photohound
in
CLL Support
4 years ago
Does Hydroxycarbamide make it take longer for you to recover from an infection?
Hi everyone! I'm new on this site and I'm interested in learning about the experiences of people with Essential Thrombocythaemia (ET). I was diagnosed with Janus Kinase 2 (JaK2)-positive ET about a year ago but only started on oral chemotherapy with Hydroxycarbamide (Hydroxyurea) a few weeks ago, as
Hi everyone! I'm new on this site and I'm interested in learning about the experiences of people with Essential Thrombocythaemia (ET). I was diagnosed with Janus Kinase 2 (JaK2)-positive ET about a year ago but only started on oral chemotherapy with Hydroxycarbamide (Hydroxyurea) a few weeks ago, as
JaK2ET
in
MPN Voice
4 years ago
CLL, leg pains, high colesterol, sweats, exercise isn’t helping anymore 😢
Specialist said it’s a very slow moving strand of
leukaemia
and I may not even have to have treatment for another 20-30 years. Thing is I’m 37, last few months I’ve been getting really bad leg pains. It’s like a throbbing dense pain and only goes away with anti inflammatorys.
Specialist said it’s a very slow moving strand of
leukaemia
and I may not even have to have treatment for another 20-30 years. Thing is I’m 37, last few months I’ve been getting really bad leg pains. It’s like a throbbing dense pain and only goes away with anti inflammatorys.
Hidden
in
CLL Support
4 years ago
Bloodwork on imbruvica
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
littledab
in
CLL Support
4 years ago
Questions about Richter Syndrome
Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you received treatment for chronic lymphocytic leukemia with chemotherapy? 3- When he was diagnosed with Ricther transformation, had he been previously
Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you received treatment for chronic lymphocytic leukemia with chemotherapy? 3- When he was diagnosed with Ricther transformation, had he been previously
Priss69
in
CLL Support
4 years ago
Richter Transformation Survival in CLL Appears Better Among Treatment-Naive
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation. The researchers identified 3
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation. The researchers identified 3
Jm954
Administrator
in
CLL Support
4 years ago
AML video update of advances in AML treatment by Dr Manos Nikolousis
In this video, he describes how, thanks to increasing use of genetic and molecular information, newer non-chemotherapy medicines are changing the treatment of acute myeloid
leukaemia
(AML). https://youtu.be/dEQyvbOqISE
In this video, he describes how, thanks to increasing use of genetic and molecular information, newer non-chemotherapy medicines are changing the treatment of acute myeloid
leukaemia
(AML). https://youtu.be/dEQyvbOqISE
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
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