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Germline genetic factors influence the outcome of interferon-α therapy in polycythemia vera
« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and other myeloproliferative neoplasms (MPNs). During treatment of PV, an HR reflects normalization of blood values, whereas a MR marks a substantial
« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and other myeloproliferative neoplasms (MPNs). During treatment of PV, an HR reflects normalization of blood values, whereas a MR marks a substantial
Manouche
in
MPN Voice
4 years ago
COVID-19 is NOT a live vaccine.
https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/covid-vaccine-faqs/
https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/covid-vaccine-faqs/
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
4 years ago
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Is Polymyalgia Linked to Leukaemia
The number of lymphocytes gradually increased in bone marrow and peripheral blood until, almost 5 years after PMR had been diagnosed, a typical picture of chronic lymphatic
leukaemia
(CLL) was observable. The significance of the reported combination is discussed.
The number of lymphocytes gradually increased in bone marrow and peripheral blood until, almost 5 years after PMR had been diagnosed, a typical picture of chronic lymphatic
leukaemia
(CLL) was observable. The significance of the reported combination is discussed.
Estellemac
in
PMRGCAuk
4 years ago
Winter edition of 'Leukaemia Matters' our free news magazine is now available to download
Catch up on the latest news from
Leukaemia
care community here: https://media.leukaemiacare.org.uk/wp-content/uploads/
Leukaemia
-Matters-Winter-2020-Web-Version-2.pdf
Catch up on the latest news from
Leukaemia
care community here: https://media.leukaemiacare.org.uk/wp-content/uploads/
Leukaemia
-Matters-Winter-2020-Web-Version-2.pdf
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Ropeginterferon alfa-2b versus phlebotomy in low-risk patients with polycythaemia vera (Low-PV study)
There is no evidence that phlebotomy alone is sufficient to steadily maintain haematocrit on target level in low-risk patients with polycythaemia vera. This study aimed to compare the efficacy and safety of ropeginterferon alfa-2b on top of the standard phlebotomy regimen with phlebotomy alone. https
There is no evidence that phlebotomy alone is sufficient to steadily maintain haematocrit on target level in low-risk patients with polycythaemia vera. This study aimed to compare the efficacy and safety of ropeginterferon alfa-2b on top of the standard phlebotomy regimen with phlebotomy alone. https
Manouche
in
MPN Voice
4 years ago
Covid trial in UK examines mixing different vaccines
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
Jm954
Administrator
in
CLL Support
4 years ago
Reminder 3.30pm Monday WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Acalabrutinib exhibits comparable efficacy, superior safety to ibrutinib for CLL (finally!)
[i]Positive high-level results from the ELEVATE-RR Phase III trial showed AstraZeneca’s Calquence (acalabrutinib) met the primary endpoint demonstrating non-inferior progression-free survival (PFS) for adults with previously treated, high-risk chronic lymphocytic
leukaemia
(CLL) compared to ibrutinib
[i]Positive high-level results from the ELEVATE-RR Phase III trial showed AstraZeneca’s Calquence (acalabrutinib) met the primary endpoint demonstrating non-inferior progression-free survival (PFS) for adults with previously treated, high-risk chronic lymphocytic
leukaemia
(CLL) compared to ibrutinib
avzuclav
in
CLL Support
4 years ago
Webinar for patients - HCL treatment and care in a changing landscape - 3.30pm GMT Monday 1st December
Once logged in head to
Leukaemia
Care’s Facebook page at 3:30pm on 1st December and find the live video (it will be at the top of our feed).
Once logged in head to
Leukaemia
Care’s Facebook page at 3:30pm on 1st December and find the live video (it will be at the top of our feed).
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
4 years ago
Fertility and essential thrombocythemia
Hey I’m 32 year of age Iv currently have essential thrombocythemia , diagnosed over 10 years ago with blood readings of 1,800 Currently takin Pegasy Been trying to conceive for over a year now , suffered for years with bad periods heavy and very very painful . Just wondering if having this condition
Hey I’m 32 year of age Iv currently have essential thrombocythemia , diagnosed over 10 years ago with blood readings of 1,800 Currently takin Pegasy Been trying to conceive for over a year now , suffered for years with bad periods heavy and very very painful . Just wondering if having this condition
BeckyG88
in
MPN Voice
4 years ago
New mutation
Morning all I haven’t posted for a while as have been struggling along nicely on peg ...... My platelets have remained steady although my HCT has been creeping up. My specialist arranged a red cell mass scan and my red volume is normal so he is not too concerned about HCT being raised. The letter from
Morning all I haven’t posted for a while as have been struggling along nicely on peg ...... My platelets have remained steady although my HCT has been creeping up. My specialist arranged a red cell mass scan and my red volume is normal so he is not too concerned about HCT being raised. The letter from
Graham7694
in
MPN Voice
4 years ago
MF
I’m 67 and about 2 years ago was diagnosed with Myelofibrosis with no real symptoms it was picked up with a routine blood test. Still in a bit of shock even now. I have avoided google and the like. Stem cell replacement had been ruled out I guess because of my age. But I can’t except that there is no
I’m 67 and about 2 years ago was diagnosed with Myelofibrosis with no real symptoms it was picked up with a routine blood test. Still in a bit of shock even now. I have avoided google and the like. Stem cell replacement had been ruled out I guess because of my age. But I can’t except that there is no
Grizly
in
MPN Voice
4 years ago
WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Richter’s Transformation - Results of my Pseudo Richter Human Genome study
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Priss69
in
CLL Support
4 years ago
CML Webinar - Treatment Free Remission (TFR) in chronic myeloid leukaemia
Please join us at 3:30pm on January the 27th You can register in advance here: https://us02web.zoom.us/webinar/register/WN_Fr5TUsuXQ-OhdP7H6uyyBg Treatment Free Remission (TFR) has been a hot topic in CML for the last few years, but it may not be for everyone. This webinar will explore what TFR
Please join us at 3:30pm on January the 27th You can register in advance here: https://us02web.zoom.us/webinar/register/WN_Fr5TUsuXQ-OhdP7H6uyyBg Treatment Free Remission (TFR) has been a hot topic in CML for the last few years, but it may not be for everyone. This webinar will explore what TFR
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Updated shielding guidance for blood cancer patients
After a rollercoaster weekend of changes, we've updated our guidance for those living with a blood cancer You can find all the latest updates here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/shielding-for-people-with-blood-cancers-faqs/
After a rollercoaster weekend of changes, we've updated our guidance for those living with a blood cancer You can find all the latest updates here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/shielding-for-people-with-blood-cancers-faqs/
NicoleLeukaemiaCare
in
Leukaemia Support
4 years ago
Enjoy our Live Well With CLL video
On this rainy winters day, I have just been watching this short film a few CLL friends made with
Leukaemia
Care , CLL Support and AbbVie. Wish it was still summer :-) Happy Christmas https://youtu.be/xW5yP6L7F4Y Nick
On this rainy winters day, I have just been watching this short film a few CLL friends made with
Leukaemia
Care , CLL Support and AbbVie. Wish it was still summer :-) Happy Christmas https://youtu.be/xW5yP6L7F4Y Nick
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Leukemia
Hello, my dad just got diagnosed with leukemia yesterday. He is in the hospital now getting a biopsy. Can anyone please let me know how long the process takes and when can he come home? He is very anxious and miss the family very much. With the coronavirus we cannot visit him. I am wondering between
Hello, my dad just got diagnosed with leukemia yesterday. He is in the hospital now getting a biopsy. Can anyone please let me know how long the process takes and when can he come home? He is very anxious and miss the family very much. With the coronavirus we cannot visit him. I am wondering between
Sam510
in
Leukaemia Support
4 years ago
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