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The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for
Leukaemia
Care as we celebrated our [/i][i]50th anniversary.
[/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for
Leukaemia
Care as we celebrated our [/i][i]50th anniversary.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
What causes these horrific night sweats and does everyone get them ?
Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it
Hi All, 3 years on W&W and finally my time has arrived for treatment within the next 5 to 6 weeks. Chemo. Not really shocked just a bit numb really as just got used to the W&W scenario if you ever can. Positive about my treatment anxious about how it will feel. However I’ll be glad to get on with it
Roseneath69
in
CLL Support
4 years ago
Help please !
Hi all , I really believe that I have fibromyalgia, How did you get your doctors to confirm this, I feel like I’m a hypochondriac every time I go to the docs , Most the symptoms I have are identical to fibromyalgia,I have been tested for
leukaemia
and lupus but my g p never mentions fibromyalgia I’ve
Hi all , I really believe that I have fibromyalgia, How did you get your doctors to confirm this, I feel like I’m a hypochondriac every time I go to the docs , Most the symptoms I have are identical to fibromyalgia,I have been tested for
leukaemia
and lupus but my g p never mentions fibromyalgia I’ve
JMJ42
in
Fibromyalgia Action UK
4 years ago
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Diagnosed essential thrombocytosis new
Hi guys so today I just got new am jak2 positive I am devastated crying o dont know what to think What does jak2 positive mean. An worrying about life expectancy and progression what life can I expect? Am 32
Hi guys so today I just got new am jak2 positive I am devastated crying o dont know what to think What does jak2 positive mean. An worrying about life expectancy and progression what life can I expect? Am 32
Irishgal12
in
MPN Voice
4 years ago
Ongoing Research Poised to Add Options for Myelofibrosis Treatment
Post by MPN-MATE Admin » Wed Jan 29, 2020 10:14 am Hey all... :D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their Ruxolitinib (aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years... It talks a little
Post by MPN-MATE Admin » Wed Jan 29, 2020 10:14 am Hey all... :D I simply found this an optimistic and encouraging from the perspective of MF sufferers, and especially if & when their Ruxolitinib (aka Jakafi), loses some of its efficacy, which it tends to do after circa 3.2 years... It talks a little
socrates_8
in
MPN Voice
4 years ago
Video interviews; CLL 'Hot Topics and Maturing Data' ASH 2019: Prof John Gribben, Prof Pete Hillmen, Dr George Follows & Dr Renata Walewska
In December, the
Leukaemia
Care Patient Advocacy team attended the annual American Society of Hematology (ASH) conference in Florida, where the latest research in haematology was presented.
In December, the
Leukaemia
Care Patient Advocacy team attended the annual American Society of Hematology (ASH) conference in Florida, where the latest research in haematology was presented.
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Combined ruxolitinib and pegasys therapy for MF and PV gives great results. Danish phase 2 study Jan 2020 ( ruxopeg)
Hi I’ve pasted in the abstract of the Danish ruxopeg study instead of just the link, as it’s such an important result. The combination of ruxolitinib and pegasys does look to be worth trying.
Ruxolitinib And Interferon-Α2 Combination Therapy For Patients With Polycythemia Vera Or Myelofibrosis:
Hi I’ve pasted in the abstract of the Danish ruxopeg study instead of just the link, as it’s such an important result. The combination of ruxolitinib and pegasys does look to be worth trying.
Ruxolitinib And Interferon-Α2 Combination Therapy For Patients With Polycythemia Vera Or Myelofibrosis:
Rachelthepotter
in
MPN Voice
4 years ago
Can CLL treatment or CLL cause bladder cancer?
I had CLL (in remission) and was on IBR for 2 years. I recently have been treated for bladder cancer during the last 12 months or so and after treatment irradiated the cancer with one small reoccurrence . My question is has anybody experienced bladder cancer after getting treatment with Ibrutinib or
I had CLL (in remission) and was on IBR for 2 years. I recently have been treated for bladder cancer during the last 12 months or so and after treatment irradiated the cancer with one small reoccurrence . My question is has anybody experienced bladder cancer after getting treatment with Ibrutinib or
barger1951
in
CLL Support
4 years ago
Targeting stem cells that drive aggressive blood cancer
This article discusses how some other research they are conducting might go towards helping patients with Acute Myeloid
Leukaemia
(AML). Generally speaking, the treating of AML is not always very successful... Hopefully, this front might be starting to change also...
This article discusses how some other research they are conducting might go towards helping patients with Acute Myeloid
Leukaemia
(AML). Generally speaking, the treating of AML is not always very successful... Hopefully, this front might be starting to change also...
socrates_8
in
MPN Voice
4 years ago
MRD Testing after treatment. Help!
Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results. No monotypic B-cell population identified. Comment: Minimal residual disease (MRD) analysis is intended to detect small clonal populations of
Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results. No monotypic B-cell population identified. Comment: Minimal residual disease (MRD) analysis is intended to detect small clonal populations of
AuntHelen
in
CLL Support
4 years ago
Targeting cell death: helping push cancer cells over the edge
The BCL-2 family regulate one of the body’s apoptotic pathways. As scientists understand more about these proteins, they are able to push the boundaries of cancer research. The BCL-2 family is broadly divided into two types: pro-survival proteins, including BCL-2, BCL-XL, BCL-W and MCL-1, which help
The BCL-2 family regulate one of the body’s apoptotic pathways. As scientists understand more about these proteins, they are able to push the boundaries of cancer research. The BCL-2 family is broadly divided into two types: pro-survival proteins, including BCL-2, BCL-XL, BCL-W and MCL-1, which help
Jm954
Administrator
in
CLL Support
4 years ago
One-to-one buddy support
We have trained buddies to support those diagnosed with:
Acute myeloid
(AML)
Acute lymphoblastic
(ALL)
Acute promyelocytic
(APL)
Chronic lymphocytic
(CLL)
Chronic myeloid
(CML)
Chronic myelomonocytic
We have trained buddies to support those diagnosed with:
Acute myeloid
(AML)
Acute lymphoblastic
(ALL)
Acute promyelocytic
(APL)
Chronic lymphocytic
(CLL)
Chronic myeloid
(CML)
Chronic myelomonocytic
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Study finds targeting nearby ‘normal’ cells could improve survival rates
They found that when a stroma cell’s genes made it unable to produce this protein, it developed resistance to lymphoma and
leukaemia
.
They found that when a stroma cell’s genes made it unable to produce this protein, it developed resistance to lymphoma and
leukaemia
.
Jm954
Administrator
in
CLL Support
4 years ago
High platelets essential thrombocytosis
So been to see haematologist today Pointless exercise- all bloods normal but jak2 mutation still outstanding. He said if its essential thrombocytosis I will need aspirin and not to worry? I honestly am so upset
So been to see haematologist today Pointless exercise- all bloods normal but jak2 mutation still outstanding. He said if its essential thrombocytosis I will need aspirin and not to worry? I honestly am so upset
Irishgal12
in
MPN Voice
4 years ago
FISH testing and chromosomes for dummies
I am betting most of us had a cll tabula rasa at diagnosis, that is, our knowledge of cll was a blank slate. When told I had cll, all I heard was the word "leukemia". Google became my best friend and worst enemy. One of the first things I learned was that cll was not as bad as some other leukemias.
I am betting most of us had a cll tabula rasa at diagnosis, that is, our knowledge of cll was a blank slate. When told I had cll, all I heard was the word "leukemia". Google became my best friend and worst enemy. One of the first things I learned was that cll was not as bad as some other leukemias.
cajunjeff
in
CLL Support
4 years ago
Email
Your GP and receptionist should be made aware that you have
leukaemia
and are immune compromised, so that your symptoms can be investigated immediately. The symptoms of the corona virus are shown below.
Your GP and receptionist should be made aware that you have
leukaemia
and are immune compromised, so that your symptoms can be investigated immediately. The symptoms of the corona virus are shown below.
TheFlyer
in
CLL Support
4 years ago
Why Is the Immunoglobulin Heavy Chain Gene Mutation Status a Prognostic Indicator in CLL? - Dr Keating
A complex but interesting read Acta Haematol August 2018;140:51–54 The immunoglobulin heavy chain gene (IgHV) mutation status correlates with the clinical outcome of patients with CLL treated with chemoimmunotherapy. Why the survival rate of patients with unmutated IgHV is worse than that of patients
A complex but interesting read Acta Haematol August 2018;140:51–54 The immunoglobulin heavy chain gene (IgHV) mutation status correlates with the clinical outcome of patients with CLL treated with chemoimmunotherapy. Why the survival rate of patients with unmutated IgHV is worse than that of patients
Jm954
Administrator
in
CLL Support
4 years ago
going downhill
My husband has CLL dx in 2013. Ok until this last year. Now has gone downhill. He is not to computer friendly so I am doing this. He was started on VENETOCLAX and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of
My husband has CLL dx in 2013. Ok until this last year. Now has gone downhill. He is not to computer friendly so I am doing this. He was started on VENETOCLAX and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of
Gogldn
in
CLL Support
4 years ago
New Need Advice please
Hello, I am new here and so confused. I saw a hematologist in October due to swollen lymph nodes and high eosinophils he ordered bone marrow biopsy. Which came back showing MPN he stated, but nothing to do but wait no further testing recommend. My grandfather had myelofibrosis. I am not comfortable just
Hello, I am new here and so confused. I saw a hematologist in October due to swollen lymph nodes and high eosinophils he ordered bone marrow biopsy. Which came back showing MPN he stated, but nothing to do but wait no further testing recommend. My grandfather had myelofibrosis. I am not comfortable just
chefwife8
in
MPN Voice
4 years ago
Winter blues
Hi I've got hypersensitivity pneumonitis with fibrosis. I've been diagnosed for 3 years now. But have suffered in the winter for a long time. Does anyone know of any tips to help me manage when I am outside? Almaz65
Hi I've got hypersensitivity pneumonitis with fibrosis. I've been diagnosed for 3 years now. But have suffered in the winter for a long time. Does anyone know of any tips to help me manage when I am outside? Almaz65
Almaz65
in
Lung Conditions Community Forum
4 years ago
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