Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,302 public posts
Filter results
CLL + Trisomy 8?
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8. Oncologist
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8. Oncologist
RyStock
in
CLL Support
3 years ago
Partner newly diagnosed with TPLL.
As it’s a rare form of
Leukaemia
I was wondering if there are any other partners out there who may be further down the line than us that would be happy to share experiences Thank you Karen xx
As it’s a rare form of
Leukaemia
I was wondering if there are any other partners out there who may be further down the line than us that would be happy to share experiences Thank you Karen xx
Hiker_chick
in
Leukaemia Support
3 years ago
NICE Recommends Acalabrutinib for treating CLL for certain groups
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic
leukaemia
(CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus cyclophosphamide and rituximab
NICE has approved Acalabrutinib as monotherapy and is recommended as an option for untreated chronic lymphocytic
leukaemia
(CLL) in adults, [u]BUT ONLY IF[/u]: * there is a 17p deletion or TP53 mutation, or * there is no 17p deletion or TP53 mutation, and fludarabine plus cyclophosphamide and rituximab
Jm954
Administrator
in
CLL Support
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
FDA Plans to OK Pfizer Vaccine for Those Aged 12 and Up
The U.S. Food and Drug Administration plans to expand emergency use of Pfizer's coronavirus vaccine by next week so that children as young as 12 can be immunized. After Pfizer's trial in adolescents showed its vaccine worked as well in teens as it does in adults, the FDA started preparing to add an
The U.S. Food and Drug Administration plans to expand emergency use of Pfizer's coronavirus vaccine by next week so that children as young as 12 can be immunized. After Pfizer's trial in adolescents showed its vaccine worked as well in teens as it does in adults, the FDA started preparing to add an
2greys
in
Lung Conditions Community Forum
3 years ago
Webinar 3.30pm, Thursday 11th March - Acute myeloid leukaemia (AML) treatment update
Dr Emmanouil Nikolousis Consultant Haematologist and
Leukaemia
Care Trustee will be joined by a clinical nurse specialist and an AML patient to explore topics together and answer your questions during the discussion. Register here > http://bit.ly/AMLWebinarLC
Dr Emmanouil Nikolousis Consultant Haematologist and
Leukaemia
Care Trustee will be joined by a clinical nurse specialist and an AML patient to explore topics together and answer your questions during the discussion. Register here > http://bit.ly/AMLWebinarLC
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Freedom day could come at a high price for the clinically vulnerable by Sean O'Neil CLL Patient and UK Times Newspaper Chief Reporter
I have had
leukaemia
for more than a decade and subsequently developed a secondary cancer which required a bout of surgery and a hefty blast of chemotherapy this year.
I have had
leukaemia
for more than a decade and subsequently developed a secondary cancer which required a bout of surgery and a hefty blast of chemotherapy this year.
Jm954
Administrator
in
CLL Support
3 years ago
Travel Insurance with CLL (UK based)
I was diagnosed Stage 1 CLL in February. No treatment at present or planned. Any recommendations on travel insurance before I investigate further and declare to my existing insurer (free though my banking) or look elsewhere. Thanks.
I was diagnosed Stage 1 CLL in February. No treatment at present or planned. Any recommendations on travel insurance before I investigate further and declare to my existing insurer (free though my banking) or look elsewhere. Thanks.
Stretch47
in
CLL Support
3 years ago
Antibody results just said “yes,” not level
Last week I had an antibody test at my dermatologist’s (who has a vested interest in CLL) to see if my January and February Moderna jab produced antibodies. My impression was that this blood test would be “quantitative” rather than “qualitative,” meaning that it would at least give a general idea of
Last week I had an antibody test at my dermatologist’s (who has a vested interest in CLL) to see if my January and February Moderna jab produced antibodies. My impression was that this blood test would be “quantitative” rather than “qualitative,” meaning that it would at least give a general idea of
Myfavoritecat
in
CLL Support
3 years ago
Help make a drug to treat GvHD available to patients
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
CLL_Canada_Group
in
CLL Support
3 years ago
Should FISH test be repeated?
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Myfavoritecat
in
CLL Support
3 years ago
Suggestions where to find CBC pre-made spreadsheets
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
Pin57
in
CLL Support
3 years ago
CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?
could be included in the following clinical trial: "A phase 3 multicentre, randomized, prospective, open-label trial of ibrutinib monotherapy versus fixed-duration venetoclax plus obinutuzumab versus fixed-duration ibrutinib plus venetoclax in patients with previously untreated chronic lymphocytic
leukaemia
could be included in the following clinical trial: "A phase 3 multicentre, randomized, prospective, open-label trial of ibrutinib monotherapy versus fixed-duration venetoclax plus obinutuzumab versus fixed-duration ibrutinib plus venetoclax in patients with previously untreated chronic lymphocytic
leukaemia
Noham027
in
CLL Support
3 years ago
Webinar 3.30pm, Tuesday 6th April - Acute lymphoblastic leukaemia (ALL) treatment update
Please join us for the 3rd in the series of acute
leukaemia
treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
Please join us for the 3rd in the series of acute
leukaemia
treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Real-World Study Shows Limited Implementation of Reccomended Biomarker Testing in CLL
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Jm954
Administrator
in
CLL Support
3 years ago
Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute
leukaemia
. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
Please join us for the 1st in our series of free treatment updates in acute
leukaemia
. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Duloxetine 30mg
Hi everyone, hope you are enjoying the sun🌞 😃 well we’re in Wales UK so maybe your not so lucky today. So I’ve been on Rux for a while which I’m pleased to say is controlling my blood levels. I have been taking Teva brand Amitriptyline as pain control for many years now. Unfortunately this has not
Hi everyone, hope you are enjoying the sun🌞 😃 well we’re in Wales UK so maybe your not so lucky today. So I’ve been on Rux for a while which I’m pleased to say is controlling my blood levels. I have been taking Teva brand Amitriptyline as pain control for many years now. Unfortunately this has not
StreetPastor
in
MPN Voice
3 years ago
Good News. Update on previous posts.
Having stopped HU on the instructions of A&E and my Haemo still insisting that breathing problems not caused by HU I requested GP to refer me to Dr Claire Harrison and yesterday I had a telephone appointment with her. What a lovely conversation. She acknowledged that HU was not agreeing with me obviously
Having stopped HU on the instructions of A&E and my Haemo still insisting that breathing problems not caused by HU I requested GP to refer me to Dr Claire Harrison and yesterday I had a telephone appointment with her. What a lovely conversation. She acknowledged that HU was not agreeing with me obviously
Heather270240
in
MPN Voice
3 years ago
New York City -- CLL Society Patient Support Group Sunday May 9 , 2021 3pm – 5pm
CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet by Zoom on May 9 at 3:00pm Date:Sunday May 9 , 2021 (or choose another day & time
CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet by Zoom on May 9 at 3:00pm Date:Sunday May 9 , 2021 (or choose another day & time
lankisterguy
Volunteer
in
CLL Support
3 years ago
Clumping platelets?
Does anyone here know anything about possible clumping platelets? My platelets have been dropping steadily and are now at 49. I don't have any bruising or nosebleeds or anything and my haematology nurse has ordered a blood film with my next blood test to see if they are clumping and causing a falsely
Does anyone here know anything about possible clumping platelets? My platelets have been dropping steadily and are now at 49. I don't have any bruising or nosebleeds or anything and my haematology nurse has ordered a blood film with my next blood test to see if they are clumping and causing a falsely
Otterfield
in
MPN Voice
3 years ago
Cookalong with LuBan Kitchen for Chinese New Year and support Leukaemia Care
BW
Leukaemia
Care team
BW
Leukaemia
Care team
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
1
...
46
47
48
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1816 results
MPN Voice
841 results
Leukaemia Support
270 results
View top 10 communities
Sort by
Most Relevant
Newest